Tuesday, March 5, 2024

Living With Parkinson’s Disease Video

Parkinson’s On The Move

Living with Parkinsons disease

Publisher: Parkinson’s On The Move

Cost: Free

Thirty-one archived workouts for those with Parkinson’s. Videos are sortable by level of difficulty, area of the body to focus on, and preferred position . Other pages on this website offer free recipes and articles about nutrition and PD.

Also available is the Parkinson’s On The Move Exercise Library. This collection of 58 short videos each focus on stretching or strengthening a specific part of the body.

Publisher: JCC Tampa Bay on the Cohn Campus

Cost: Free

Suzanne Chen leads 43-minutes of stretch and strengthening exercises for those with Parkinson’s. Equipment to follow along include an elastic band, light weights , a 8-9 inch soft ball , and a stable chair with no arms.

Publisher: JCC Greater Boston

Cost: Free

Eight YouTube exercise videos for those with Parkinson’s, including four focused on neuromuscular integration, two total body conditioning and one seated strength. Most videos are about 30 to 45 minutes.

Publisher: PD Warrior PTY LTD, Australia

Cost: Free

Similar to Rock Steady Boxing in the US, this Australian app is available from Google play or the App Store is designed for early stage Parkinson’s disease. It includes 10 PD Warrior core exercises for free with upgrades and additional bundles available via in app purchases to customize your workout. Each exercise is demonstrated by a physiotherapist.

Publisher Parkinson’s Foundation of the National Capital Area

Cost: Free

Publisher: Power For Parkinson’s

Cost: Free

Lets Keep Moving With Apda: Fitness

Lets Keep Moving With APDA: Movement & Occupational Therapy Hosted by Teresa Baker, PT, DPT, With Special Guest Maura OKeeffe, MA, OTR/L

Lets Keep Moving With APDA: Movement & Speech Hosted by Tim Nordahl, PT, DPT With Special Guest: Lisa Sommers

Lets Keep Moving: Movement & Nutrition with Tami DeAngelis and Rachel Reynolds

Lets Keep Moving With APDA: Evidence-Based Treatment to Improve Balance

Lets Keep Moving With APDA: Assessing balance with a Physical Therapist

Lets Keep Moving With APDA: The impact of PD on balance

Lets Keep Moving with APDA: Expert Panel Discussion on Exercise & Physical Activity in the New Normal

Lets Keep Moving Exercise Intensity: How Hard to Work and Why it Matters

Lets Keep Moving with APDA: Demystifying the Numbers: The Science Behind 10,000 Steps & 150 minutes

Lets Keep Moving with APDA: What Does the Science say About Walking & Parkinsons Disease?

Keep Moving with APDA: Setting up for Success at Home Creating an Exercise-Friendly Area

APDA Lets Keep Moving: Be Active at Home: Exercise tips for people with PD

APDA Lets Keep Moving: How to Stay Motivated for Physical Activity with Social Distancing

APDA Virtual Research Roundtable

Re+active Pt Videos For Home Exercising

Publisher: re+active PT

Cost: Free

re+active has posted to its YouTube channel a few exercise videos, including a seated re+move class , Parkinson’s exercise class , and pole walking .

Publisher: Rock Steady Boxing Indianapolis Headquarters

Cost: Free

This is a series of 66 short videos. There are stretches, warm ups, workouts, fitness challenges, tai chi, and tips & tricks videos. The idea is by the time you’ve followed along with one video in each category, you’ve done a whole body workout.

Publisher: APDA Greater St. Louis Chapter

Cost: Free

Three short videos include quick chair exercises, exercises for stronger legs and glutes, and exercises for better balance.

Publisher: Patrick LoSasso

Cost: $14.95/month or $135/year after a free one week trial

A growing library of workouts for those with Parkinson’s, including: 5-minute workouts, Undefeated Boxing, Rise & Shine morning blast, exercise ball, Brain & Body Bar, and Parkinsons’ workout with towel and ball.

Publisher: U-Turn Parkinson’s

Cost: Free

This collection of pre-recorded exercise videos includes three 20-minute warm up/stretching videos, four 20-minute seated workouts, one 20-minute upper body boxing video, a 9 minute boxing basics video, two one-hour Rock Steady Boxing Winnipeg workouts, two advanced RSBW workouts, and two yoga Parkinson’s workouts.

Publisher: Neuro Challenge Foundation For Parkinson’s

Cost: Free

Recommended Reading: Is There Any Cure For Parkinson’s Disease

I Love To Exercise So Its Easy For Me To Go To Class

Cathy Orr, area development manager at Parkinsons UK said: It is well understood that if people can keep active it can significantly improve functional capacity, fitness and quality of life as well as reducing the risk of ill health, deterioration of the condition, risk of falling and even acute hospital admissions whilst also helping to manage symptoms.

Research has shown that long-term fitness routines have improved the coordination and motor capabilities of those with Parkinsons disease as well as improved their mental health.

Pam from Inverness, who has been taking part in classes said: Without exercise, I dont know where Id be because I get very, very stiff and I dont like sitting down very much I like doing things and Im on the go all the time and I think that helps.

I love to exercise, so its easy for me to go to class. There is a variety of things they do and I enjoy the company and being with the others in the group.

Apart from the social side of things, its always good to meet up with other people with Parkinsons. You find out all sorts of things when you are talking to people but online is also good because you dont need to go in your car and go anywhere.

To find out where your nearest class or how to access online classes

Brian Grant Foundation Exercise Videos

Living With Parkinsons Disease Stock Photo

Publisher: Brian Grant Foundation

Cost: Free

Cost: Free for 9 videos $29/month or $290/year for online streaming

The nine free classes include boxing fundamentals, HIIT , chair fit, tai chi, core, yoga, stretching/mobility. The free classes are 13 to 30 minutes. Classes are led by a physical therapist with Parkinsons specific certifications.

Paid classes incorporate PWR! Moves, cognitive dual task training, balance training, intensity training, and flexibility. For subscribers, new 20-25 minute videos are released weekly.

Publisher: Rachelle Smith-Stallman, Albany, NY

Cost: Free

Dance exercise class videos on YouTube. Each is fewer than 10 minutes long. Nearly 30 videos as of October 28, 2020.

Rachelle was featured at the Davis Phinney Foundation Victory Summit Albany in October, 2020. Watch an interview with Rachelle here, and Rachelle’s 25 minute Dance Beyond Parkinson’s Summit presentation here.

Publisher: Bowen McCauley Dance, Washington, DC

Cost: Free

Six seated dance exercise class videos on YouTube. Each is about one hour long. All are with the same instructor.

Publisher: Mark Morris Dance Group, New York

Cost: Free for 16 videos $50 for 100+ videos

Sixteen archived exercise classes are available for free viewing. Classes are designed to increase coordination, balance, flexibility, and strength through music and movement from a broad range of dance styles. 100+ archived classes and additional benefits are available for a $50 membership.

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Dr Gilbert Hosts: Q& a Sessions With Experts

Dr. Gilbert Hosts: Complementary Therapies for Parkinsons Disease with Dr. Britt Stone

Dr. Gilbert Hosts: Parkinsons disease research at the NIH with Dr. Walter Koroshetz

Dr. Gilbert Hosts: Parkinsons Disease and the Environment with Dr. Carlie Tanner

Dr. Gilbert Hosts: Hacks, Tricks & Medication Tweaks to Improve Your Movement & Your Day with Dr. Joseph Friedman

Dr. Gilbert Hosts: Genetics and PD with Dr. Clemens Scherzer MD

Dr. Gilbert Hosts: Cognition & Parkinsons disease with Kathleen Poston MD

Dr Gilbert Hosts: Dance for PD® with David Leventhal

Dr. Gilbert Hosts: Parkinsons Disease and the African American Community with Dr. Chantale Branson

Dr. Gilbert Hosts: Advances in DBS With Dr. Alon Mogilner

Dr. Gilbert Hosts: Being a PD Caregiver with Lianna Marie

Dr. Gilbert Hosts: Gene Therapy and Parkinsons Disease with Dr. Tim Greenamyre

Dr. Gilbert Hosts: Intentional Optimism with Bill Rasmussen

Dr Gilbert Hosts Stems Cells & Parkinsons Disease with Dr Evan Snyder

Dr. Gilbert Hosts: Medication Management & COVID 19 with Cathi Thomas, MS, RN

Dr. Gilbert Hosts: DBS & COVID-19 with Dr. Jill Ostrem

Dr. Gilbert Hosts: COVID-19 & the Underserved with Dr. Natalie Diaz and Rosa Peña, MSW

Dr Gilbert Hosts: Introduction to Telemedicine with Dr Jason Aldred

Dr. Gilbert Hosts: Advanced PD & COVID-19 with Dr. Pravin Khemani

APDA Q& A on COVID-19 with Dr. Rebecca Gilbert & Leslie A. Chambers

Lets Keep Moving With APDA: Fitness-Focused Advice and Q& A

Parkinson’s Disease And Diet

No single diet can treat Parkinson’s, but a healthy, balanced diet can improve well-being and ease certain non-motor symptoms. What you eat also may affect how well your medication works. This guide offers tips on what to include in your diet for general wellness, non-motor symptoms and medication benefit.

Also Check: What Is The Difference Between Parkinson’s And Alzheimer’s

Learning How To Manage Daily Living With Parkinsons

Once you are diagnosed with PD, your focus should be on improving your symptoms and maintaining an active and positive lifestyle.

Although there is currently no cure for PD, it is possible to successfully manage symptoms through healthy choices, medications, and, in select cases, medical procedures.

If youre new to Parkinsons disease and would like a good overview to help you better understand the disease, please view our Parkinsons Disease: The Essentials presentation. Its a great place to get started with reliable and concise information.

Living With Parkinsons Disease

Living with Parkinsons disease

Depending on severity, life can look very different for a person coping with Parkinsons Disease. As a loved one, your top priority will be their comfort, peace of mind and safety. Dr. Shprecher offered some advice, regardless of the diseases progression. Besides movement issues Parkinsons Disease can cause a wide variety of symptoms including drooling, constipation, low blood pressure when standing up, voice problems, depression, anxiety, sleep problems, hallucinations and dementia. Therefore, regular visits with a neurologist experienced with Parkinsons are important to make sure the diagnosis is on target, and the symptoms are monitored and addressed. Because changes in your other medications can affect your Parkinsons symptoms, you should remind each member of your healthcare team to send a copy of your clinic note after every appointment.

Dr. Shprecher also added that maintaining a healthy diet and getting regular exercise can help improve quality of life. Physical and speech therapists are welcome additions to any caregiving team.

Recommended Reading: Parkinson’s Life Center Of Southern New Jersey

Coping With The Side Effects Of Medications

Levodopa-carbidopa therapy is the most effective treatment for alleviating the motor symptoms of PD, however, long-term treatment with levodopa may cause dyskinesia . Dyskinesia can greatly impact a persons quality of life, and some people find it very disturbing. While there are currently no treatments for dyskinesia, it is an ongoing area of research. For those people who experience dyskinesia, medications may be adjusted or deep brain stimulation may be an option.2,3

Some medications used to treat PD can cause impulse control disorders, behavioral disorders in which the person acts out repetitively, excessively, and compulsively in ways that interfere with major areas of life functioning. The most common impulse control disorders seen in people with PD are excessive shopping, unusual or increased sexual behavior, compulsive gambling, and compulsive eating. Identification and treatment of these behaviors is critical as they can have devastating effects on the patients and caregivers lives.1

Practical Tips For Better Living With Parkinsons Disease

$30.00

Did you know that you can actively impact the course of Parkinsons disease ? What you do and what you know can positively affect the quality of life for you and the person living with PD.

Join neurologist Dean Sutherland, MD, Ph.D., and occupational therapist Teepa Snow, MS, OTR/L, FAOTA, for two engaging andinformation-packed workshops.

This comprehensive Parkinsons disease toolkit will leave you informed, inspired, and ready to practice your new skills for a better life with PD.

Workshop #1 with Dr. Sutherland:

  • Who gets Parkinsons disease, and how is it diagnosed?
  • What are the signs and symptoms?
  • Medications and treatments that can offer relief
  • How exercise and support groups can help

Workshop #2 with Teepa Snow:

  • After the diagnosis: What you choose to do matters!
  • What helps, what hurts and what gets in the way?
  • Using rhythm and movement to overcome freezing and rigidity
  • Using visual and physical cues to guide and model care routines

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Exercise And Healthy Eating

Regular exercise is particularly important in helping relieve muscle stiffness, improving your mood and relieving stress.

There are many activities you can do to help keep yourself fit, ranging from more active sports like tennis and cycling, to less strenuous activities such as walking, gardening and yoga.

You should also try to eat a balanced diet containing all the food groups to give your body the nutrition it needs to stay healthy.

Moving For Better Balance

Living With Parkinsons Disease Stock Photo

Publisher: Jamestown New York YMCA, May 1, 2013

Cost: Free

These two instructional videos — part I is 10 minutes and part II is 5 minutes — are taught by a Jamestown New York YMCA staff member using the “Moving for Better Balance” approach, an evidence-based fall prevention program.

Publisher: Michael Weiss

Cost: Free

This 30-minute video is a personal account by Michael Weiss, a person with Parkinson’s. In it he shares stretches, breathing, and physical exercises he has compiled for himself. Exercise demonstration begins 8-minutes into the video and include toe lifts, leg swing, leg lift, knee circles, hip circles, squats, arm stretches, arm twists, shoulder stretches, chair push-ups, bicycle legs, toe touches, chopping wood, conducting, dancing, and facial exercises.

Recommended Reading: Are There Service Dogs For Parkinson’s Patients

Signs Of Parkinsons Disease

In 1817, Dr. James Parkinson published An Essay on the Shaking Palsy describing non-motor, as well as, motor symptoms of the illness that bears his name. Parkinsons is not just a movement disorder, explained Dr. Shprecher. Constipation, impaired sense of smell, and dream enactment can occur years before motor symptoms of Parkinsons. The latter, caused by a condition called REM sleep behavior disorder, is a very strong risk factor for both Parkinsons and dementia . This has prompted us to join a consortium of centers studying REM sleep behavior disorder.

West Coast Forum Anaheim Ca

Presentation Exercise in Parkinsons Disease: Road to Wellness

Teresa Ellis, PT, PhD, NCS, Boston University, Boston, MA

Support to video tape and archive the West Coast Forum educational videos generously provided by Sunovion

Presentation Movement Disorder Program

Echo Tan, MD, Cedars-Sinai, Los Angeles, CA

Support to video tape and archive the West Coast Forum educational videos generously provided by Sunovion

Presentation Advances in Parkinsons Disease

Natalie Diaz, MD, Harbor UCLA Medical Center, West Carson, CA

Support to video tape and archive the West Coast Forum educational videos generously provided by Sunovion

Presentation Parkinsons Disease: the Changing Landscape

Ian Bledsoe, MD, University of California, San Francisco, CA

Support to video tape and archive the West Coast Forum educational videos generously provided by Sunovion

Presentation: Genes and the Environment

Beate Ritz, MD, PhD, David Geffen School of Medicine at UCLA, Los Angeles, CA

Support to video tape and archive the West Coast Forum educational videos generously provided by Sunovion

Houston Area Parkinson Society Videos

Also Check: Prostate Cancer And Parkinson’s Disease

Deep Brain Stimulation And Parkinsons

This resource educates patients and care partners about deep brain stimulation surgery as a treatment option to help manage symptoms, provides practical tips for thinking about, undergoing and living with DBS, includes perspectives and voices from the patient and family community and shares the latest research and DBS devices available.

Want To Learn More About The Latest Research In Parkinsons Disease Ask Your Questions In Our Research Forum

Living With Parkinson’s Disease

While each patient has a unique case and mix of symptoms, all patients have in common the loss of dopamine cells, which coordinate movement and enable feelings of motivation and reward, the video explains.

While some researchers think Parkinsons is likely caused by a combination of genetics and environmental factors, no straight line can be drawn between cause and effect. Still, according to the segment, genetics research offers the best opportunity to discover paths to treatment.

The video also discusses the need for individualized treatment regimens, and encourages patients to use the Foundations 360 Toolkit, which offers advice on living with Parkinsons.

Another video briefly unspools the complexity of drug development. For example, the video states that it takes more than $1 billion and up to 30 years to bring to market a single central nervous system drug. Even after a series of research steps culminating in clinical trials, only one in 12 prospective drugs is ultimately proven safe and beneficial to patients. The video also discusses the foundations research investments and priorities.

The segment on genetics centers around the foundations belief that advances arising from genetics research offer some of the best chances of developing therapies to help Parkinsons patients. It also includes stories from patients who have undergone genetic testing.

Read Also: Does Parkinson’s Get Worse

Driving And Parkinsons Disease

The ability to drive safely can be impaired by PD, as the disease has multiple effects on motor, cognitive , and visual functioning. However, giving up driving can be difficult, as driving is connected to an individuals sense of independence, personal control and self-reliance. Its important to evaluate how the symptoms of PD might be impairing the ability to drive. Drivers can also get an on-road assessment of their abilities at their local Department of Motor Vehicles.

What Is Parkinsons Disease

Parkinsons is a neurological illness caused by degeneration or breaking down of cells in the nervous system, explained Dr. Shprecher. The nature of Parkinsons Disease is progressive, meaning that it gets worse over time. To comprehend the natural progression of the disease, we should understand its five stages, as explained by the Parkinsons Foundation.

Stage One

Individuals experience mild symptoms that generally do not interfere with daily activities. Tremor and other movement symptoms occur on one side of the body only. They may also experience changes in posture, walking and facial expressions.

Stage Two

Symptoms worsen, including tremor, rigidity and other movement symptoms on both sides of the body. The person is still able to live alone, but daily tasks are more difficult and lengthier.

Stage Three

This is considered mid-stage. Individuals experience loss of balance and slowness of movements. While still fully independent, these symptoms significantly impair activities such as dressing and eating. Falls are also more common by stage three.

Stage Four

Symptoms are severe and limiting. Individuals may stand without help, but movement likely requires a walker. People in stage four require help with daily activities and are unable to live alone.

Stage Five

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