Parkinsons Support Group Albuquerque
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Parkinsons Support Group
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Support And Support Groups
Most people told us that when they were diagnosed they had little or no experience of Parkinsons disease and did not actually know anyone who had it. Although most people had been informed about the Parkinsons UK and many had contacted the society and obtained useful information, some of them held back from taking things further by joining a Parkinsons disease support group. Most explained their reluctance like Jean did: I dont want to see round the next corner what might be happening to me, Id rather I didnt know.
Yopn Monthly Member Community Gathering
On the fourth Tuesday of each month from 7-8p , Young Onset Parkinson’s Network members come together to learn, engage, and support one another. Connect with fellow members, share experiences and insights about living with YOPD, discuss personal challenges as well as potential opportunities, and learn how others thrive beyond diagnosis. This is your safe space – a place you can be real with others who understand what you’re experiencing.
Must be a YOPN member to participate. Becoming a member is free and fast on the YOPN website for people diagnosed with YOPD and their care partners.
This virtual group is for you if you were diagnosed with PD in your early fifties or younger, or if you are simply young at heart with PD.
- 2nd Wednesday, 5pm PT
To join email or call 479-6119.
This group is facilitated by Mike and Vanessa Wineman.
- Last Wednesday, 7:30pm-9pm PT
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Parkinsons Peer Support Groups
A Parkinsons Peer Support Group is a gathering of people whose lives are affected by Parkinsons, who meet regularly in a relaxed, welcoming environment.
Activities generally undertaken by a Peer Support Group include:
- Sharing information and solutions to common situations
- Hearing from health care professionals about new developments in Parkinsons medication, treatment options and research
- Discussing experiences and feelings
- Taking part in community awareness raising activities
- Enjoying company and friendship with others in a similar situation
Each peer support group is unique in its membership and style. Most Parkinsons groups meet once a month, however some meet every couple of months, while others meet weekly. Some groups are associated with a local healthcare service, while others are run by dedicated members of the community who may or may not have Parkinsons.
People living with Parkinsons, their carers, friends and family are all welcome.
Watch this video featuring Mansfield Parkinsons PSG.
Dailystrength Parkinsons Disease Support Group
Key Specs
- Details: Easy-to-use interface, small and intimate support group, and provides access to doctors
- Things to consider: It’s not a very active group
The DailyStrength Parkinsons Disease Support Group is a free and welcoming online support community with more than 400 members and 3,000 posts.
The mission of the group is centered around empowering and inspiring each other to overcome PD-related and life challenges.
Overall, the DailyStrength website is easy to navigate, and registration is straightforward and quick. Posts are informational, practical, and thoughtful. This is, perhaps, a good place to start for people looking for a smaller, more intimate online support group that is not overwhelming or associated with a national organization.
Even though the site is not moderated, to keep the support group safe and positive, DailyStrength has a set of guidelines that the members are asked to follow.
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Best For Starting Out: Dailystrength Parkinsons Disease Support Group
DailyStrength
DailyStrength is a division of Sharecare, which was created by WebMD founder Jeff Arnold and the famous Dr. Oz in 2009. The DailyStrength Parkinsons Disease Support Group is a free and welcoming online support community with more than 400 members and 3,000 posts.
The mission of the group is centered around empowering and inspiring each other to overcome PD-related and life challenges.
Overall, the DailyStrength website is inviting and easy to navigate, and registration is straightforward and quick. Posts are informational, practical, and thoughtful. This is, perhaps, a good place to start for people looking for a smaller, more intimate online support group that is not overwhelming or associated with a national organization.
Even though the site is not moderated, to keep the support group safe and positive, DailyStrength has a set of guidelines that the members are asked to follow.
How To Find The Right Support Group
There are plenty of places to find Parkinsons caregivers support, both online and offline. You can easily find local meetings by searching for Parkinsons caregiver support group near me on your phone or computer with your Location Services turned on. If you would prefer to talk to someone about your options, you can call the National Parkinsons Foundation helpline on 1-800-4PD-INFO . If youre looking for your local meeting, you can use the APDA Support Group Finder on the American Parkinsons Disease Association website.
The Caregiver Action Network also has a great Care Community for Parkinsons disease caregiver support where you can join forums or start your own posting threads. Again, you may find some online forums and chat rooms more uplifting than others, so take your time to explore all of the options.
If youve tried Parkinsons caregivers support groups before and havent found them helpful, its worth talking to your doctor about talking therapy or one-on-one counseling. Plenty of people experience stress or depression when they care for someone with Parkinsons disease, so its not uncommon. However, its important to look after yourself and find the right Parkinsons disease caregiver support for your situation.
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Best For Support Group Leaders: Parkinsons Movement Disorder And Alliance
Parkinsons Movement Disorder and Alliance
The Parkinsons Movement Disorder and Alliance is a nonprofit organization that focuses on characteristics like empathy, creativity, resiliency, and shared learning.
It also has a wealth of support and educational services. Aside from online programming and Zoom support groups, this organization also offers various in-person support groups located throughout the country.
Additionally, the organization also offers numerous educational programs like Lunch with Docs, in which individuals can meet with a movement disorder specialist virtually over lunch from the comfort of their own home.
However, what is truly unique about this organization is that it offers free workshops across the country called In Sync for supporting and teaching people interested in developing their skills as a support group leader.
There, people can learn skills and build confidence in designing and leading their own support group for Parkinsons disease or other movement disorders. Leadership experts and healthcare professionals also provide guidance through informational presentations.
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What Makes A Good Parkinsons Support Group For Caregivers
Its hard to know exactly what makes a good Parkinsons support group for caregivers, as every person is different. Some find it helpful to sit around and talk about what theyre experiencing, while others prefer to take a more proactive approach.
If they are not constructive, they will bring you down. A good support group always has new ideas that can make life more enjoyable.
The sign of a good support group is one that makes you feel uplifted or positive when you leave. The group should be open, welcoming and friendly. There should be a diverse mix of people of all ages from a variety of backgrounds, all willing to share their stories and help others. If you dread your meetings or feel downhearted at the end of them, these are probably signs you should find a new support group.
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Keith Admits That Part Of His Interest In Other People With Pd Is To Make Comparisons With His
Well I suppose Ive got used to having it and think, well it hasnt progressed as rapidly as I feared over the last three years. So if theres somebody in the Parkinsons Disease Society branch support group thats had it for twenty years and I can look at her and think, oh well if thats what shes like after twenty years. And other people have had it for a long time dont seem to be quite as bad as you imagined. So in some way youre trying to measure your own progression and the progression over the last three years is not quite as bad as Id feared. So in many ways Im a bit more optimistic than I was.
Okay but seeing other people helps in some ways?
In some ways, yes. Its got pros and cons really. You can see what theyre like but you feel well you want to ask them how long theyve been like that and you really want to be, asking them all the questions about how long theyve had it and what patterns take developed since they were first diagnosed to see if theres any parallel. But as I said before the symptoms are so individualistic that you really cant draw too many conclusions from other peoples experience unlike lots of other diseases.
Because that would be a concern for people wouldnt it?
You couldnt keep me away now. I find them a great help, because youre talking to fellow sufferers, you are comparing notes, you are enjoying yourself because youre amongst people that can sympathise. We get some very good speakers.
Groups For Care Partners
Care partners may also benefit from joining support groups. The Parkinsons Foundation notes that it is important for care partners to remember to care for themselves as well as their loved ones.
Care partner support groups can offer emotional support and practical advice for those caring for someone with Parkinsons disease. A person can ask a doctor about local support groups or search for them online.
Organizations and websites that offer support for care partners include:
- The APDA: The APDA provides resources and support for care partners as well as people with Parkinsons disease.
- The Parkinsons Foundation: This organization also provides information for caregivers.
- The Family Caregiver Alliance: This organization provides services for caregivers and the people who receive their care. FCA CareNav is an online resource for family caregivers.
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Stay Current On Parkinsons News In Canada
With your support, you inspire the kind of action that will make a profound difference in the well-being of Canadians living with Parkinsons. Together, we will continue the global quest for a cure and create a world without Parkinsons.
Charitable Registration Number: 10809 1786 RR0001
Do you have questions about Parkinsons?
From coast to coast to coast, we acknowledge the ancestral and unceded territories of Inuit, Métis, and First Nations Peoples.
Parkinson Association Of The Carolinas Virtual Support Group
We know in person meetings may not be available in your area and, often times, finding meetings that fit our schedules is difficult, so we are now offering a FREE monthly Virtual Support Group ONLINE!
Our next scheduled meeting will take place on Wednesday, November 3rd at 2:00 P.M.
Join the PAC team Holly Kennedy and Janet Ceraldi to discuss Fall Prevention Considerations for People with Parkinsons Disease.
View Support Group Meetings Map in a full screen map.
Please contact a PAC team member for more information on support groups including contact information and current status at 245-2786.
If you would like to submit your support group for public listing or would like to submit changes to a listed support group, please contact .
Why join a support group?
People who have been through, or are going through, a similar circumstance can do more than sympathize with you they can relate to your situation and keep you from feeling like you are alone. Support group members offer firsthand insight into many aspects of navigating the disease.
For some people, the most difficult step is walking through the door, but most find that once they make the decision, the experience is helpful and supportive. Remember, a support group is not a substitute for medical treatment or professional counseling and it is not a replacement for family and friends.
When do support groups meet?
What can PAC do to help a support group?
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Best For Variety: Parkinsons Foundation
Parkinsons Foundation
The Parkinsons Foundation was formed from the merging of two other foundationsthe National Parkinson Foundation and the Parkinsons Disease Foundationwith the mission being to improve the lives of and ultimately find a cure for people living with PD.
The Parkinsons Foundation has a vast network of free, in-person support groups located throughout the country. Most of them are for anyone living with PD, but some are geared toward a certain audience .
The Parkinsons Foundation also offers a free online support community called PD Conversations. Here, individuals can connect with others living with PD, as well as get their questions answered by PD experts. To focus their interactions, the online community is broken up into discussion groupsnewly diagnosed, symptoms of PD, Spanish-speaking patients, and much more.
The Parkinsons Foundation also offers health and wellness classes and free educational resources through its local networks. The organization also raises awareness and funds through various gatherings, such as its annual fundraising event called the Moving Day Walk.
If You Are A Discussion Moderator
If youre a moderator or a facilitator for a support group for people with Parkinsons disease, or family members or caregivers for people with Parkinsons disease, you play a very important role in helping the group to be a success. You can start by setting an agenda for each meeting so everyone knows what to expect.
A few other tips for getting the conversation flowing:
- Start with opening questions that help people to settle in and get comfortable.
- Make sure everyone knows the ground rules and expectations.
- Give everyone the opportunity to speak and to be heard.
- Encourage members to listen when others are speaking.
- Be respectful if some people choose not to share.
- Use a handheld microphone in case some people are soft-spoken.
- Develop some strategies to handle situations in which a few people monopolize discussions.
- Ask group members to brainstorm topics for future discussions or suggestions for guest speakers.
You also might check out resources from organizations like the Parkinsons Foundation that can help you plan your meetings, encourage participation, and foster the connections that are so vitally important to support group members.
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Other Places To Find Support
Support groups aren’t for everyone. If they don’t appeal to you, there’s no need to force it. If you were involved in community, religious or hobby-based organizations in your life before Parkinson’s, keep up those ties and friendships. In addition, educating yourself about Parkinson’s, and getting involved with local or national Parkinson’s organizations, can be ways to meet people who share some experiences with you without joining a support group.
Find Support in the Parkinsons Buddy Network
Create connections and find community online in the Parkinsons Buddy Network. Were building an online support system, one buddy at a time.
Apda In Your Community
The American Parkinson Disease Association nationwide network provides information and referral, education and support programs, health and wellness activities, and events to facilitate a better quality of life for the Parkinsons community. It is this grassroots structure that distinguishes APDA from other organizations serving people with Parkinsons disease.
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Parkinson’s Virtual Men’s Support Group
With more men than women being diagnosed with Parkinsons every year and the fact that our Womens Group has been very popular, we figured we would use this opportunity to create a Mens “Only” group to address challenges, provide camaraderie and support!
- 3rd Tuesday, 11am PT
A series of fun, informative, and free webinars just for Women with PD. To maintain privacy for this group, care-partners and family members should not attend unless an event states that registration is open to all. All times are Pacific.
- Every other Sunday, 10am PT
This group is designed for women living with Parkinsons to have a safe space to share and learn from each other. Any and all women on their Parkinsons journey are welcomed and encouraged to join in!
- 4th Tuesday, 11am PT
What Are Parkinsons Caregivers Support Groups
Parkinsons caregivers support groups are meetings designed for the family members and loved ones of people with Parkinsons disease . If you live with or care for someone with advanced PD, you may find support groups a great source of comfort and a chance to connect with other caregivers. If someone you love has been newly diagnosed with Parkinsons, support groups can help you and your loved one come to terms with their condition, seek out information and know what to expect.
Here are some of the benefits of Parkinson disease support groups for caregivers:
- Connection: As a caregiver, you may not have many opportunities to socialize. Attending a Parkinsons caregivers support group is a chance to connect with others who understand your situation.
- Advice: Support groups arent just for emotional support they can also be great for practical advice, especially from others who have been where you are.
- Education: The more you can learn about your loved ones condition, the more you can help them. A support group should provide you with plenty of information and actionable advice both in terms of caring for someone with Parkinsons disease and making sure your own needs are met.
- Knowing you are not alone: Being a caregiver can be isolating at times. Simply knowing youre not alone can help relieve depression and equip you with coping skills.
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