Parkinson's Support Group San Diego

Support: Juntos Unidos Spanish Language Support Group

Parkinson’s Association Of San Diego goes step-by-step to provide support

¡Juntos Unidos! Spanish Language Support Group Monthly Meeting 2nd Tuesday of every Month/ 2do Martes de cada mes 1-3pm ¡Juntos Unidos! Is a peer led outreach program designed to provide information, education & monthly support to the Spanish Speaking Parkinsons disease community. This program is supported by a community grant from the Parkinsons Foundation. For

Hispanic Parkinsons Advisory Council

The Hispanic Parkinsons Advisory Council, comprised of healthcare professionals, researchers, members of the community and people with PD, develops strategies to increase clinical research education, awareness and participation among Hispanic people with Parkinsons throughout the United States, with specific focus on Parkinsons Foundation studies: PD GENEration: Mapping the Future of Parkinsons Disease and the Parkinsons Outcomes Project. This unique pilot initiative aims to increase participation in these two projects by ten percent through:

Developing educational materials and organizing outreach events specific to the Hispanic community living with PD
Disseminating lessons learned and measures of success in engaging the Hispanic community through scientific publications and
Surveying the Hispanic community to further understand their needs and gaps in care.

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Parkinsons Association Mentor Program

Are you trying to find your way as a newly diagnosed person with Parkinsons?

Are you struggling with Parkinsons and need someone to talk to?

Are you a care partner who needs someone to talk to? Someone who has been there/done that?

Then the PASD Mentor Program is the perfect place for you.

Find a mentor, set up a call, and get guidance from someone who has walked in your shoes.

I remind myself every morning: Nothing I say this day will teach me anything. So if Im going to learn, I must do it by listening. I never learned anything while I was talking.

Larry King

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Expertly Trained In Parkinsons Disease Care

Senior Helpers Parkinsons Care Program is a specialized training program for our caregivers created in conjunction with leading experts from the Parkinsons Foundations Centers of Excellence network. This program, the first of its kind in the in-home senior care industry, is designed to provide our caregivers with the expert training and education necessary to create personalized care plans for individuals living with Parkinsons disease.

Parkinsons is a progressive condition, which means your loved ones care needs will change as the disease advances. At first, you may just need some assistance with running errands, but that might evolve to include assistance with personal care and activities of daily living. There is not a one-size fits all approach to care, which is why Senior Helpers works with each of our clients to develop a care plan unique to their specific needs.

Senior Helpers caregivers are educated and trained on:

How Parkinsons disease advances and changes
Techniques and strategies to identify and manage the motor and non-motor symptoms of Parkinsons
Home safety and fall prevention
Diet and nutrition

People With Parkinsons Group

Part of the San Diego Central County Parkinson’s Support Groups Organization

A virtual meeting for people with Parkinson’s. Members can share and learn from each other about living and coping with the complex ways Parkinson’s is experienced. Meetings are lead by people living with Parkinson’s.

Meetings are held on the 4th Wednesday of each month from 3:00 pm to 4:30 pm .

to join a meeting on Zoom.

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Expertly Trained In Parkinson’s Disease Care

Senior Helpers caregivers are educated and trained on:

How Parkinsons disease advances and changes
Techniques and strategies to identify and manage the motor and non-motor symptoms of Parkinsons
Home safety and fall prevention
Diet and nutrition

Other Places To Find Support

Support groups aren’t for everyone. If they don’t appeal to you, there’s no need to force it. If you were involved in community, religious or hobby-based organizations in your life before Parkinson’s, keep up those ties and friendships. In addition, educating yourself about Parkinson’s, and getting involved with local or national Parkinson’s organizations, can be ways to meet people who share some experiences with you without joining a support group.

Find Support in the Parkinsons Buddy Network

Create connections and find community online in the Parkinsons Buddy Network. Were building an online support system, one buddy at a time.

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Mapping The Future Of Parkinsons Disease

PD GENEration: Mapping the Future of Parkinsons Disease is a Parkinsons Foundation initiative that offers genetic testing and genetic counseling at no cost for people with Parkinsons disease . When you participate, you can help scientists in their journey to advance understanding of PD, leading to new, more effective PD therapies.

Parkinsons Disease And Movement Disorder Treatment At Scripps

Padres legend Dave Roberts family speaks about dealing with Parkinson’s disease

Depending on the type and progression of the movement disorder, the Scripps neurology team will recommend personalized care plans to achieve the best possible outcome. Treatment plans usually include one or more of the following therapies:

Speech and voice disorder therapy

Because speech and voice disorders are common in those with Parkinsons disease, speech language pathologists at several Scripps locations specialize in Lee Silverman Voice Treatment LOUD an evidence-based training technique that focuses on improving voice quality, articulation and vocal intensity.

LSVT LOUD improves vocal loudness by stimulating the muscles of the voice box and speech mechanism through a series of exercises. The goal of treatment is to bring the voice to an improved, healthy volume level with no strain, so patients participate in conversations and have greater confidence in social settings.

We also offer a LSVT LOUD maintenance class for people who have completed the initial LSVT LOUD protocol. Visit our page on rehabilitation classes to learn more about the maintenance class.

Physical therapy

To simultaneously treat the unique movement impairments caused by Parkinsons disease, physical therapists at several Scripps locations also offer LSVT BIG. Using core movements and other exercises, the training focuses on improving speed, trunk rotation, gait and balance.

Parkinsons boot camps and picnic

Check our events page for upcoming boot camps, seminars and other events.

Parkinsons Movement Disorder And Alliance

Key Specs

Membership fee: Free
Structure:In-person support groups, virtual Zoom support groups, chat forums/message boards
Details: Offers both in-person and virtual support groups, educational videos and resources, and support is available for care partners
Things to do: A survey needs to be completed first before you can participate in the online community

The Parkinsons Movement Disorder and Alliance is a nonprofit organization that focuses on characteristics like empathy, creativity, resiliency, and shared learning.

It also has a wealth of support and educational services. Aside from online programming and Zoom support groups, this organization also offers various in-person support groups located throughout the country.

Additionally, the organization features numerous educational programs like “Lunch with Docs,” in which individuals can meet with a movement disorder specialist virtually over lunch from the comfort of their own home.

There are free workshops across the country called In Sync for supporting and teaching people interested in developing their skills as a support group leader.

There, people can learn skills and build confidence in designing and leading their own support group for Parkinsons disease or other movement disorders. Leadership experts and healthcare professionals also provide guidance through informational presentations.

Dailystrength Parkinsons Disease Support Group

Key Specs

Details: Easy-to-use interface, small and intimate support group, and provides access to doctors
Things to consider: It’s not a very active group

The DailyStrength Parkinsons Disease Support Group is a free and welcoming online support community with more than 400 members and 3,000 posts.

The mission of the group is centered around empowering and inspiring each other to overcome PD-related and life challenges.

Overall, the DailyStrength website is easy to navigate, and registration is straightforward and quick. Posts are informational, practical, and thoughtful. This is, perhaps, a good place to start for people looking for a smaller, more intimate online support group that is not overwhelming or associated with a national organization.

Even though the site is not moderated, to keep the support group safe and positive, DailyStrength has a set of guidelines that the members are asked to follow.

Where Does My Donation Go

Moving Day proceeds help bring quality care to more people with Parkinsons, further Parkinsons research, education and outreach initiatives. Moving Day raises awareness of Parkinsons both nationally and in the local community.

For more information about our local programs funded through your support of Moving Day, please .

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Neurodegenerative Disorders Cerebrospinal Fluid Biorepository

This study is investigating potential biomarkers for Parkinsonian disorders by collecting cerebrospinal fluid, the fluid that the brain sits in. Samples may also be used for future research.
The study will collect clinical information and cerebrospinal fluid sample from individuals with any type of Parkinsonian disorder. Non-UCSD patients will first need to be seen at UCSD to confirm the diagnosis and medical history. Participation will include one study visit to complete a lumbar puncture.

Support: Care Partners For Lewy Body Kearny Mesa

Support Group Meeting Care Partners for Lewy Body or Frontotemporal Dementia only 1st Wednesday of every Month 2:00 3:30 PM Kearny Mesa Care Partners for Lewy Body or Frontotemporal Dementia only Alzheimers San Diego 6632 Convoy Court San Diego 92111 1st Wednesday of every month 2:00-3:30pm Contact Tracey: 858-822-4800: RSVP required

Support: Ucsd Torrey Pines

Support Group Meeting 3rd Thursday of every month 12:30 2:30 PM UCSD Parkinsons Support Group Sanford Consortium for Stem Cell Research 2880 Torrey Pines Scenic Drive La Jolla, CA 92037 3rd Thursday of every month 12:30 2:30 PM David Higgins: 619-565-0411 or [email protected] Anyone diagnosed with Parkinsons disease, their Care Partners, family, and

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Parkinsons Association Of San Diego Www Parkinsonsassociation Org

PARKINSONS ASSOCIATION OF SAN DIEGO WWW. PARKINSONSASSOCIATION. ORG THE GOOD START PROGRAM February/March, 2020 1

How are you feeling about your diagnosis? Youre not alone in this journey You may feel: Afraid Angry Sad or depressed Confused anxious or nervous Stressed Embarrassed or ashamed Helpless or powerless Numb Overwhelmed Hopelessness After todays session, we hope youll feel: Compassion and empathy Safety Understanding Trust and Support Friendship and connection Hope and encouragement Informed 2

BACKGROUND ON PARKINSONS DISEASE: DR. JAMES PARKINSON WAS AN ENGLISH SURGEON, APOTHECARY, GEOLOGIST, PALEONTOLOGIST AND POLITICAL ACTIVIST WHO IS BEST KNOWN FOR HIS 1817 WORK ON AN ESSAY CALLED THE SHAKING PALSY IN WHICH HE WAS THE FIRST TO DESCRIBE PARALYSIS AGITANS. A CONDITION THAT WOULD LATER BE RENAMED PARKINSONS DISEASE. ESTIMATED 10 MILLION WORLDWIDE ESTIMATED 1 MILLION NATIONALLY 60, 000 PEOPLE ARE DIAGNOSED EACH YEAR IN THE U. S. AT LEAST 117, 000 PEOPLE WITH PD IN CALIFORNIA PARKINSONS OCCURS IN MEN THAN WOMEN THE AVERAGE OF ONSET IS 60 3

Motor Symptoms of Parkinsons Disease Tremor may start only on one side and later appear on both sides Slowness of movement bradykinesia Rigidity or stiffness May have postural instability or poor balance 6

PARKINSONS DISEASE FOUNDATION 10

STRETCH BREAK 12

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The Grant From Aligning Science Across Parkinsons Will Help Further The Discovery That Inhibiting Single Gene In Mice Converts Other Cell Types Directly Into New Neurons Alleviating All Parkinsons Symptoms

Parkinson’s Disease Care Partners: Caregiving From Afar

Researchers around the world have tried many ways, and for many years, to generate neurons in the lab so they could study them better. Neurons-on-demand might also provide a therapeutic option for replacing neurons lost in neurodegenerative conditions, such as Parkinsons disease. In June 2020, University of California San Diego School of Medicine researchers announced a major step toward that goal: With one dose of a new proto-drug, they were able to turn other cell types directly into neurons, a feat that alleviated all Parkinsons disease symptoms in a mouse model.

Now, the UC San Diego-led team will receive a $9 million grant from the Aligning Science Across Parkinsons initiative to help advance this research and position it for the next phases of drug development. ASAP is a coordinated research initiative to advance targeted basic research for Parkinsons disease. Its mission is to accelerate the pace of discovery and inform the path to a cure through collaboration, research-enabling resources and data-sharing. The Michael J. Fox Foundation for Parkinsons Research is the implementation partner for ASAP and issuer of the grant, which contributes to the Campaign for UC San Diego.

Top: Mouse brain before treatment, with dopamine-producing neurons shown in green. Bottom: Mouse brain after PTB antisense oligonucleotide treatment, which converts brain support cells into dopamine-producing neurons .

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San Diego Central County Parkinsons Support Group

The SDCCPSG.org Newsletter is back online!

Remember, this site is a work in progress.

Local Events: The Parkinsons Association of San Diego Mentor Programis now available.Whether you are newly diagnosed, or have been living with Parkinsons for years, or if you are a care partner for someone with Parkinsons and you need someone to talk to, the PASD mentors are here for you.

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What Is Parkinsons Disease

Parkinsons Disease is second only to Alzheimers Disease as the most prevalent neurodegenerative disease known. Over 6 million people suffer from Parkinsons Disease , today. And, inasmuch as Parkinsons is considerably more prevalent in people over aged 60, the number of sufferers will increase as baby boomers age.

Parkinsons Disease is a slow, progressive disease, which causes a loss of brain cells that produce the Dopamine, which is a neurotransmitter . Dopamine transmits signals to the area of the brain that controls movement and coordination, a decrease in Dopamine causes impairment of the motor symptom, including the following:

Generalized slowness in motor function
Stiffness of the arms and legs

Other motor manifestations of Parkinsons disease may include:

Unnaturally small handwriting
Unnaturally quiet speech
Difficulty swallowing

As PD progresses, postural instability develops, which results in a shuffling, imbalanced walking motion, which can result in falls.

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Clinical Study To Identify Biomarkers Of Parkinsons Disease Sponsored By The Michael J Fox Foundation Will Recruit 4000 Participants By The End Of 2023

After a decade of pioneering research, the Parkinsons Progression Markers Initiative by The Michael J. Fox Foundation for Parkinsons Research will see a major expansion. Entering its most ambitious phase yet, the clinical study will grow its in-clinic recruitment from 1,400 to 4,000 participants by the end of 2023. This is the latest step in PPMIs mission to maintain the most robust open-access Parkinsons data set in the world.

University of California San Diego School of Medicine joined PPMI shortly after its launch in 2010, and is now one of nearly 50 clinical sites around the world participating in the expansion. The international effort seeks to identify biomarkers of Parkinsons disease to promote development of better treatments, potential cures and perhaps even prevention of the disease.

UC San Diego School of Medicine is now recruiting adults with and without Parkinsons disease to participate in the Parkinsons Progression Markers Initiative sponsored by The Michael J. Fox Foundation. Photo credit: The Michael J. Fox Foundation

When the Foundation started in 2000, we set out to change the game on how Parkinsons research gets done, said founder and actor Michael J. Fox, who was diagnosed with the disease in 1991.

Participants will undergo tests including motor, neuropsychiatric and cognitive examinations brain imaging with DaTscan and MRI and blood, urine, cerebrospinal fluid and DNA sampling.

Fighting Parkinsons One Song At A Time

Tremble Clefs is a fun, and FREE therapeutic singing program for people living with Parkinsons and their care partners. We are supported entirely by generous donations from friends, families and a loving community of donors and sponsors just like you. The weekly program includes a professional choral director with live accompanists that allow members to practice voice exercises and movement-to-music in a rotating cycle of familiar pop songs. Members can perform with the chorus out in the community for seniors care centers, veterans’ homes, support groups, and charities.

Finding The Right Group

If you’re feeling frustrated about life with Parkinson’s disease, being part of a support group can be one of the best ways to reduce stress and connect with others who can relate to your experience. Care partners and family members also benefit from sharing questions and concerns with like-minded others.

Many resources are available to help you find a support group, including your neurologist or physician , local hospitals , community calendars in local newspapers, and websites of national Parkinson’s disease organizations.

Not all support groups are right for everyone, however. For starters, they come in different formats, ranging from large, formal meetings to smaller “living-room” get-togethers. If you don’t like the first group you find, it’s worth looking for one that suits you better. If you can’t find a group you like in your area, consider starting one. If you are unsatisfied with the available options, you’re probably not the only one feeling that way.

Parkinson’s Support Group San Diego