Sunday, August 7, 2022

Parkinson And Movement Disorder Alliance

Spotlight Online: Pd And Your Mouth: Preventative And Proactive Dental Care

Learn to Move. Move to Learn.

In this program, dentists Sara Maltese, DMD, and Jose Gil, DMD, will explore oral hygiene for people living with PD. Together, theyll equip you with the information and tips you need to know about periodontal disease, cleaning removable dental appliances, tooth loss and replacement, and more.

Online

Sabes Livestream Seguir Adelante: Ms Informacin Sobre La Enfermedad De Parkinson Y Cmo Avanza

Únase a la conversación con la especialista, Dra. María Cristina Ospina, mientras analiza cómo Duopa puede ayudar a tratar las fluctuaciones motoras en la etapa avanzada de la enfermedad de Parkinson a través de su exclusivo sistema de administración. También escuche a un paciente embajador compartir su experiencia personal con Duopa.

Online

Parkinson & Movement Disorder Alliance

Alias:

  • AddressParkinson & Movement Disorder AllianceP.O. Box 36233
  • HoursPlease call or visit website for hours of operation.
  • Area Served:Bernalillo,Catron,Chaves,Cibola,Colfax,Curry,De Baca,Dona Ana,Eddy,Grant,Guadalupe,Harding,Hidalgo,Lea,Lincoln,Los Alamos,Luna,McKinley,Mora,Otero,Quay,Rio Arriba,Roosevelt,Sandoval,San Juan,San Miguel,Santa Fe,Sierra,Socorro,Taos,Torrance,Union,Valencia
  • Fees:Please contact provider for fee information.
  • Application Process:Call or visit website for additional information.
  • Eligibility Requirements:Please call service provider or visit website to learn more about eligibility requirements.
  • Acronym:PMD Alliance
  • Payment/Insurance Accepted:Please contact provider for accepted forms of payment.
  • ADA Access:Please contact facility for accessibility information.

Tell us about the person you’re helping:

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And How Long You Live

Research in the journal JAMA Network Open from the University of Massachusetts, revealed an

association between the number of steps you take each day and how long you live..

  • Taking a minimum of 7,000 steps a day resulted in a 50% less risk of dying early.

  • This benefit increased to 70% less chance for > 9,000 steps a day.

  • The benefit did not increase past 10,000 steps.

  • In a Mayo clinic study exercising 2.6-4.5 hours a week resulted in a 40% decrease risk of dying .

  • A group in the Mayo study participating in 10 or more hours of activity a week actually lost about 30% of the benefit, suggesting that there may be a too much exercise factor we need to more closely study.

    When You Were Practicing As Neurologists Did You Have Apps In Your Care Team And How Was That Experience

    Parkinson &  Movement Disorder Alliance

    APPs certainly are an important part of an effective health care team for individuals with movement disorders. In my own experienceI was in practice at a Parkinson center in academic medicine for many years. But then I transitioned several years ago to industry. I was fortunate, even those many years ago, that we had an APP. That was an essential part of the care we were able to render our patients, particularly with some of the more invasive therapies that were just being emerging at the time, like deep brain stimulation. It was really key to those kinds of more complex delivery systems.

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    Parkinsons Disease Early Stage

    In the early stages of Parkinsonâs, people usually need more emotional support than hands-on care. You may notice some or all of the following changes:

    • tremors
    • facial expression changes
    • changes in speech.

    Typically, symptoms will begin on one side of the body and progress to both sides over time.

    These symptoms â and receiving a diagnosis â can be very distressing. The person with Parkinsonâs may be in denial of their diagnosis. You may have to take the lead in researching information and resources. Newly diagnosed individuals and their families can join a support group to help ease anxiety and learn pro-active coping skills. Individual counseling may also be very helpful.

    Lunch With Docs Everything You Need To Learn For Pd You Learned In Kindergarten

    In this program. Maria Cristina Ospina, MD, a movement disorders neurologist, will share the basic rules for managing your Parkinson disease. Shell cover the benefits of exercise, good nutrition, sleep, social interaction and how to treat PD symptoms like constipation and sleep challenges. Taking these simple steps will help you live well.

    Online

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    Hospice And End Of Life Care

    Hospice services are designed to support individuals towards the end of life. Care can be provided wherever the person resides â including at home or in a care facility. This includes visiting nurses, pain management, and personal care. Hospice can also provide spiritual, grief, and bereavement support as well as respite for family caregivers.

    Hospice is a Medicare benefit and individuals are eligible when a doctor has determined a patient has 6 months or less to live. Ask your doctor for a referral to begin services, or hospice can assist you in getting a referral if the patient is eligible.

    Reflecting On The Changes In Parkinson Disease And Movement Disorders Care

    wHolistic!⢠– COVID, Sensory Deprivation and PD – Javier Pagonabarraga, MD

    Jean Hubble, MD, semi-retired neurologist and consultant, spoke with the PMD Alliance at the ATMRD Congress about the advances made in the field and her hopes for the future of therapeutics and clinical care.

    At this years inaugural Advanced Therapeutics in Movement and Related Disorders Congress, hundreds of clinicians of various backgrounds came together to learn and share updates on the latest therapeutic advances in care for patients with disorders such as Parkinson disease or essential tremor.

    Held in Washington, DC, June 17-19, 2022, some of the top experts in the field offered their perspectives to eager crowds of physicians, advanced practice providers , and residents, both experienced and new to the field. Jean Hubble, MD, semi-retired neurologist and consultant, spoke with the PMD Alliance at the meeting, highlighting the importance of having a variety of care team members involved, and the insight that can be gleaned from hearing about the management paradigm from the various perspectives and approaches these individuals take to these patients.

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    What’s Your Vision For An Integrated Care Team

    Integration of care teams is a really hot topic now, at least in in the practice of neurology. In fact, often now you’ll find that we’re going away from using the term multidisciplinary, to interdisciplinary. That’s really similar to that ecosystems model to because the difference between multidisciplinary means you see your neurologist, different day you see your physical therapist, different day you see your speech therapist. Interdisciplinary means they’re all working as a team on your health care plan, and the patient is at the center of those plans.

    Parkinson And Movement Disorder Alliance To Host Seminar In Mobile

    MOBILE, Ala. The Parkinson and Movement Disorder Alliance will host the Learn. Live. Connect. event Oct. 29 in Mobile.

    Residents are encouraged to participate and learn about movement disorders through an educational seminar.

    Dr. Dees, a neurologist and a movement disorders expert, will be the featured speaker. A 30-minute movement break will be provided by Chris Addson, a local Rock Steady Boxing coach.

    The seminar will be from 9:30 a.m. to noon at Hermitage-Rippy Estate at 3151 Newman Road in Mobile. All COVID-19 protocols must be followed in line with the current CDC guidelines.

    For more information, click here.

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    For Advanced Practice Providers

    When was the last time advanced practice providers in movement and related disorders got to gather with colleagues from all over, sparking ideas, sharing resources, and making vital connections? On the day prior to the ATMRD Congress, PMD Alliance will host an APProviders Conference, a conference unlike any other, exclusively for APPs APPs in movement and related disorders. During that day and throughout the ATMRD Congress, APPs will have an opportunity to network and engage with peers from across the country. The full weekend will leave participants energized, inspired, and well connected!

    Autonomic Manifestations In Parkinson’s Disease

    Parkinson &  Movement Disorder Alliance 2016 Annual Report by Parkinson ...

    This course will cover assessing and managing autonomic dysfunction which is a common component to non-motor manifestations of Parkinson disease.

    Jointly provided by Postgraduate Institute for Medicine and Parkinson & Movement Disorder Alliance

    Release date: May 30, 2022

    Expiration date: May 30, 2024

    Estimated time to complete activity: 60 minutes

    Target Audience

    This course is for advanced practice professionals, neurologists, and other healthcare providers involved in the care of patients with a movement or related disorder.

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    To Change My Fortunes With Parkinsons

    In general, the answer to this question is no. Experts tend to agree on one thing with Parkinsons and exercise the best exercise is the kind you will consistently do in other words choose something that is safe and that you enjoy.

    To read more books and articles by Michael S. Okun MD check on and these websites with blogs and information on his books and #Livingwith Parkinsons #EndingPD #Parkinsonsecrets #LessonsFromTheBedside

    He also serves as the Medical Advisor for the Parkinsons Foundation.

    To see more on Dr. Indu Subramanian she does live interviews of experts in Parkinsons for the PMD Alliance.

    Selected references:

    Paluch AE, Gabriel KP, Fulton JE, Lewis CE, Schreiner PJ, Sternfeld B, Sidney S, Siddique J, Whitaker KM, Carnethon MR. Steps per Day and All-Cause Mortality in Middle-aged Adults in the Coronary Artery Risk Development in Young Adults Study. JAMA Netw Open. 2021 Sep 1 4:e2124516. doi: 10.1001/jamanetworkopen.2021.24516. PMID: 34477847 PMCID: PMC8417757.

    Schnohr P, O’Keefe JH, Lavie CJ, Holtermann A, Lange P, Jensen GB, Marott JL. U-Shaped Association Between Duration of Sports Activities and Mortality: Copenhagen City Heart Study. Mayo Clin Proc. 2021 Dec 96:3012-3020. doi: 10.1016/j.mayocp.2021.05.028. Epub 2021 Aug 17. PMID: 34412854.

    How Often Do I Have To Exercise

    This is one of the most interesting questions in Parkinsons. Though studies are showing that weekend warriors may get many of the benefits of exercise we do not recommend this in Parkinsons. Parkinsons is a cueing disease and I recommend to my patients a minimum of 30 minutes of exercise each day for a minimum of 5 days a week to reach a 150 minute a week goal. If you are walking I recommend 7,000-10,000 steps a day. Reynolds suggests in her article that it is not a one size fits all. This means that some folks may prefer to separate their routines into 10 minute or shorter intervals each day rather than one long session.

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    Do You Have Any Nuggets Of Wisdom That You’ve Taken Away With You From Atmrd

    Both working with the PMD Alliance these last few months and attending their recent Congress, the ATMRD, has really just reaffirmed that this is the right place for me to be and the right organization. Being in the room, at this congress, with APPs, fellows, residents, and senior residents has just been so exciting. I’ve learned so much from them as well, particularly the APPs because they see medicine and the care of these individuals in a much different way than I do, either in my role back as an academician or in industry.

    But I can tell you one anecdote, I happened to sit and break the ice yesterday with the APPs, and a senior neurology resident from Ohio was sitting next to me. We struck up a conversation and she was very excited and interested in my background as a movement disorder specialist. She was saying how she wanted to learn more about Parkinson’s and movement disorders, that her particular residency program really only had limited exposure on those topics. Through the evening, I wrote to a friend of mine in a different part of Cincinnati, a world famous Parkinson’s specialisthe already wrote back that she can come down and visit their clinic anytime and perhaps even do a rotation. That’s so great.

    How Have Things Shifted In Neurology Over The Course Of Your Career In Academia And Industry

    Uncovering Atypical Parkinson’s

    Jean Hubble, MD: Fortunately, there’s just been tremendous advances in the treatment of Parkinson’s disease and other movement disorders. Still a lot to be done, but it’s just been amazing over my career as a neurologist.

    The therapeutics are really advancing. Probably the most exciting part right now are some of the infusion therapies that are coming on board for Parkinson’s disease, in particular. In general, in movement disorders, while we haven’t reached our goal yet in delaying disease progression, I think we’re coming tantalizingly close. To me, that’s another reason for me not to fully retire. I want to see that. I want to see us make that goal.

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    Legal And Financial Planning

    One common question that caregivers ask, is what will happen to the person I care for if something happens to me? One thing you can do is make sure that your own legal and financial documents are updated.

    This is also a good time to encourage the person with Parkinsonâs to make or update their legal and financial arrangements including making arrangements for dependents, especially before they experience significant cognitive changes. For them itâs best to speak with an attorney who specializes in disability and estate planning. Key documents to complete include:

    • Durable financial power of attorney
    • Advance Health Care Directive
    • Will and/or trust
    • POLST form which specifies end-of-life medical intervention.

    This is also a good time for the person with Parkinsonâs to sign a release of information, allowing medical staff to speak with you and others who are closely involved in their care.

    If you or the person with Parkinsonâs is employed, it is important to contact the Human Resources department to learn about eligible benefits, such as long-term disability and paid and unpaid family leave options.

    Securing financial help from the government can be a challenging and confusing process. Seek out experts to help you early on. Consult with an attorney, a community organization or legal aid office that specializes in Social Security Disability Insurance and Supplemental Security Income . They can also help you navigate Medicare and Medicaid.

    Founders Story: Parkinson & Movement Disorder Alliance

    At the very heart of Parkinson & Movement Disorder Alliance is a deep desire to meet people where they are at in their movement disorder journey. We roll up our sleeves, hold your hand and remind you that you will not walk alone.

    Whether youre someone living with a movement disorder, or a care partner, an adult child, a friend, a doctor or a support group leader, PMD Alliance is a uniquely people-oriented community designed to care for you. We cannot do this important work alone. Together, alongside donors, corporate partners, volunteer Ambassadors, doctors and advance practice providers, the uniquely supportive PMD Alliance community provides innovative and inspiring programming and resources to those navigating a devastating diagnosis.

    Because at our very core thats just who we are. Thats why we do this work.

    In 1992, we noticed Wayne was having tremors in his right hand. We didnt think it was anything serious, so we continued our normal, busy schedule. Wayne was an early riser and ran three miles every day! But by 1998, the tremors were more significant and were accompanied by constant fatigue. Just one year later, he was diagnosed with Parkinson disease. Helen Squires

    Helen Squires and her husband, Wayne, were married for 55 years before he died from complications due to Parkinsons in 2016. At the time, there were limited resources for people living with Parkinsons, let alone support for care partners and families navigating this disease with a loved one.

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    Medical Care And Nutrition

    As the disease progresses, swallowing issues, along with speech and voice disorders, can have a significant impact on the personâs quality of life.

    Speech Therapist: It is recommended that the person you care for get a baseline speech evaluation, along with speech therapy, to help with difficulty talking and swallowing.

    Dietitian: A dietitian can provide guidance on proper nutrition and create individualized meal plans as food can impact medications and non-movement symptoms. Dietitians can also help with planning the timing of meals and medications.

    Palliative Care helps to improve the quality of life for people who have debilitating chronic health conditions. Palliative care teams can help manage symptoms and reduce suffering. A person does not have to be in hospice to qualify.

    Contact the medical team for referrals to any of these services. And if itâs difficult to attend an appointment in-person, ask providers about tele-health or virtual visit options.

    Pmdalliance And Acadia Pharmaceuticals Survey Reveals Serious Quality

    The 7 Best Parkinson

    Results underscore need for greater awareness of non-movement symptoms this Parkinsons Disease Awareness Month

    TUCSON, Ariz. —-Apr. 23, 2018– As part of Parkinsons Disease Awareness Month, the Parkinson & Movement Disorder Alliance and ACADIA Pharmaceuticals Inc. today announced the results of a survey on the impact of non-movement symptoms on people with Parkinsons disease , a progressive, neurodegenerative disorder affecting over one million Americans.i More than 650 people, including people with Parkinsons and care partners of people with Parkinsons, participated in the survey.

    This press release features multimedia. View the full release here:

    Key Findings: Non-Movement Symptoms Decrease Quality of Life90 percent of respondents reported that they or their loved one with Parkinsons experienced non-movement symptoms associated with PD, including sleep problems , cognitive challenges , anxiety , depression , hallucinations and delusions .

    Care partners were also more likely than people with Parkinsons to recognize their loved ones cognitive challenges , anxiety and depression .

    For more information about PMDAlliance and non-movement symptoms related to PD, please visit: .

    View source version on businesswire.com:

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    Will You Join Us

    About the Author: Sarah Jones, MPA, MS Strategic Design, CEO. With more than 25 years of experience leading non-profits and healthcare programs, Sarah is a visionary leader. As a dyed-in-the-wool dynamo who continually seeks opportunities to impact and address unmet needs, Sarah has designed programs and led training for local, national and international audiences, including groups in Canada and Botswana. Called upon to solve issues of efficiency and develop a culture of innovation, she has also acted as a consultant for global brands, including Campbells Soup. Sarah holds two masters degrees: Master of Science in Strategic Design Management and Master in Public Administration. She has consulted with large health care systems, integrative medicine clinics teaching utilization of strategic design principles to innovate and change end-user experience. Sarah is driven to create a world that people are excited to live in.

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