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Parkinson Foundation Of The National Capital Area

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Parkinson Foundation of the National Capital Area

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Openness to New Awardees

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Category Insights

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Form 990s

What are Form 990s?

Form 990 is a US IRS form that provides the public with financial information about nonprofits, including charitable foundations. It allows the IRS and the public to evaluate an organization and is filed annually.

How should I use Form 990s?

Form 990s provide critical insight to know if a foundation is a good match for you or your organization. Using Form 990s, Instrumentl shows you key information about a foundation’s historical giving such as their past grantees, average grant amounts, giving frequency, location preferences, and current board members.

Suffering From Manual Processes

Faced with mounting pressure to transform the small nonprofit into a fully sustainable organization, the team needed to scale the program without adding costly resources. Automated efficiencies and donorship opportunities were required to generate net new revenue. Moreover, Jared and team needed to quantify the direct impact of the program on the Parkinsons community to prove the nonprofit’s viability.

PFNCA initially suffered from a lack of automated processes. When I arrived at the foundation six years ago, we were literally taking hand-written brochures to register attendees, recalls Jared. Given the elderly demographic of event attendees, the staff had to take special care to parse out key data. Jared notes, Keep in mind that Parkinsons is a disease that mainly impacts senior citizens. For many people, it presents where they may have tremors. He adds that the PFNCA staff would spend hours transcribing the information into an Excel and send confirmations by mail or email. Emails would bounce back because we couldnt read the handwriting, we would make errors by inverting numbers for the payments, the phones were ringing all the time…it was incredibly labor intensive Jared laments.

Fund Raising And/or Fund Distribution

  • Parkinson Foundation of the National Capital Area …
  • Mission:To improve the quality of the life for people living with Parkinson disease.

    Parkinson Foundation of the National Capital Area Inc. is a 501 organization, with an IRS ruling year of 2001, and donations are tax-deductible.

    Encompass Rating System by Charity Navigator

    Overall Score

    This charity’s score is a passing score.This overall score is calculated entirely from a single beacon score: 100% Finance & Accountability

    Learn about the Encompass Rating System: Overview | FAQ | Release Notes

    This organization is potentially eligible for a Charity Navigator Star Rating. Vote Now to request to have our analyst team rate Parkinson Foundation of the National Capital Area Inc. for a Star Rating. The organization currently has 4 votes.

    Finance & Accountability

    This score provides an assessment of a nonprofit’s financial health and its commitment to governance practices and policies.

    Finance & Accountability Score

    Also Check: What Diseases Are Similar To Parkinson’s

    Education And Support For Parkinsons Patients And Care Partners

    Our members, committee members, Board of Directors and staff are deeply involved with the local Parkinsons community and invite you to tap into the education and support offered by our group. Such opportunities include:

    • An extensive network of caregiver and patient support groups
    • Educational materials, symposia, and informational meetings
    • Weekly therapeutic exercise and dance programs in Maryland, Washington, DC, and Virginia
    • A quarterly newsletter featuring information about Parkinsons treatments, coping with Parkinsons disease, and promising new research advances

    PFNCA is an independently incorporated nonprofit organization. All contributions received are tax deductible under Section 501 of the Internal Revenue Code.

    Improving Life For Those Affected By Parkinsons Disease

    About Parkinson

    The Parkinson Foundation of the National Capital Area is a local organization dedicated to improving the lives of those impacted by Parkinsons disease in the Washington, DC metropolitan area. In partnership and affiliation with the National Parkinson Foundation, we provide resources, information, and support to assist caregivers and patients in their quest to understand and cope with Parkinsons.

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    Free Online Parkinsons Exercise Classes

    March 12, 2020 by Jared

    Since attending in-person exercise classes might not be an option for those with Parkinsons right now, we wanted to offer some free online Parkinsons Exercise classes to help support the Parkinsons community.

    *PFNCA also offers live online exercise classes over Zoom. If you have not yet registered for our Online Wellness programs you can do so by .

    If you are interested in learning more about PFNCA Communication Clubs and their benefits then please .

    Warm UpExercise for Parkinsons with Instructor Kim Brooks .

    ExerciseVideosExercise for Parkinsons with Instructor Kim Brooks :

    *New** Tai Chi for Parkinsons with Instructor Kim Brooks:

    Exercise for Parkinsons with Instructor Kim Brooks : .

    Exercise for Parkinsons with Instructor Kim Brooks : .

    **New** #1 Exercise for Parkinsons with Instructor Kim Brooks:

    Exercise for Parkinsons with Instructor Maria Malca :

    #2 Exercise for Parkinsons with Instructor Maria Malca:

    **New** #3 Exercise for Parkinsons with Instructor Maria Malca:

    **New** Exercise for Parkinsons with Instructor Serene Webber:

    #1 Exercise for Parkinsons with Instructor Paul Reavis:

    #2 Exercise for Parkinsons with Instructor Paul Reavis:

    #3 Exercise for Parkinsons with Instructor Paul Reavis:

    Exercise for Parkinsons with Instructor Kim Johnson:

    #2 Exercise for Parkinsons with Instructor Kim Johnson:

    #3 Exercise for Parkinsons with Instructor Kim Johnson:

    **New** #4 Exercise for Parkinsons with Instructor Kim Johnson:


    Data Sources: Irs Forms 990

    The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. .

    Impact & Results

    This score estimates the actual impact a nonprofit has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.

    Impact & Results Score

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    Pfnca Programs In Washington Dc

    Mondays, Wednesdays & Fridays 11:00 a.m. 12:00 p.m.Chevy Chase Presbyterian Church

    Tuesdays 2:00 p.m. 2:45 p.m.In partnership with and held at:Sport & Health

    Wednesdays 12:00 p.m. 1:00 p.m.Georgetown University Hospital

    Wednesdays 12:15 p.m. 1:15 p.m.Chevy Chase Presbyterian Church

    Thursdays 12:00 p.m. 12:45 p.m. Chevy Chase House

    Wednesdays 12:00 p.m. 12:45 p.m.KenZen-Do5550 Friendship Blvd, Suite T-80Chevy Chase, Maryland 20815

    1 Chevy Chase Circle

    Helpful Tags:

    20008,20012, 20010, 20011, 20016, 20814, 20815, 20816, 20817, 20910

    A local, independent charitable organization, PFNCA provides program and services to improve the quality of life of people facing Parkinsons. Together, we will Walk Off Parkinsons.

    PFNCA is a registered 501.

    EIN: 54-2048636

    Of The National Capital Area

    PFNCA’s End of Year Giving Campaign is a time where we raise funds to help support our operations for the coming year.

    If you would like to support the programs the PFNCA offers please donate today.

    Answers To Questions About Parkinson’s Disease

    People Are Talking: Tee Off Against Parkinson’s Golf Classic

    The Parkinson Foundation of the National Capital Area is a leading organization in the country providing face to face programs and services to people impacted by Parkinsons Disease. Nearly 600 people attended PFNCAs annual Parkinsons Symposium in March, 2014 which included presentations from Movement Disorder Specialists and others.

    Below are some of the questions that those attending the Symposium asked and answers from some of the members of PFNCAs Medical Advisory Board. Please remember that this section of the website is not meant to provide personal medical advice. For that see your medical provider.

    Q: What is refractory tremor?

    Having a tremor which is refractory to medications is one of the indications for deep brain stimulation . For most symptoms of PD, we tell patients that they can expect as good benefit as they get from carbidopa/levodopa, but relatively free from the motor fluctuations, including dyskinesias. However, DBS does a very good job in treating tremors even that are refractory to medications. On the other hand, it is unfortunately possible to have tremor that is refractory to both medications and DBS, although that is unusual.

    Dr. Stephen Grill Parkinson’s and Movement Disorder Center of Maryland Chair, Medical Advisory Board, Parkinson Foundation of the National Capital AreaElkridge, MD

    Dr. Joseph Savitt

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    Business Master File Data

    Below are some key data points from the Exempt Organization IRS Business Master File for this organization. Learn more about the BMF on the IRS website


    Activity data not reported from the IRS

    Foundation Status:

    Organization that normally receives no more than one-third of its support from gross investment income and unrelated business income and at the same time more than one-third of its support from contributions, fees, and gross receipts related to exempt purposes. 509


    Independent – the organization is an independent organization or an independent auxiliary .

    Fostering Parkinson’s Community Impact

    PFNCA has vastly increased donorship and streamlined efficiencies to create a fully sustainable organizational model. As the CEO of a small nonprofit, Jared acknowledges there are many important constituencies he answers to. These include the board of directors, other foundations, corporations, and individual donors. Most importantly, he feels beholden to the Parkinsons community. Its really important that were building trust with those that were serving. By using Cvent, we have an incredible network behind us that gives us data, evaluation mechanisms, and the feedback infrastructure that we never had before, explains Jared. Cvent has allowed us to become experts in marketing, creating websites, communicating, and finding efficient ways to evaluate our program. All of these are tools any nonprofit can benefit from.

    In three years, PFNCA has seen a 37% increase in program registrations and a 47% increase in symposium revenue. They have also received over $10,000 in net new donations for their Parkinsons Pointers series, a free program that is only fifteen months old. Perhaps most impressively, they have doubled their revenue with a 100% increase over the last three years. With this data, were able to tell really powerful stories about how we serve the community in ways that are very tangible,” Jared insists.

    Also Check: What Age Is Parkinson’s Disease Diagnosed

    Creating Attendee Engagement And Evaluation

    The small nonprofit now accounts for every cost point to create valuable efficiencies. By eliminating the manual aspects of registration, the team has found untold additional hours to focus on scaling program offerings. Given the specific demographics of their program participants, they were initially apprehensive of attendee reactions. The response has been impressive. They really appreciate the ability to log on at any time of day and engage with us through our website, which essentially links to the Cvent platform. The use of Cvent for our wellness program has also added an incredible level of professionalism that we didnt have before, note Jared. Im constantly being told how amazed people are that we do so much with such a small staff, and in reality were doing all that work in huge part because of Cvent.

    Moreover, PFNCA leverages Cvent as a key tool in their end-to-end program lifecycle. Another benefit of using Cvent is that we have a very robust evaluation and survey capacity, notes Jared. So, understanding who is attending our program and how often essentially becomes a lead generation list for us for nonprofit fundraising purposes.

    Parkinson Foundation Of The National Capital Area

    Sarah Clarke Appointed to Parkinson Foundation of the ...

    increase in total event revenue

    increase in program revenue

    For more than 25 years, the Parkinson Foundation of the National Capital Area has provided programs and services to improve the quality of life for those facing Parkinsons disease. Operating events across more than twenty locations with a small staff, the organization manages key educational and wellness events for the Parkinsons community.

    When CEO Jared Cohen joined in 2013, the non-profit was struggling to stay afloat. When I arrived at PFNCA, I was immediately challenged with operating losses that the foundation had for years. The board of directors was really trying to understand, is our model of service even viable? Jared explains.

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    Salary Of Key Persons

    Presented here are up to five of this organization’s highest compensated employees. This compensation data includes salary, cash bonuses, and expense accounts and is displayed exactly how it is reported to the IRS. The amounts do not include nontaxable benefits, deferred compensation, or other amounts not reported on Form W-2. In some cases, these amounts may include compensation from related organizations. Read the IRS policies for compensation reporting

    American Parkinson Disease Association :

    There are no local chapters nearby with this national organization, but it is a wonderful resource if you are looking for more information on Parkinsons Disease and research.

    They have put out a Parkinsons Disease handbook and other free downloadable booklets you can find HERE.

    You can also find an assortment of webinars on various topics HERE.

    Read Also: What Can You Do To Prevent Parkinson’s Disease

    Pfncas Recently Diagnosed Support Group Currently Offered Via Zoom For Residents Of Dc Md & Va

    PFNCAs Recently Diagnosed Support Group, currently being offered over Zoom, for residents of DC, MD & VA, provides important information for people facing a new diagnosis of Parkinsons disease. The group meets for eight sessions and is co-led by PFNCAs Support Group Specialist Leon Paparella, MSW, CGP and Michelle Goldberg, LCSW-C. The program is ideal for people diagnosed in the last 18-24 months or for those diagnosed longer, but just now beginning to address their diagnosis. The group is intended for the PD patient their care partner, family member or friend may attend as well.

    The next Recently Diagnosed Support Group has not yet been scheduled.

    For more information or to be notified when the new cohort is announced, please contact AndyPeck-McClain at

    Mapping The Future Of Parkinson’s Disease

    Living with Parkinsons

    PD GENEration: Mapping the Future of Parkinsons Disease is a Parkinsons Foundation initiative that offers genetic testing and genetic counseling at no cost for people with Parkinsons disease . When you participate, you can help scientists in their journey to advance understanding of PD, leading to new, more effective PD therapies.

    Recommended Reading: Foods To Avoid With Parkinson’s Disease

    For Research: Past Remote And Flexible Jobs At Parkinson Foundation Of The National Capital Area

    We include these past jobs as a way for you to explore what kinds of remote and flexible jobs Parkinson Foundation of the National Capital Area – PFNCA has hired for in the past and might be likely to hire for again in the future.

    • 30+ days ago Hybrid Remote JobFull-Time Falls Church, VA Candidates need to be able to work in the City or State specified Provide assistance to Executive Director with coordinating, organizing and executing major events. Previous experience with event logistics is highly preferred. Requires outstanding communication and negotiation skills. Telecommute 3 days/week.

    Applied for This Job?

    Did you apply to this job If so, please click “Applied for Job” to save it to your “Application History” page. If not, click on “Did Not Apply” to return to the job post.

    Dont Face Parkinsons Alone

    ***With the recent outbreak of COVID-19 all In-Person wellness classes will be cancelled. While In-Person classes are cancelled we will be providing online Zoom wellness classes and free pre-recorded exercise classes that you can do from home.

    To view our online Zoom wellness classes

    To view our pre-recorded online exercise classes

    PFNCA programs are designed to provide direct benefit to those facing Parkinsons and to allow them to meet others also facing the disease. Programs focus on exercise, communication and education. Many program formats are offered. PFNCA programs are provided at no cost but an annual registration is required. There is a nominal annual administrative fee to cover attendance software that can be waived for financial hardship. To register or learn more, please click here or call 844-6510.

    PFNCA provides programs in various formats to help those facing Parkinsons live well with the disease. In addition to providing direct benefit, these programs build and foster community so no one faces Parkinsons alone. Please explore this section of our website to learn more about PFNCA program offerings. Please note that sometimes the program that is the closest to you may not be one that is most suited your interests/fitness level, etc.

    You can view our programs by type including: Exercise, Communications/Vocal Cord Strengthening and Education.

    You can also view our programs by location including: , Virginia and Washington, D.C.

    Recognizing Hard Work

    Read Also: What Are The Very First Signs Of Parkinson’s Disease

    Maximizing Return On Investment In The Nonprofit World

    Jared credits PFNCAs newfound use of event technology as a key component in creating a fully sustainable operational model. When we started with Cvent, we didnt know what to expect as a small foundation. We thought it was outside of our wheelhouse, and it was a big expense. Every year weve increased our work and products with Cvent, and we continue to do so in the future because Cvent is driving our growth, he explains. Last year, PFNCA even won honorable mention for a competitive award from The Center for Nonprofit Advancement in Washington, DC. In competing with large, multi-million dollar charities, Jared recalls that the awards committee said they were really challenged in evaluating us because they had never seen a small nonprofit operate as efficiently as we do.

    Jared believes that event technology is something every nonprofit can benefit from, regardless of scale. He explains, Cvent is an incredibly powerful tool for nonprofits. It more than pays for itself. Cvent allows you to expand and re-engineer how you serve the community. These are the pillars of any nonprofit that is going to be successful, no matter what your size is. Its all under one roof with Cvent.

    Understanding Parkinsons In Partnership With Parkinsons Foundation Of National Capital Area

    Understanding Parkinson

    More than a million people in the U.S. have Parkinsons. This presentation by The Kensington Reston and PFNCA highlights common symptoms of the disease and outline a course of action if you or a loved one are experiencing any of the symptoms.

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