Tuesday, May 21, 2024

Parkinson’s And Independent Living

Power Of Attorney And Advance Health Care Directive

Parkinson’s Disease for Assisted Living Facilities

It might be possible to make your own decisions until the end of your life despite having Parkinson’s. But its possible that the effects of the disease will keep you from doing so, partially or entirely. That’s why its usually a good idea to already draw up a power of attorney or advance health care directive in the early stages.

An advance health care directive determines what medical care you want to be given in the event that youre no longer able to make your opinion known. In Germany, you can appoint someone to take care of important matters if youre no longer capable of doing so yourself . Your doctor can give you advice on this. The German-language topic website of the German Federal Ministry of Justice provides basic information on these issues in Germany. This website also links to free downloads of templates and brochures.

Social Physical And Recreational:

  • Is there a program designed to implement activities for residents?
  • Who conducts programs? Is family welcome?
  • Are there any programs to involve residents in the community?
  • Are personal pets allowed? Are there resident pets?
  • Are there exercise and physical activity programs and what do they look like?

From here, you can start to ask the staff or facilitator more of the specific, care-related questions you want to know.

The Prevalence Of Parkinsons Disease

According to the nonprofit Parkinsons Foundation, approximately 60,000 Americans are diagnosed with the disease each year, and nearly one million people will be living with Parkinsons disease in the U.S. by 2020.

If youre a caregiver for a loved one with Parkinsons or you suffer from the disorder yourself, this guide is designed to provide you with the key information you need to know if youre considering the transition to assisted living.

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Clinical Oversight From A Nurse Supervisor

Clinical oversight is also provided throughout your care by a Nurse Supervisor who provides support to you and your care professionals and addresses any changes in your condition. Nurse oversight is also about communication.

Through direct feedback and proactive management, we ensure that necessary information is shared with your family and your multidisciplinary team.

This allows us to work together in providing the most effective level of care.


Struthers Parkinsons Care Network

Parkinsons in Motion

In 2016, Broad Street partnered with the Struthers Parkinsons Care Network which was instrumental in the development of our training curriculum. The Struthers team coordinates a network of care organizations across the country facilitating a method of communicating successes and struggles encountered in the delivery of care.

We continue to collaborate with The Struthers Parkinsons Care Network to ensure that we are delivering the most effective training and utilizing the best practices available in support of our clients.

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Minimize Risk At Home

Use the Parkinsons Foundations Home Safety Considerations checklist to ensure your home is safe and easily accessible. Or request a Home Safety Evaluation from your doctor. An occupational therapist can perform an in-home assessment to make your home safer.

You may also want to research medical alert systems. These wearable devices can bring help quickly in an emergency.

How Can Occupational Therapy Help Me Optimize My Environment For Parkinson’s

This short article explains that the goal of occupational therapy is to help you be as independent as possible for as long as possible. To meet that goal, an OT can help you maintain or strengthen your ability to care for yourself, care for your house, take care of your loved ones, and get around in the community. The page has a link to a home safety checklist and more articles about occupational therapy.

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Assistive Technology For Parkinsons Patients

Living with Parkinsons Disease

Assistive technologies can offer Parkinsons help at home by making daily tasks more manageable for your loved one. Assistive technology is any item, piece of equipment, software program, or product system that is used to increase, maintain, or improve the functional capabilities of persons with disabilities, according to the Assistive Technology Industry Association.

From mobility equipment to specialized computers and dressing devices, there are a multitude of ATs that can help individuals with PD, according to the American Parkinsons Disease Association. Here are some example devices, organized by the area of the home they are suitable for:

  • Bedroom: bedrails, adjustable blanket support, motion lights, intercom communication device
  • Bathroom: tub seats or shower chairs, handheld showerhead, raised toilet seat
  • Kitchen: rubber shelf liners, pot stabilizers, kitchen bench, reach extender
  • Closet: lowered hanging rods, long-handled shoe horns and sock donners, button hooks

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Ability To Transition To More Comprehensive Care

Another consideration is when the need for care intensifies and needs to become more comprehensive and your loved one moves from assisted living into a skilled nursing environment, would you have to find an entirely new facility for this additional care or can you move them within the organization.

As Bethesda offers skilled nursing, the transition to a more supervised level of service is available. Our assisted living residents always have priority access to the higher levels of care, adds Lea Ann.

If you are considering an assisted living community for yourself or a senior loved one, schedule a tour at Bethesda Hawthorne Place or Charless Village. Our unique living options are available for all senior residents, ensuring that you receive the right level of care at the right time.

What Services Or Specialized Care Is Offered At Assisted Living Facilities For Parkinsons Patients

For someone with Parkinsons disease, they need increased accessibility. For instance, this can include increased access to group outings and social activities provided by the assisted living center. This also includes having staff available for assistance 24/7, which is available at most assisted living facilities. Increased accessibility also includes more onsite medical services and rehabilitation professionals.

In addition, an assisted living that caters to Parkinsons patients should have experience with residents who have the disease. More importantly, the staff needs to be trained on how to identify signs and symptoms of Parkinsons, as well as how to assist patients with the disease.

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My Family’s Concern For Parkinson’s

Since the diagnosis, my parents have watched me like a hawk because they fear that some great harm might befall me if they slacken. And their concern wasn’t unwarranted.

This will not happen again. I gingerly unfurl my clenched fists and toes. My inconsideration is hurting the people who love me. I managed to calm down and allowed myself to relax. I will not allow this to happen again.

Inch by inch, I extend and stretch out my limbs. I reach into my soul to yank out one last unit of energy, just enough to push myself up. And then in one fell swoop, I hurl myself towards the door and fumble my way into the room.I wish that was how it ended.

To be continued

Department Of Veterans Affairs

Parkinsons in Motion

Through the VA Health Care program and their pensions, the VA offers veterans multiple avenues of assistance with medical equipment, assistive technology and home modification. The avenue best pursued depends on whether or not the individual with Parkinsons Disease was exposed to herbicides during their military service. For those individuals not exposed, they are most likely to receive assistance from the Aid and Attendance pension benefit, VD-HCBS or the HISA Grant. For those veterans with PD who were exposed, VA Health Care will cover the cost of much assistive technology and medical equipment.Another option for veterans comes not from the VA but from a non-profit organization with a veteran-specific program called Heroes at Home. This program is intended to assist in making home modifications and typically provides free labor for modifications but does not cover the cost of materials.

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Parkinsons Disease And Assisted Living

Caring for a loved one with Parkinsons disease can be stressful, emotionally and physically draining and financially taxing. And while people living with the disease may wish to remain at home as long as possible, sometimes that isnt the best option. The good news is that assisted living communities can provide the ideal setting for those with Parkinsons.

Read on for information about the disease itself, how assisted living can help, and what to look for in an assisted living community for a loved one with Parkinsons Disease.

What Are Some Causes Of Parkinsons Disease

Multiple risk factors may contribute to PD. Scientists still arent sure why neurons in Parkinsons patients weaken and produce lower levels of dopamine, according to Harvard Health Publishing. Researchers continuously note the following factors that affect Parkinsons risk:

  • Age. While some people are diagnosed with early-onset PD before 50, age increases the likelihood of diagnosis.
  • Sex. People born male are 1.5 times more likely to have PD than people born female.
  • Environmental causes. Exposure to certain chemicals, metals, and organic pollutants may be linked to increased Parkinsons risks. Various agricultural pesticides may be linked to neurodegeneration that leads to PD, according to research published in the American Journal of Epidemiology.
  • Head injuries. Repeated head trauma may increase a persons PD risk.
  • Genetics. Certain altered and mutated genes can increase the risk of developing PD.

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The Symptoms Of Parkinsons Disease

Parkinsons disease gradually impairs a persons ability to move, walk, talk and swallow, and it typically develops when patients are in their 50s or 60s . For some people, the condition can be severely debilitating in the long term, while others are able to function relatively well even after 25 years of living with the disorder.

Home Care May Not Be An Option In The Following Circumstances:

Living Well with Young Onset Parkinson’s Disease
  • Financial considerations do not permit it . Many people believe that Medicare will pay for in-home care, but there are strict eligibility requirements .
  • Family limitations do not permit it
  • Caregivers physical and emotional strength is depleted
  • Patients condition requires skilled nursing care or round-the-clock attention
  • Physical layout of the home is unsuitable
  • Individual with PD prefers to live independent of family

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Ensuring Your Loved Ones Parkinsons

Depending on where you live, assisted living options may be numerous and overwhelming or somewhat narrow and restrictive. And finding an assisted living community thats right for someone living with Parkinsons can make the search even more stressful than it already is. But Lehr says that if you know what youre looking for the process doesnt have to make you anxious, because there are several criteria that prospective residents and/or their families should consider when searching for the right assisted living community.

How Do I Pay For Assisted Living For Elderly Parkinsons Patients

For starters, Medicare does not cover costs for assisted living for elderly Parkinsons patients. For low-income seniors, there is the option of Medicaid. However, the NCPC reports that only 11 percent of seniors in assisted living used Medicaid to pay for care in 2002. This may be due to the stringent rules for Medicaid recipients, such as they cannot have assets worth more than $2,000 in total.

The best solution for seniors is to purchase long-term care insurance to cover the costs of assisted living. Long-term care insurance typically covers this expense, but check the contract details to verify coverage. Ultimately, its the family that pays for care. The NCPC reports that 75 percent of patients depend on family members to pay out-of-pocket for assisted living.

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Effects Of Parkinsons Disease On Caregivers

Caregiving for a person with Parkinson’s disease can result in significant physical and emotional stress for caregivers. If the caregiver is a spouse/partner, there is the added component of an intimate relationship that is forever changed. Fear, denial, anger, guilt, and sadness are common emotions felt by caregivers of individuals with Parkinson’s disease.

Support groups for Parkinson’s disease are available that caregivers can attend with the individual living with Parkinsons disease and there are support groups for caregivers alone. Parkinson’s disease support groups are available in several locations across the country and there are many support groups online.

If a person is caregiving for someone with Parkinson’s disease, it is important for them to acknowledge the feelings and struggles they are having at times and seek out support.

It is not uncommon for caregivers to let their own needs go unmet while they focus on the person with the disease. However, this often leads to burnout and health problems for the caregiver.

Respite care is a care option that is strongly recommended for caregivers who simply need a break from caregiving or need time to run errands and attend to their own needs. Family members or friends may be able to help provide this respite break for a caregiver. Alternatively, there are agencies that provide this type of care and service both in and outside ones home.

Exercise And Healthy Eating

Living With Parkinsons Disease Stock Photo

Regular exercise is particularly important in helping relieve muscle stiffness, improving your mood and relieving stress.

There are many activities you can do to help keep yourself fit, ranging from more active sports like tennis and cycling, to less strenuous activities such as walking, gardening and yoga.

You should also try to eat a balanced diet containing all the food groups to give your body the nutrition it needs to stay healthy.

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Montanans Giving Back To The Parkinsons Community


Our mission is to help Montanans with Parkinson’s Disease and related conditions live life to the fullest.


Summit for Parkinsons is dedicated to creating a place where those touched by Parkinsons will be empowered through information and connection with others affected by the disease.

Explore Las Ventanas Senior Living

We all want to be purposeful. Stay connected to family and friends. Continue to learn and grow. Were here to help you make that happen.Were HumanGood, the nonprofit owner of Las Ventanas at Summerlin, a vibrant senior living community in a desirable Las Vegas, Nevada suburb.

Las Ventanas at Summerlin is Las Vegas premier senior living communityand Nevadas only one with a Life Care Benefit. Our campus is conveniently located between the excitement of the Las Vegas Strip and the beauty of the Spring Mountains and Red Rock Canyon. With endless cultural, physical, social and intellectual activities, you can continue growing in mind, body and spirit. With the Life Care Benefit, independent living residents can enjoy an all-inclusive, maintenance-free lifestyle with peace of mind and security. Should your health care needs change over time, this benefit provides you with access to advanced health care servicesall on one campus at a predictable cost. Las Ventanas features attractive Mediterranean architecture and offers luxurious independent living apartments, as well as assisted living, memory support, skilled nursing and short-term rehabilitationall on one beautiful campus.

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Some Signals Of Parkinsons Disease

Unexplained mood or personality changes Specific declines in motor skill Digestive issues

While the signals of Parkinsons can seem general in nature, there are other aspects to consider. Generally, the disease begins to show symptoms around the ages of 50s-60s. However, onset can begin at an earlier age, as evidence by one of the most famous cases of Parkinsons, Michael J. Fox.

In order to achieve the best results while treating Parkinsons, taking a holistic approach is what sets us apart as a facility providing nursing care to residents with Parkinsons disease. Our dedicated staff takes exactly this approach. While ensuring that a medication schedule is adhered to and helping our residents have a healthy state of mind helps to ensure their care goals are met. Maintaining good nutrition and fluid intake are significant importance when dealing with a disease such as Parkinsons.

Continuing to stay mobile is another key to providing the best care results for Parkinsons. This includes both maintaining as independent a lifestyle as possible but participating in exercises which will help to increase range of motion and mobility.

Evaluate And Understand Your Own Needs

‘Wearing off’ – Paula’s story of living with Parkinson’s

First things first, you should sit down with your loved one and any current caregivers to discuss the needs and most important services for the care of your loved one. Here are some questions you should ask:

  • Why is this transition necessary or wanted?
  • How often is help needed?
  • To what extent is help needed and in what areas is it needed most?
  • Is there a budget that need to be considered?
  • Are you aware of any programs you can use to help cover the cost?
  • You should explore a caregivers handbook and other essential documents in addition to these questions. That way, when you begin to explore facilities, you have a well-understood list of what it is that youre looking for so everyone involved is on the same page. This will allow for a smoother transition.

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    What Is Slr Doing To Support Those With Parkinsons

    • Movement & Fitness Classes: The American Parkinson Disease Association recommends regular movement and physical activity as a way to maximize health and independence, so recreational and therapeutic programming options at our assisted living communities offer senior-friendly fitness and movement opportunities each day, like Tai Chi, boxing, Yoga, dance and strength training. All programs can be modified for varying levels of ability and cognition.
    • Hosting special presentations and speakers: SLR communities regularly host expert speakers and professionals to discuss topics relevant to seniors and their families, including Parkinsons disease.
    • Training for associates: Our staff goes through specialized training to help aid in the care of people with cognitive conditions, including Parkinsons.
    • Mediterranean-inspired dining program: The Mediterranean diet, which is rich in plant-based foods and those with anti-inflammatory properties, is associated with protection against Parkinsons disease, in addition to promoting general brain and whole body health. At our assisted living and memory care communities, our award-winning dining program is modeled after dietary patterns found in the Mediterranean region.

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