Parkinsons Movement Disorder And Alliance
- Membership fee: Free
- Structure:In-person support groups, virtual Zoom support groups, chat forums/message boards
- Details: Offers both in-person and virtual support groups, educational videos and resources, and support is available for care partners
- Things to do: A survey needs to be completed first before you can participate in the online community
The Parkinsons Movement Disorder and Alliance is a nonprofit organization that focuses on characteristics like empathy, creativity, resiliency, and shared learning.
It also has a wealth of support and educational services. Aside from online programming and Zoom support groups, this organization also offers various in-person support groups located throughout the country.
Additionally, the organization features numerous educational programs like “Lunch with Docs,” in which individuals can meet with a movement disorder specialist virtually over lunch from the comfort of their own home.
There are free workshops across the country called In Sync for supporting and teaching people interested in developing their skills as a support group leader.
There, people can learn skills and build confidence in designing and leading their own support group for Parkinsons disease or other movement disorders. Leadership experts and healthcare professionals also provide guidance through informational presentations.
Parkie Place: Pj Parkinson’s Support Group Announces Outreach House
Pat Cherry gets assistance down the steps to the woodworking shop from PJ Parkinsons Support Group vice president Isabell Senft-Daniel July 13 at the Outreach House provided to the group by Fairview United Methodist Church.
Fairview United Methodist Church Senior Pastor Mickey Rainwater talks about why the church is offering the PJ Parkinsons Support Group of Blount County space where the Parkies can socialize and participate in activities such as art and woodworking.
Stephen Swanger talks with fellow Parkies Richard Arr and Pat Cherry about art July 13 at the Outreach House for PJ Parkinsons Support Group members in Maryville.
Volunteer Emory Swanger and Jim Huffstetler, a member of the PJ Parkinsons Support Group, sand a wooden angel July 13 in the woodworking shop at the outreach house for support group members.
Stephen Swanger talks about art with members of the PJ Parkinsons Support Group.
Parkie Place. Thats what you could call the new outreach house for local Parkies, the 80-plus members of the PJ Parkinsons Support Group of Blount County.
Fairviews senior pastor, Mickey Rainwater, explained that the property was purchased with an eye toward future community ministries.
Pj Parkinsons Supports Over 300 Area Patients
Isabell Senft-Daniel says Parkinsons is the fastest growing neurological disease in the world and that theres still no cure for it. She is the executive director of the support group PJ Parkinsons, which supports more than 300 people and their families in Knox and five surrounding counties.
Yesterday, Senft-Daniel spoke to the Rotary Club of Farragut, and her passion for those who have this disease came across loudly and clearly. Parkinsons people are really funny and we call this the snowflake disease because every case and person who has it is different.
Parkinsons is a progressive nervous system disorder that affects movement. Symptoms usually start gradually, sometimes with a barely noticeable tremor in just one hand. Other symptoms she noted are muscle and joint stiffness, loss of smell, sleeping and speech problems, drooling and basic mobility issues.
She added that the causes of Parkinsons are genetic and linked to chemicals, primarily pesticides.
The groups first meeting in 2014 attracted approximately 40 people. We were expecting maybe four or five people and when 40 showed up we knew there was a need, she said. Today, she manages seven support groups that meet monthly. Were effective because we are doing grassroots work. For seven years she was the volunteer leader of the group and became its executive director two years ago.
Read Also: What Causes Parkinson’s Syndrome
Pj Parkinsons Support Group Of Blount County
FORM 990-EZ, PART I I I , PRIMARY EXEMPT PURPOSE – TO BRING AWARENESS OF
12748 Kingston Pike Ste 204
Farragut, TN 37934 United States
This organization is required to file an IRS Form 990 or 990-EZ.
Sign in or create an account to view Form 990 for 2018, 2017 and 2016.
Thanks To Our Educational Sponsors
Thanks to East Tennessee Foundation for supporting our
COVID-19 Stay Home Stay Safe Project
Our goal is to provide support, resources, and advocacy to those living with Parkinson’s disease or caring for a loved one impacted by Parkinson’s within our community and surrounding counties.
Our Commitment for Diversity, Equity, and Inclusion
We have a commitment to remove barriers to care and ensure that information and resources are accessible.
Make life better for families affected by Parkinson’s Disease, here at home, and around the World.
No one battling Parkinson’s disease should do it alone. We serve to aid in early diagnosis and improve the lives of those directly impacted by Parkinson’s disease and their caregivers.
New! Live Events!
In order to continue to provide support and vital information, we are pleased to announce we’re offering a full schedule of online group meetings and informational webinars with Parkinson’s experts.
Parkinson’s disease symptoms are different for different people. Some are hard for even doctors to detect. Others are obvious even to an untrained eye. Visit a movement disorder specialist if you think you’re experiencing Parkinson’s symptoms.
Also Check: What Us Parkinson’s Disease
The Walk/5k Run For Parkinson’s
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Dailystrength Parkinsons Disease Support Group
- Details: Easy-to-use interface, small and intimate support group, and provides access to doctors
- Things to consider: It’s not a very active group
The DailyStrength Parkinsons Disease Support Group is a free and welcoming online support community with more than 400 members and 3,000 posts.
The mission of the group is centered around empowering and inspiring each other to overcome PD-related and life challenges.
Overall, the DailyStrength website is easy to navigate, and registration is straightforward and quick. Posts are informational, practical, and thoughtful. This is, perhaps, a good place to start for people looking for a smaller, more intimate online support group that is not overwhelming or associated with a national organization.
Even though the site is not moderated, to keep the support group safe and positive, DailyStrength has a set of guidelines that the members are asked to follow.
Recommended Reading: Music And Parkinson’s Gait
Right At Homes Trained Care Experts Can Help
If you are one of the 1 million Americans with this chronic condition, you know that symptoms generally develop slowly over the years. Our goal is to be there for you as the disease progresses, providing as much or as little care as needed. Right at Homes specialized home care teams know just how to work with the muscle stiffness and tremors to help prevent frustration and falls. We also help individuals with Parkinsons disease stand strong with these beneficial caregiving services:
Peterson For Parkinson’s Support Groups
Active with Parkinson’s
PFP Care and Share – Small group for people with Parkinson’s
- Larry Yarborough
PFP Care Partners – Small group for those who support people with Parkinson’s
PFP Franklin Parkinson’s Support Group
PFP Mt. Juliet Parkinson’s Support Group
PFP Paris TN Support group
Midsouth PD – Memphis Foundation & SG
Murfreesboro Senior Center PD Support Group
Team Fox Young Professionals Parkinson’s Group
A Nonprofit 501 c 3 organization. EIN 26-4144151
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This Web site contains links to other Web sites that are maintained by third parties, including Web sites of other entities, each of which is independent of the Peterson Foundation for Parkinsons . PFP is not responsible for the contents of any third-party Web sites and shall not be liable for any claims or alleged damage or injury arising from the contents of such Web sites. Any links to other Web sites are provided as a convenience to you as a user of this website.
Also Check: Tardive Dyskinesia Vs Parkinson’s Disease
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