Tuesday, July 16, 2024

Working With Parkinson’s Patients

Should I Or Shouldnt I Tell My Employer

What is Parkinson’s Disease?

The first question to consider is whether you intend to inform your employer and/or colleagues about your diagnosis. Though many people delay sharing their diagnosis for fear of retribution or alienation, others find strong support networks within their companies. Consider your relationship with your supervisor and colleagues and make the choice that feels right for you. If you do disclose your diagnosis, be prepared to explain Parkinsons to people who may not understand it or who have misconceptions about it, remembering that this will be an ongoing conversation as you learn more about your unique path with Parkinsons.

Review the Americans with Disabilities Act to determine what accommodations you may be entitled to, and what steps you should take if you intend to seek job protection under the ADA. If you plan to request what the law calls reasonable accommodations from your employer, you must disclose your diagnosis and meet the ADA standards of disability. As you review the act, however, keep in mind that not all people with Parkinsons will need accommodations to continue performing their jobs, and many others may need only a few.

Americans With Disabilities Act

Job protection under the Americans with Disabilities Act is available only if you are “disabled,” inform your employer of your disability and request a “reasonable accommodation” to allow you to continue to do your job at a satisfactory level. Parkinson’s disease in its advanced stages is recognized by the federal government as a disability, allowing people with PD to secure the protections of the ADA. However, because the Act requires an individual to be impaired in some way that affects his or her daily life, not every person with Parkinson’s will meet the standards.

Do I Have The Right To Ask For Flexible Working Hours

You may have a statutory right to ask your employer if you can work flexibly. This may mean changing your hours or working from home. Your right to make this request will depend on how long you have been working at your company . Your employer must give serious consideration to your request but they can refuse if there are good business reasons for doing so. Visit the government’s website to find out more about flexible working.

Remember that there is nothing stopping you from talking to your employer informally. For example, if you do not have 26 weeks service. This may also be appropriate if you need a temporary change to your role.

Also Check: How To Manage Parkinson’s Symptoms

Training Considerations For Deep

We used the larger subject pool recorded at Tufts University to train our deep-learning pipelines, and the Study 2 dataset to test them. While both dataset distributions were concentrated around lower PIGD scores rather than higher scores, Study 1 dataset had more evenly distributed scores. Study 2 dataset had few subject recordings with PIGD scores in the middle a disproportionate majority of visits had low score labels with only a few visits with higher scores . Moreover, skewness was smaller for Study 1 than for Study 2, indicating that the distribution of Study 1 was less asymmetric . This in particular was important for generalization. A pipeline trained with the more skewed distribution of Study 2 scores would not have performed well when tested with examples not well represented by that dataset, namely walks for subjects with high scores .

What Future Medications May Be Available For Parkinsons

State College, PA

There are numerous studies investigating new treatments for Parkinsons disease.

There has been new information about the role of autoimmunity and T-cells in the development of Parkinsons disease, possibly opening the door to a role for biologics.

Stem cells are also being investigated as a treatment option for Parkinsons disease.

Don’t Miss: Best Hobbies For Parkinson’s Patients

If You Can No Longer Work

If you can no longer work, finances often are top of mind. If you are already of retirement age and are fully vested in your pension, you will probably retire much as if you would if you did not have Parkinson’s disease. Some pension plans include medical benefits that may even cover prescription medications. In some cases, you may be eligible for early retirement, which generally reduces the amount of your benefits by a percentage that depends on how many years away from full retirement you are when you stop working.

You also may have a 401 or other retirement savings plan that you’ve been contributing to while working. Under certain circumstances, you may tap into these funds before age 59-1/2, but there may be penalties or taxes that make this undesirable.

To Tell Or Not To Tell

Many newly diagnosed people with Parkinsons avoid telling their employers and coworkers about their condition because they fear they will be unfairly treated. But the Americans with Disabilities Act was created, in part, to keep employers from discriminating against people with disabilities or certain health conditions when they are hired, on the job or being fired. Every work setting is different. It is important that you feel comfortable with your choice.

Also Check: Device To Help Parkinson’s

When Should I See My Healthcare Provider Or When Should I Seek Care

You should see your healthcare provider as recommended, or if you notice changes in your symptoms or the effectiveness of your medication. Adjustments to medications and dosages can make a huge difference in how Parkinsons affects your life.

When should I go to ER?

Your healthcare provider can give you guidance and information on signs or symptoms that mean you should go to the hospital or seek medical care. In general, you should seek care if you fall, especially when you lose consciousness or might have an injury to your head, neck, chest, back or abdomen.

Should I Tell My Colleagues

Parkinson’s Disease Exercises: LSVT BIG Movements

This is up to you, so take some time to consider what you think is best. Colleagues can be very supportive, and it may help to talk with someone you can trust at work. You may find that other colleagues are also carers. Together, you may be able to talk to your employer about ways you could be supported in juggling your job and caring.

Recommended Reading: Can Stem Cells Help Parkinson’s Disease

When Should I Stop Working

You may start thinking about giving up work completely earlier than you would have done if you had not been diagnosed with Parkinson’s. This may be because working with Parkinson’s is becoming too difficult or you would prefer to concentrate on other aspects of your life.

If you’re thinking about retiring, it may help to consider the following:

  • Don’t rush into a decision. If you’re finding it difficult to manage your symptoms, you may just need changes to your medication regime and to take some time to adjust to this.
  • Think about how stopping work will affect you emotionally and practically.
  • Look carefully at your finances, including your pension, benefits and savings. Keep in mind that any benefits you get from work will end. It may be helpful to seek advice from an independent financial adviser.
  • Speak to your employer or trade union to make sure you’re leaving on the right terms, and at the best time. Some companies encourage their employees to attend training courses on preparing for retirement.
  • Consider the alternatives such as working part-time or volunteering.
  • Call our helpline on 0808 800 0303or speak to your local Citizens Advice or welfare benefits service for further information.

If you do decide to retire, it may take time to adjust to life without work. Talking to someone about the decision may help. This may be a family member, trusted friend, others who have gone through retirement, or a trained counsellor.

Mst Pd And Neural Plasticity

After 4 wk of MST, the PD patients exhibited a V/M ratio level that was even higher than what is typically observed in healthy old individuals . Notably, this training-induced increase in efferent drive accounted for 26% of the increase in leg press 1RM and 46% of the increase in chest press 1RM . These results are in accordance with a recent study revealing that PD patients have the potential to improve efferent neural drive in response to strength training . Albeit, that study showed that improvements in V/M ratio were only evident if the training was performed while standing on an unstable device. Surprisingly, the Silva-Batista et al. study showed that the direct motor response during rest and during MVC improved following the unstable strength training in PD. This finding contrasts the current study and previous literature , documenting the Mmax and Msup to remain unaltered following strength training. Increases in efferent neural drive, as observed in the present study, may be attributed to both enhanced firing frequency and/or motor unit recruitment . In support of this notion, David et al. showed that high-intensity strength training improved voluntary muscle activation in PD patients. Collectively, the present data and previous observations demonstrate the effectiveness of strength training performed with high intensity to induce significant neural adaptations in PD patients.

Read Also: How To Care For Someone With Parkinson’s Disease

How To Start Exercising If Youre Living With Parkinsons

Safety is key. The first thing you need to do is talk with your neurologist and primary care doctor to make sure that the exercise regimen that you embark upon is safe for you.

Next, ask for a referral for physical therapy. A physical therapist will be able to figure out what movement challenges you may have and design a program to help you improve. There are certain physical therapists with additional training in Parkinsons. Your physical therapist will work with you for your allotted sessions, and then can help you plan your ongoing exercise regimen that is tailored to you. You can contact the APDA National Rehabilitation Resource Center for Parkinsons Disease for help finding resources in your area.

Additionally, physical therapy can help counteract the tendency for people with PD to reduce the size of their movements. The Lee Silverman Voice Technique has designed a program called LSVT-BIG which trains participants to make big movements. You can search for an LSVT-trained professional near you.

Anyone starting out on an exercise program could benefit from APDAs Be Active & Beyond exercise guide which includes clear photos with simple instructions that are easy to follow, with exercises that address all levels of fitness.

Do I Have To Tell Potential Employers That I Have Parkinsons

Working with Your Parkinson

If youre looking for a job you may be wondering about whether you need to tell a possible employer about your condition.

In Great Britain

It is against the law for a potential employer to ask you about your health or any disability before offering you a job, except in very limited circumstances.

You should only be asked questions about your health for certain purposes, such as in the examples below.

  • If a potential employer is trying to find out whether you need any changes or reasonable adjustments to be made to the recruitment process.
  • For monitoring purposes. Potential employers can ask you to complete a form stating your race, gender, sexuality, religion, age and if you have a disability. Filling in these forms is usually optional and they are processed separately from your application.
  • If a potential employer is trying to find out if you have a disability or health condition that would affect your ability to carry out an essential part of the job. For example, if you were applying for a job as a scaffolder, your employer could reasonably ask you if you have any condition that would affect your ability to climb scaffolding and work at heights.
  • If they require an employee to have a particular disability or condition as part of the role they are recruiting for.

In Northern Ireland

Read Also: Fitflop Shoes For Parkinsons

Also Check: Good Diet For Parkinson’s

Healthy Business Healthy Employees

As your companys HR or benefits administrator, you have a knack for wanting to help and educate your employees on how they can become savvy health care consumers. And companies that offer Wellmark coverage, also offer their employees the tools and resources they need to help manage their conditions, monitor claims and costs, compare quality, and find top centers for specialty care.

With myWellmark®, your confidence can be restored Opens in a newwindow in your employees knowledge of their health insurance coverage, leaving you to answer fewer questions, calls and emails about health insurance information.

If they havent done so already, encourage your employees to register for myWellmark Opens in a new window. Questions? Contact your authorized Wellmark account representative or email us at .

Free Case Evaluation For People With Parkinson’s Disease

All too often, claimants are denied disability based on missing, inaccurate, or incomplete paperwork. As a result, the applicant must then begin on the arduous disability appeal process. Unfortunately, the this process is long and slow, resulting in excruciating delays.

A Social Security Disability lawyer can make sure you have the documents you need the first time, saving you the hassle and the delay of a lengthy disability appeal process.

To speak with a qualified Social Security Attorney about your chances of getting Social Security benefits, request a free disability evaluation today.

Don’t Miss: Does Parkinson’s Make You Forget Things

Physical Therapy For Parkinsons Disease

Its well-known that exercise of all kinds is beneficial for patients with Parkinsons disease. But physical therapy, in particular, is key. Why? A professional can guide you through the right moves to increase mobility, strength and balance, and help you remain independent, says Denise Padilla-Davidson, a Johns Hopkins physical therapist who works with patients who have Parkinsons. Here are things a therapist may work on:

Note: Please discuss any exercise program with your physician/neurologist and get a referral to a physical therapist or trainer with expertise in Parkinsons disease before starting any specific program.

Modifications And Adaptations In The Workplace

Parkinson’s Disease & Medication – What’s New

There are several modifications that can be made to the workplace to enable someone with PD to continue to work effectively. Occupational therapists can be a valuable resource and provide individual recommendations for adaptations or assistive devices to a persons workplace. Some common adaptations for the workplace include:

  • Allowing a flexible schedule and/or flexible use of leave time to accommodate symptoms like fatigue
  • Allowing an individual to work from home
  • Reducing the amount of walking required or providing a scooter
  • Installing an ergonomic work station
  • Providing voice-recognition software instead of typing
  • Providing speech amplifiers1,3

Also Check: New Research On Parkinson’s Disease

Cleaning Tips For Those With Parkinson’s

  • Use long handles on sponge mops, cleaning brushes, dust pans, brooms, or window washers.
  • Sit to fold laundry, wash dishes, iron clothes, use the sweeper, mop the floor, or to plug in appliances at low outlets. Adapt counters so that you can reach them from your wheelchair or from a sitting position.

Complex Parkinson’s Disease And Palliative Care

Complex Parkinson’s disease is defined as the stage when treatment is unable to consistently control symptoms, or the person has developed uncontrollable jerky movements .

These problems can still be helped by adjustment or addition of some of the medications used to treat Parkinson’s disease, under the supervision of a doctor with a specialist interest in Parkinson’s disease.

As Parkinson’s disease progresses, you’ll be invited to discuss the care you want with your healthcare team as you near the end of your life. This is known as palliative care.

When there’s no cure for an illness, palliative care tries to alleviate symptoms, and is also aimed at making the end of a person’s life as comfortable as possible.

This is done by attempting to relieve pain and other distressing symptoms, while providing psychological, social and spiritual support for you and your family.

Palliative care can be provided at home or in a hospice, residential home or hospital.

You may want to consider talking to your family and care team in advance about where you’d like to be treated and what care you wish to receive.

Recommended Reading: Best Edibles For Parkinson’s

Should I Tell My Employer That I’m A Carer

You do not have to tell your employer you are a carer. But it may help if you need to take time off to look after the person you care for.

You might make this decision depending on whether your employer has a policy to support carers, or whether they’d be open to exploring ways to support you. Find out what’s available before you approach your manager.

Possible support options include:

  • special leave arrangements to cover any time you need to care for your loved one
  • an employee assistance programme, if your workplace has one. This will be designed to deal with any personal or work-related problems you have that may affect your ability to do your job
  • access to advice, support and information, perhaps on a staff website or carers’ network

Exercise And Healthy Eating

Parkinsons Awareness Training

Regular exercise is particularly important in helping relieve muscle stiffness, improving your mood and relieving stress.

There are many activities you can do to help keep yourself fit, ranging from more active sports like tennis and cycling, to less strenuous activities such as walking, gardening and yoga.

You should also try to eat a balanced diet containing all the food groups to give your body the nutrition it needs to stay healthy.

You May Like: Is Parkinson’s Disease Considered A Disability

What Are The Early Warning Signs Of Parkinson’s Disease

Parkinsons warning signs can be motor symptoms like slow movements, tremors or stiffness. However, they can also be non-motor symptoms. Many of the possible non-motor symptoms can appear years or even decades ahead of motor symptoms. However, non-motor symptoms can also be vague, making it difficult to connect them to Parkinson’s disease.

Non-motor symptoms that might be early warning signs include:

Popular Articles
Related news