Sunday, July 21, 2024

Nonprofit Organizations For Parkinson’s Disease

*please Visit Our Exercise Page For A List Of Free Online Exercise Programs And Our Support Group Page For A List Of Virtual Support Group Meetings

Women and Parkinson’s disease

The Michigan Parkinson Foundation is dedicated to people living with Parkinson’s. We are an independent non-profit 501 c charitable corporation that was founded in 1983. We are funded primarily by private contributions, memorials and grants.

Guided by a volunteer Board of Directors and Professional Advisory Board, MPF staff and volunteers, along with partner organizations, provide services and resources to enhance the quality of life for people with Parkinson’s and their families throughout the state. You and the estimated 30,000 people in Michigan with Parkinson’s are not alone in your journey. We invite you to connect with us.

What Is Parkinson’s Disease

With assistance from a generous community of donors and volunteers, we are able to provide the following benefits for our region’s Parkinson’s community:

PARKINSONWISE® What is ParkinsonWISE®? The Parkinson Association of Northern California partnered with Kaiser Permanente Neuroscience to provide targeted wellness education for fitness and wellness professionals that have clients with Parkinson’s disease or those who want to work with this special group. To learn more about our ParkinsonWISE®trainings and to find ParkinsonWISE® certified trainers click the ParkinsonWise button.
Our newsletter, The Parkinson Path, is provided to over 3,500 recipients throughout Northern California. The quarterly publication includes pertinent information and updates on events, support groups, services, new technologies, and articles provided by local PD experts.
Drop a check in the mail PANC1024 Iron Point Rd #1046 Folsom CA 95630

Pro’s Virtual Art Show

Last years virtual art show was such a hit, we will do it again this year. Our wellness programs have included hobbies, gardening, singing, and creative writing. We know that creativity in all its expressions improves wellbeing. This program will feature visual arts.

Lets make it a special night and take a tour through our virtual art show highlighting local artists who are living with Parkinsons. These artists are gathering to share their work with us! Invite your friends, celebrate and visit with some artists in our PD community.

FRIDAY, December 10th, 4:00 5:30 PM

Also Check: Cleveland Clinic Parkinson’s Bicycle Study 2017

Support Our Nonprofit Organization

Voices For Parkinson’s is a nonprofit organization in Cincinnati, OH dedicated to serving persons/people with Parkinson’s disease and their loved ones. If you know someone diagnosed or living with this disorder, you may want to lead them to our organization. If you, on the other hand, would like to support us financially or through other means, do not hesitate to reach us through our email. Should you have further questions or clarifications, feel free to contact us today.

What Types Of Programs Do We Fund

Charities Archives

The Foundation funds programs that are impactful, sustainable, scalable and measurable. Programs may be new and existing grant-supported areas and/or pilot programs. All funded organizations and institutions must demonstrate a commitment to diversity, equity and inclusion.

The 2022 community grant cycle will focus on programs that:

  • Educate and deliver exercise specifically designed for people with Parkinsons
  • Reach the newly diagnosed
  • Address mental health and Parkinsons
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    What Is Parkinsons Diseases

    Parkinsons disease is a neurodegenerative disorder, more specifically a movement disorder, that affects the cells of the brain that control muscle movement. These cells, located deep in a section of the brain called the substantia nigra, produce an important neurotransmitter called dopamine.

    Dopamine is important because it is the chemical messenger used to send signals from the brain to the muscles to complete smooth, coordinated movements. When 80% of these dopamine-producing cells have died, symptoms of Parkinsons disease appear. The cause of death of these dopamine-producing cells is still unknown.

    A Dedicated Nonprofit Organization

    Persons diagnosed with Parkinson’s disease often encounter difficulties with voice, swallowing, and cognition abilities. Voices For Parkinson’s in Cincinnati, OH is a non-profit dedicated to spreading the word of available therapy approaches, connecting and advocating for the Parkinson’s community, and providing speech therapy focused on neurodegenerative diseases.

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    Parkinsons Pride: Helping The Lgbtqia Pd Community

    Social isolation is one of many significant challenges for people with Parkinsons disease who are also part of the lesbian, gay, bisexual, transgender, queer or questioning, intersex, and asexual community.

    Parkinsons Pride: Engaging the LGBTQIA Community, is a first-of-its-kind program funded by a 2021 Parkinsons Foundation community grant. The program aims to address the communitys unique needs while shaping a new narrative around the groups shared identities.

    The Parkinsons Foundation believes in health equity for all in the Parkinsons community, said Alyssa Boyle, administrative and community engagement coordinator at the Parkinsons Foundation. We are proud to provide funding through community grants like this one that strengthens support for LGBTQIA people with Parkinsons.

    Based at Parkinsons Foundation Center of Excellence Beth Israel Deaconess Medical Center in Boston, MA , Parkinsons Pride hopes to model effective care and support structures for LGBTQIA people in PD healthcare settings.

    This grant supports a bold and ambitious project that we hope will lead to not only strong community for participants, but will also inform better care for LGBTQIA people with Parkinsons across all of the Foundations Centers of Excellence, said Lissa Kapust, project lead and social worker in the Cognitive Neurology department of Beth Israel Deaconess Medical Center.

    Find a Parkinsons program near you at

    Learn About Our Nonprofit Organization

    Parkinson’s Disease & Medication – What’s New

    Our speech-language pathologists are dedicated to helping individuals who struggle with Parkinson’s disease. If you want to learn more about us, do not hesitate to contact us. We will be more than willing to assist you and answer any query you might have. We currently receive grant funding from Parkinson’s Foundation, as well as Parkinson Support and Wellness for the 2021 reporting period.

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    Nonprofit Helping People Knock Parkinsons Disease Out

    LAKEWOOD, Ohio â Deb Davidson is ready to fight the biggest battle of her life. Her main opponent is Parkinsonâs disease. Doctors diagnosed her with it in April 2019.

    What You Need To Know

    • Organizations are spreading awareness about the disease and the importance of exercise
    • The nonprofit Rock-It-Out is a science-based boxing-inspired fitness program
    • Itâs improving the ability of people with PD to live independent lives
    • Studies found exercise may be the best hope for delaying the disease

    âI felt awful and frightened,â said Davidson, a client of Rock-It-Out. âIt’s a disease that robs you slowly.â

    Parkinson’s disease is a neurological disorder that has no cure. Symptoms of Parkinson’s disease are as broad and as colorful as a rainbow. Tremors, stiffness, gait and balance problems, speech and swallowing problems, and loss of cognitive function are just some of the symptoms that people with Parkinsonâs disease can experience.

    âIt affects our memory, our speech, our balance, causes depression,â Davidson said. âWe all progress differently. It manifests itself in so many different ways.â

    Parkinson’s Organizations And Foundations

    • Michael J. Fox Foundation – The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today.
    • Parkinsons Foundation Greater Texas Chapter – Serves Texas, Oklahoma and Arkansas. Follow this page for info on Moving Day walks, educational events, inspirational stories from your community, ways to get involved, and more!

    PD WISEPD WISEworld-wide

    Also Check: Pfnca Wellness Programs

    Dysphagia Speech Voice And Cognitive Difficulties

    The staff at Voices For Parkinson’s in Cincinnati, OH, are passionate about helping people with Parkinson’s disease. People with neurodegenerative diseases can experience dysphagia, cognitive, and voice impairments. Our organization offers a whole-person approach to Parkinson’s disease through the SPEAK OUT!® and The LOUD Crowd® programs. We also provide dysphagia treatment and cognitive services using the Brief Cognitive Assessment Tool approach. Conveniently locate within Alpha Neuro Fitness!

    Parkinsons Movement Disorder And Alliance

    Parkinsons Logo RGB

    Key Specs

    • Membership fee: Free
    • Structure:In-person support groups, virtual Zoom support groups, chat forums/message boards
    • Details: Offers both in-person and virtual support groups, educational videos and resources, and support is available for care partners
    • Things to do: A survey needs to be completed first before you can participate in the online community

    The Parkinsons Movement Disorder and Alliance is a nonprofit organization that focuses on characteristics like empathy, creativity, resiliency, and shared learning.

    It also has a wealth of support and educational services. Aside from online programming and Zoom support groups, this organization also offers various in-person support groups located throughout the country.

    Additionally, the organization features numerous educational programs like “Lunch with Docs,” in which individuals can meet with a movement disorder specialist virtually over lunch from the comfort of their own home.

    There are free workshops across the country called In Sync for supporting and teaching people interested in developing their skills as a support group leader.

    There, people can learn skills and build confidence in designing and leading their own support group for Parkinsons disease or other movement disorders. Leadership experts and healthcare professionals also provide guidance through informational presentations.

    Recommended Reading: Voice Amplifiers For Parkinson’s

    Alliance Of Independent Regional Parkinson Organizations

    Houston Area Parkinson Society is pleased to be a member of the Alliance of Independent Regional Parkinson Organizations , a consortium formed with the shared goals of finding a cure for Parkinsons and supporting those who live with the disease. AIRPO encourages collaboration, leverages organizational strengths and maximizes efficiency within its member organizations, which include Parkinson Association of the Rockies, Parkinson Foundation of Western Pennsylvania, Parkinson Foundation of Oklahoma, Houston Area Parkinson Society, Michigan Parkinson Foundation, Southwest Parkinson Society, Northwest Parkinsons Foundation, Parkinson Association of the Carolinas, Neuro Challenge Foundation for Parkinsons, Parkinsons Association of San Diego, Parkinsons Association of Northern California, Parkinson Association of Alabama and Dallas Area Parkinson Society.

    The creation of AIRPO formalized a collaboration that began in 2009 between the Parkinson Foundation and several independent regional nonprofit organizations, who have now become AIRPOs founding members. This partnership has allowed AIRPO to grow significantly over the years and in 2021, after many years of support from the Parkinsons Foundation, AIRPO now functions as a stand-alone organization.

    Society For Progressive Supranuclear Palsy

    Website: Phone: 1-800-457-4777

    The Society for Progressive Supranuclear Palsy, is a 5013 organization dedicated to increasing awareness of progressive supranuclear palsy and corticobasal degeneration, advancing research toward a cure, educating health professionals, and providing support, education and hope for persons with PSP and CBD and their families.

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    Foundation For Alternative And Integrative Medicine

    Illustration by Messer Woland, Wikipedia / CC BY-SA 3.0

    The Foundation for Alternative and Integrative Medicine is doing a fundraising project along with the World Research Foundation. As you know, since FAIM has the goal of offering unbiased educational information, we do not market or promote products.

    FAIM has collaborated with the World Research Foundation to make a plethora of information available to our readers and in so doing you will be supporting both non-profit organizations. Through a special arrangement in this fundraising effort, half of the proceeds from the packets will come to FAIM.

    Here’s one example:

    Parkinson Society British Columbia

    Patrick Welch – Understanding Parkinsons Disease and Mental Health in the Veteran Community

    Address: Contact: Website:

    Our Mission

    Parkinson Society British Columbia is the voice of British Columbians living with Parkinsons. Our purpose is to ease the burden and find a cure for Parkinsons disease through advocacy, education, research and support services.

    About Us

    Established in 1969, Parkinson Society British Columbia, governed by a voluntary Board of Directors, is supported entirely by donations from individuals, members, corporations, foundations and the dedicated efforts of volunteers.

    Every person touched by Parkinsons deserves to know that they are not alone in their journey. We are here for you. Our friendly and knowledgeable staff is committed to offering support, sharing reliable information and raising funds for programs and research.

    We are part of a strong community united in our dedication to improve the lives of those affected by Parkinsons.

    You are not alone. We are here to help.

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    Local Resources Local Support Here For You

    Parkinsons Resources of Oregon is a donor supported non-profit with the sole mission of advancing the quality of life for people with Parkinsons, their families and caregivers. With three locations, hundreds of volunteers and dedicated leadership, PRO provides direct care and support to thousands of families. Working to address issues faced by Parkinsons patients and their families, we can significantly improve the quality of life for all touched by this disease

    Ask Questions And Share Your Knowledge Of Parkinsons Disease In Our Forums

    8. Partners in Parkinsons has a program where you can be connected to an advocate who will listen, offer advice and support to patients and caregivers at no cost. This is just one of the services you can find through Partners in Parkinsons.

    9. has a support group for caregivers, family and friends of those with Parkinsons disease. No subject is off-limits in this forum.

    10. The National Parkinson Foundation has a site specifically geared to caregivers. They help carers navigate the emotional, financial, and physical challenges they may face caring for someone with Parkinsons.

    Having resources that help keep you informed, and offer support and encouragement to patients and their loved ones is so important. These are just 10 of the hundreds of organizations out there that are available to you. You can search online or visit your local library for more.

    MORE: Eleven facts about Parkinsons disease you may not know.

    Parkinsons News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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    Middle Tennessee Support Groups

    Joining a Parkinsons Disease support group can be a rewarding and valuable resource. Relationships with other Parkinsons patients and Care Partners in your community can provide a helpful link to advice, shared experiences and activities. They can be informative and inspiring, and often alleviate the feeling of isolation that can make life with PD more difficult. Check out our testimonials to learn more.

    Parkinsons Foundation Named As 2020 Best Nonprofits To Work For By The Nonprofit Times

    Pin on The Michigan Parkinson Foundation

    Member for

    NEW YORK & MIAMI April 6, 2020 The Parkinsons Foundation has been recognized as number 33 in the top 50 nonprofits to work for by The NonProfit Times in the publications 2020 Best Nonprofits to Work For list.

    We are honored to be selected as one of best nonprofits to work for by The Nonprofit Times, said John L. Lehr, President and Chief Executive Officer of the Parkinsons Foundation. This recognition showcases our commitment to our core values, including our dedication to supporting the entire Parkinsons community by giving them the tools they need to live better with Parkinsons disease.

    This recognition aligns with the Foundations overarching values including teamwork, collaboration, integrity, positivity, dedication and responsiveness. The Parkinsons Foundation earned high marks for workplace policies, practices, philosophy, systems and demographics and overall employee experience. In 2019, the Parkinsons Foundation also received a 4-star rating from Charity Navigator, a Platinum Seal of Transparency from GuideStar and is a Better Business Bureau accredited charity.

    The shared passion for our mission plus a culture that is transparent and collaborative has made my experience working here incredibly valuable, said Jackie Gannon, Senior Projects Manager. It is an absolute privilege to work at the Parkinsons Foundation as a collective team working to end Parkinsons disease.

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    Mapping The Future Of Parkinson’s Disease

    PD GENEration: Mapping the Future of Parkinsons Disease is a Parkinsons Foundation initiative that offers genetic testing and genetic counseling at no cost for people with Parkinsons disease . When you participate, you can help scientists in their journey to advance understanding of PD, leading to new, more effective PD therapies.

    Dailystrength Parkinsons Disease Support Group

    Key Specs

    • Details: Easy-to-use interface, small and intimate support group, and provides access to doctors
    • Things to consider: It’s not a very active group

    The DailyStrength Parkinsons Disease Support Group is a free and welcoming online support community with more than 400 members and 3,000 posts.

    The mission of the group is centered around empowering and inspiring each other to overcome PD-related and life challenges.

    Overall, the DailyStrength website is easy to navigate, and registration is straightforward and quick. Posts are informational, practical, and thoughtful. This is, perhaps, a good place to start for people looking for a smaller, more intimate online support group that is not overwhelming or associated with a national organization.

    Even though the site is not moderated, to keep the support group safe and positive, DailyStrength has a set of guidelines that the members are asked to follow.

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    Serving People With Parkinson’s Disease

    Motor Speech problems are common in people with Parkinson’s disease. However, only approximately 4% of people diagnosed with this disorder receive speech-language pathology services. Our speech-language pathologists have many years of experience in providing treatment for those with neurodegenerative diseases.

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