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American Parkinson’s Disease Association

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  • American Parkinson Disease

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Find Parkinsons Resources Near You

The American Parkinson Disease Association works tirelessly every day to support and empower anyone who is impacted by Parkinsons disease . Our nationwide network provides information and referral, education and support programs, health and wellness activities, and other events to facilitate a better quality of life for the PD community, while also funding vital research. It is this grassroots structure that distinguishes APDA from other organizations serving people with PD. We are here to help you and your loved ones every step of the way.

Working To Find Cures

The Next Generation Research Grants program funds and supports innovative investigations by the best and brightest early-career researchers working today to find the cures of tomorrow. We support their research across a broad spectrum of the brain and nervous system as they tackle things like identifying and treating ALS, developing treatments for Parkinsons disease, predicting outcomes for TBI patients, and more.

BRAIN DISEASES AND DISORDERS

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American Parkinson’s Disease Association

  • Address135 Parkinson Avenue
  • HoursPlease call or visit website for hours of operation.
  • Fees:Please contact provider for fee information.
  • Application Process:Call or visit website for additional information.
  • Eligibility Requirements:Please call service provider or visit website to learn more about eligibility requirements.
  • Payment/Insurance Accepted:Please contact provider for accepted forms of payment.
  • ADA Access:Please contact facility for accessibility information.

Treating Parkinsons With Complementary Medicine

The American Parkinson Disease Association Awards $1.1 million in ...

Complementary medicine incorporates many different practices that can be used alongside conventional medicine to try to ease PD symptoms. There is typically not as much rigorous data to support the use of complementary medicine techniques, as compared to conventional medicine, but many patients find them helpful. These include yoga and massage.

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Resources For Specialized Populations

For Care Partners

When one person in a couple or family is affected by Parkinsons disease, the other family members live with it as well. To keep your care partnering relationship healthy and balanced, its important that the care partner finds time to take a break from caregiver duties, has some outside interests, and has others they can turn to for support and resource information.

Young Onset Parkinsons Disease

For those who have been diagnosed under the age of 50, APDA provides resources and information to help younger people with Parkinsons Disease live active and productive lives. Our Early/Young Onset section offers a wide range of resource links and discusses issues that are particularly relevant to people with young onset Parkinsons disease, such as ongoing employment, parenting, and planning for the near and distant future.

Veterans with PD

In 2017, APDA published Helping Those Who Serve: Parkinsons Disease Information for Veterans Community. This manual offers general information about Parkinsons diagnosis, symptoms and treatment, tips for coping with disease progression and support for care partners. It also provides step by step directions on how to access the Veterans Affairs system and receive care from the VA PADRECC and consortium centers across the country. The manual is accessible on the page linked below, and in print.

Recursos En Español for Spanish Speakers

Icipating In Clinical Trials

Clinical trials and their participants have revolutionized Parkinsons treatment, and have changed the lives dramatically of those affected. They have helped make available many new treatments in addition to improving the delivery methods of medications and new deep brain stimulation techniques.

Clinical trials are essential to the future of Parkinsons research, and APDA is committed to this vital effort.

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We Help Patients Caregivers & Families

Read more about Parkinson’s disease on our website, or call our toll-free Resource line at 903-7275.

Educational Events

We host regular events to share the latest news related to Parkinson’s disease and what to expect, directly from local neurologists and other experts. Learn More

Movement Therapy

Exercise is a vital component to slowing the progression of Parkinson’s disease, so we offer a few different programs to encourage movement. Learn More

Resource Library

Our resource library provides information on the latest news related to Parkinson’s disease which can be accessed online or toll free at 903-7275. Learn More

American Parkinson Disease Association

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The American Parkinson Disease Association is a grassroots advocacy organization for sufferers of Parkinson’s disease and their families.

Founded in 1961, the APDA aims to “ease the burden” for Americans with Parkinson’s disease, as well as for their families, through nationwide Information and Referral Centers and support groups. The APDA also pursues efforts to find a cure for Parkinson’s, as they fund centers for advanced research and award grants to researchers as means to fund them.

Since its founding, the APDA has reportedly raised and invested more than $87 million to fund research, to provide patient services and education, and to elevate public awareness.

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The Importance Of Rehabilitation In Pd

Exercise and physical therapy are known to improve motor and non-motor symptoms of PD, which is highlighted by several meta-analyses underline the importance and positive effects of physiotherapy on motor symptoms. Significant improvements of gait, functional mobility, balance, motor symptoms, increased muscle strength, and reduced falls in PD patients who received physical therapy in short- and long-term follow-ups ranging from 1 to 12 months have been shown,,,. Another meta-analysis, covering 20 randomized controlled trials, showed significant improvement of non-motor symptoms in PD including neurocognitive manifestations, mood disorders, sleep disorders, and fatigue by physical therapy. Trials investigating alternative sports, such as Tai Chi and dancing, revealed similar benefits on motor- and non-motor symptoms of PD,,,.

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Recommendations For Rehabilitation Measures During The Covid

The Centers for Disease Control and Prevention and the Centers for Medicare and Medicaid Services recommend to curb the spreading of COVID-19 and reschedule elective procedures and treatments. Healthcare professionals were asked to resort to telemedicine for all other, either time-sensitive or functionally disabling, indications. This led to a quick implementation of telemedicine to replace routine or emergency clinical visits with remote check-ups via telephone or internet to extend care into the patients homes. While the chronic movement restrictions caused by PD do not meet the criteria for time-sensitive indications , they qualify as functionally disabling.

Continuing with adapted physical activity and rehabilitation is therefore strongly recommended with either on-site measures, including reduction of patient count, prohibition of escorts, symptoms screening, physical distancing, and personal protective equipment, or via the increasing opportunity of telemedicine and telerehabilitation,,,,,. Ideally, a regime of moderate-intensity exercise at home 57 days per week is recommended, wherever possible outside,,.

Telerehabilitation

Table 1 Overview of telerehabilitation methods.

Virtual reality

Apps

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Parkinsons Uk Opens Initiative To Bring Racial Groups Into Research

The handbook is a reference guide for new patients living with Parkinsons or anyone who wants to learn more about the progressive neurodegenerative disorder. The goal was to try to overcome language barriers that can make it challenging for patients of Chinese heritage to feel empowered, get the information needed to understand their diagnosis, and make treatment decisions.

We have yet to find such a thorough overview of the disease designed specifically for this community and we hope this resource fills an unmet need, Chambers said.

In addition to other Parkinsons information, the handbook provides an explanation of the disease and its common symptoms. It outlines available treatments, practical caregiving tips, and current research.

To ensure translation accuracy and cultural relevance a process known as transcreation the organization received help from several Parkinsons experts who are fluent in Mandarin.

Many Chinese patients with Parkinsons disease may find it difficult to fully understand the complexity of the disease and various terminologies in English, said Tao Xie, a movement disorders neurologist at the University of Chicago who played a key role in the new handbooks development.

The new resources are part of the APDAs three-year strategic plan to enhance its reach to underserved, understudied, and underrepresented communities to promote health equality and care access, and to provide expanded support and education.

Outlook Of Ongoing App Projects

The 7 Best Parkinson

The mobile apps Charity Miles and Parkinsons Moving Day encourage PD patients to stay active by donating to PD research according to their walking distances. This effectively serves two purposes in one: immediate benefit for the individual through exercise and long-term influence by funding research,. The APDA Symptom Tracker app by the American Parkinson Disease Association eases the increasingly vital remote care by letting PD patients record their symptoms to discuss their report with their neurologist at their next telehealth appointment. Parkinson mPower 2, which has already been validated by an observational study, not only lets PD patients record their symptoms, but also gives them the opportunity to make their data available for scientific study purposes,,. Parkinson Exercises Mobile,PD Warrior, 9zest Parkinsons Therapy & Exercises, and Beats Medical Parkinsons Treat offer a combination of motor, speech, and dexterity exercises,,,. In the app Yoga against Parkinsons, PD patients are guided through selected yoga postures that are considered beneficial for postural control and greater flexibility, as well as relaxation. Voice analyst helps to correct hypophonia by analysing the speech of PD patients in real-time.

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Alliance Of Independent Regional Parkinson Organizations

© Parkinson Association of the Carolinas. Website by Rabell Creative.

As of July 1, 2021, Yoga has resumed its in-person classes, and we still offer a Zoom option as well. The information for those programs can be found here — — and is sent out in our Weekly Program Update on Fridays and the monthly newsletter.

To receive our newsletter and emails, go to the About Us tab at the top of our website and select Join Our Email List. In the meantime, our staff continues to work to provide resources and information to you.

Please reach out to us via phone at 245-2786 or email at [email protected]. You will be directed to the right person.

WE ARE HERE FOR YOU!

Apda Parkinson’s Disease Information And Referral Center

The Parkinson’s Disease Information and Referral Center, located at University of Alabama at Birmingham Department of Neurology, provides educational and emotional support to Parkinson disease patients and their families. Established in 1978, the Center serves as a resource for those with Parkinsons disease and their loved ones as well as healthcare providers.

Services provided by the APDA Information and Referral Center include:

  • A telephone helpline
  • Assistance locating or establishing support groups
  • Educational presentations for support groups
  • Counseling and guidance
  • Support and training for healthcare professionals
  • Collaboration with other community stakeholders to raise awareness for Parkinson disease

Parkinson’s disease affects more than 1 million people in the United States annually, with at least 65,000 new cases diagnosed each year. The chronic and progressive neurological condition is the second most common neurodegenerative aging disorder, after Alzheimer’s disease.

For more information contact:

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Assembling Your Care Team

Assembling a team that will provide you with physical and emotional support and adapt to your needs over time is one of the best ways to remain healthy. Parkinsons disease is complex and requires an interdisciplinary approach to care. The care team may include, but is not limited to:

  • Movement disorder specialist

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Take Action Get Involved Learn More

Dr. Gilbert Hosts: Cognition & Parkinson’s disease with Kathleen Poston, MD | APDA

Since 1995, Parkinson Foundation Western Pennsylvania has served to enrich and engage, educate and empower individuals and their families during this challenging, overwhelming and often isolating period. PFWPA is your resource for information, programs, support and connection in Western PA. The organization continues to build and maintain a network of resources connecting those impacted by Parkinsons disease to local resources in their area. The information shared is specific to the individuals challenges they are facing.

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Ask Questions And Share Your Knowledge Of Parkinsons Disease In Our Forums

8. Partners in Parkinsons has a program where you can be connected to an advocate who will listen, offer advice and support to patients and caregivers at no cost. This is just one of the services you can find through Partners in Parkinsons.

9. Caring.com has a support group for caregivers, family and friends of those with Parkinsons disease. No subject is off-limits in this forum.

10. The National Parkinson Foundation has a site specifically geared to caregivers. They help carers navigate the emotional, financial, and physical challenges they may face caring for someone with Parkinsons.

Having resources that help keep you informed, and offer support and encouragement to patients and their loved ones is so important. These are just 10 of the hundreds of organizations out there that are available to you. You can search online or visit your local library for more.

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Parkinsons News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Mapping The Future Of Parkinsons Disease

PD GENEration: Mapping the Future of Parkinsons Disease is a Parkinsons Foundation initiative that offers genetic testing and genetic counseling at no cost for people with Parkinsons disease . When you participate, you can help scientists in their journey to advance understanding of PD, leading to new, more effective PD therapies.

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American Parkinson Disease Company Rankings

American Parkinson Disease is ranked #11 on the Best Companies to Work For in Fountain Valley, CA list. Zippias Best Places to Work lists provide unbiased, data-based evaluations of companies. Rankings are based on government and proprietary data on salaries, company financial health, and employee diversity.

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About The American Parkinson Disease Association

The Non

American Parkinson Disease Association, located in Concord, NY, is a not-for-profit organization with a philanthropic goal. The mission of the Charity is to benefit the Richmond County area and the general public through its work. The Charity accepts donations from the public and offers volunteering options.

You may contact Non-Profit Charitable organizations for questions about:

  • Making donations and volunteering
  • Donation and contribution tax deductions
  • Concord Charity ratings and rankings

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Brain Diseases From A

Brain disease comes in many different forms and goes by many different names. It affects the lives of one in six people worldwide, in addition to the lives of their family, friends, and caregivers. Learn more about the diseases and disorders that affect the brain and nervous system, including ALS, dementia, brain tumors, headache, stroke, and more.

ARTICLES AND NEWS

Cure One Cure Many Award

The American Brain Foundations Cure One, Cure Many Award supports breakthrough research in brain disease. The award provides large-scale, catalyst funding to the worlds top researchers who are pursuing the most innovative, cross-cutting approaches to finding diagnoses, treatments, and cures for brain disease. The award targets research topics that cut across multiple disease areas.

NEXT-GENERATION RESEARCHERS

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Apda Center For Advanced Research

Rutgers Robert Wood Johnson Medical School is home to an Advanced Center for Parkinson’s Research supported by the American Parkinson Disease Association. The Center is directed by M. Maral Mouradian, MD, William Dow Lovett Professor of Neurology, and Director of RWJMS Institute for Neurological Therapeutics. The comprehensive team includes scientists and expert clinicians.

APDA Centers for Advanced Research must meet the highest academic standards and be distinguished leaders in the field of PD research. There are eight such centers across the country

The funding of this Center supports a large research program, which includes:

  • Investigations into the molecular and genetic underpinnings of Parkinson disease
  • Discovery of new pathways that can be targeted for the purpose of slowing down disease progression
  • Several projects aimed at reducing the toxicity of the pathogenic protein alpha-synuclein
  • Identifying new compounds that have the potential to be developed as treatments for modifying the course of the disease
  • Projects aimed at understanding complications of L-dopa therapy and developing improved therapy for L-dopa induced dyskinesia
  • Studies to optimize Deep Brain Stimulation procedures
  • Depression care in Parkinson disease

Parkinson Disease projects include:

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