World Patient Safety Day Significance
We all fall sick and need medications and medical care at some point in our life. However, the same medications can do us more harm than good if they have been incorrectly stored, prescribed, dispensed, administered or monitored wrongly.
Unsafe medication practices and medication errors are leading causes of avoidable harm in health care across the world. Medication errors happen when weak medication systems and human factors such as staff fatigue or negligence, staff shortages and lack of training, affect the safety of the patient under medical supervision. This can result in severe patient harm, disability and even death. The ongoing COVID-19 pandemic, and the resultant burden on medical practitioners due to it, have also contributed significantly to the risk of medication errors and harms associated with it.
The day calls on the global medical fraternity to prevent and prioritize actions on, significant patient harm due to unsafe medication practices. The harm is most likely to happen due to polypharmacy and using medicines that are similar in looks and names instead of the authentic ones by mistake. Special care has to be taken during transitions of care, failing which result in significant harm to patient safety.
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We Take A Look Inside The Parr
World Parkinsons Day is April 11th, marking the birthday of Dr. J Parkinson, who first described the condition in 1817. Today Parkinsons Disease is the second most common neurodegenerative condition, with more than six million people diagnosed worldwide . The cause of Parkinsons is the rapid death of dopamine cells in the brain, leading to slowness of movement, rigidity of the body, and muscle tremors . These involuntary movements, called dyskinesia, greatly affect the day-to-day lives of people diagnosed with Parkinson’s.
This World Parkinsons Day, were raising awareness for Parkinsons Disease research with a look inside the Parr-Brownlie Laboratory.
Dr. Louise Parr-Brownlie is a neurophysiologist passionate about Parkinsons Disease research and outreach.
As an Associate Professor, she teaches in the undergraduate neuroscience program at the University of Otago and leads a research group investigating the neural control of movement. As the Director of the New Zealand National Science Challenge for Ageing Well , Louise champions indigenous healthcare and funding research that improves health and wellbeing for aging populations.
Louise and her team are focused on improving the quality of life for those with the diagnosis. Her goal is to assist people with Parkinsons Disease to live independently, move more easily, and maintain their standard of living.
What Research Is Being Taken Into Parkinsons Disease
Research into Parkinsons Disease broadly falls into two categories: genetic and environment research.
Genetic research into Parkinsons Disease has so far identified 9 genes linked to this condition. The parkin gene is the gene most commonly associated with Parkinsons Disease. Scientific research aims to determine which factors are involved in the creation, maintenance and destruction of the dopamine producing neurons.
Environment research into Parkinsons Disease focuses on possible environmental factors associated with Parkinsons Disease.
Posted on 11/04/2022
Parkinsons Awareness Week 2022 is underway and theres a whole host of educational activities for you to learn about Parkinsons Disease.
Established by Parkinsons UK, this special initiative intends to raise awareness and support those living with Parkinsons disease and their loved ones.
At ND Care & Support, we feel its important to be aware of the facts about Parkinsons disease and theres no better time to familiarise yourself with them than now.
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The Compassion Of James Parkinson’s
In 1817, James Parkinson published “An Essay On The Shaking Palsy.” When you read about James Parkinson, you notice his intelligence and compassion for helping others:
“James Parkinson worked as a general practitioner in the semi-urban hamlet of Hoxton, northeast of the City of London, where he had been born, and where he lived all his life. In addition to his daily work in general practice, James Parkinson was a public health reformer, an advocate of infection control in London workhouses, a medical attendant to a Hoxton madhouse, a writer of political pamphlets and childrens stories, a geologist and fossilist, and the author of a textbook of chemistry.”1
The essay itself very carefully and accurately portrays Parkinsons disease, which he called shaking palsy. He did not name the disorder after himself.
Dr. Jean-Martin Charcot suggested that the Parkinsons name deserved to be linked to the disorder that he had so accurately described thus, “Maladie de Parkinson” .
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How World Patient Safety Day Is Celebrated
- A series of events, seminars, webinars and other activities promoting medication safety is held globally by the who on this day
- WHO produces a number of medication safety solutions and technical products every year to help medical practitioners minimize risk to the patient under their care.
- The plan is to light up Genevas Jet dEau in orange colour as part of the World Patient Safety Day 2022 celebration
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Dr Guruprasad A Neurologist At Manipal Hospital Bangalore Said That Pd Is Not A Disease Related To Ones Immunity Level This Disease Is Associated With Genetic Predisposition
World Parkinsons Day is celebrated on 11th April. The theme of World Parkinsons Day 2022 is Integrated Health Care is the second most common neurodegenerative disorder in people over the age of 60. A 2018 study by the Global Burden of Disease states that the number of patients with PD has more than doubled in the past two decades. While there were 2.5 million PD patients in 1990, their number has increased to 6.1 million in 2016. In India 0.5 percent per one lakh population are suffering from it. In other words, there are 10-12 lakh Parkinsons disease patients in the country.
Dr Guruprasad, a neurologist at Manipal Hospital, Bangalore, said that PD is not a disease related to ones immunity level. This disease is associated with genetic predisposition. Dr Guruprasad explained, It is a neurological condition in which age is a risk-factor. There have been some studies in countries like the UK that show how the environment can affect disease, but it is a genetic predisposition to have some effect on the environment in which a person lives.
This disease is usually seen in people of the age of 60.
According to Dr. Guruprasad, old age is one of the main causes of PD. An old mind is mainly responsible for this. With age, the brain starts to weaken. Some amount of protein is also collected and broken down in metabolism. Together with genetics, all these factors cause PD after an age.
early symptoms of PD
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Health Benefit Package 2022 Launched
Recently, Health Benefit Package 2022 was launched by the National Health Authority under Ayushman Bharat Pradhan Mantri Jan Arogya Yojana.
Important point:
- The package was launched in a two-day meeting held at Mahabalipuram, Tamil Nadu with the objective of reviewing AB-PMJAY in southern states and union territories.
- The title of this review meeting was kept Ayushman Sangam.
- In this new edition of the National Health Authoritys Health Benefit Package, 365 new procedures have been included, taking the total number to 1,949.
- Under the scheme, differential pricing has been introduced, depending on the type of city and level of care.
- A new initiative of the Patient Classification System was also announced by the NHA.
- Now patient classification will be done through International Classification of Health Interventions and International Classification of Diseases for AB-PMJAY.
Telling Your Story: An Easy Step
Members of Congress and their staff want to know what is important to you and how to best represent you. Your representative and senators need to learn about what it is like living with Parkinsons or loving or knowing someone with Parkinsons so they can understand why it is important to support The National Plan to End Parkinsons Act.
Here is an easy way to help you tell your story to members of Congress and their staff:
- Hello, my name is ____________________, and I live in _____________.
- I would like to ask you to support The National Plan to End Parkinsons Act , and Id like to start off by telling you why its important and so personal to me, if thats okay with you and you have the time.
- I was diagnosed/My loved one was diagnosed with Parkinsons disease in _____. Here is a little bit of information about the impact Parkinsons has had on my/their life:
- Impact at home with daily tasks
- Impact on family and friends
- Impact on finances
- Impact on other areas of life that you wish to share
I hope you will help contribute to a cure by co-sponsoring this legislation.
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Find Parkinsons Resources Near You
The American Parkinson Disease Association works tirelessly every day to support and empower anyone who is impacted by Parkinsons disease . Our nationwide network provides information and referral, education and support programs, health and wellness activities, and other events to facilitate a better quality of life for the PD community, while also funding vital research. It is this grassroots structure that distinguishes APDA from other organizations serving people with PD. We are here to help you and your loved ones every step of the way.
Just Because I Dont Feel Good Doesnt Mean I Cant Play
A number of locations in the United Kingdom and Ireland will be lit in blue to raise greater awareness about the disease, and people are encouraged to do so at their homes.
Starting on April 11, PD Warrior, a rehab program and online community platform for Parkinsons, will host its fifth INSIGHT global conference. The online event, titled Living Brave with Parkinsons, will begin at 11:30 a.m. ET and continue for 48 hours. Attending INSIGHT is free to all for the first two days. The third day carries a fee and is intended for healthcare professionals.
The theme of this years awareness month for the Parkinsons Foundation is #FutureOfPD, focusing on research, care, and life planning. Accordingly, the nonprofit is asking people to participate in the PD GENEration: Mapping the Future of Parkinsons Disease, a genetic testing research initiative. The foundation encourages patients, family, friends, and caregivers to petition local government, post on social media, email their contacts, and submit letters to the editor and press releases.
A number of Moving Day walks, events throughout the U.S. that aim to bring more awareness and funding for the disease, will occur throughout April, including in Baton Rouge, Louisiana Charleston, South CarolinaSan Francisco, California and San Antonio, Texas. Other walk locations and a full list of Parkinsons Foundation events can be found on its website.
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Join Us For Day Of Giving On World Parkinson’s Day
Rally your friends and family to take part in The Michael J. Fox Foundation’s Day of Giving and make a donation to support groundbreaking research. By coming together on one day, everyone can amplify their impact and propel treatments forward faster.
The research field and Parkinsons drug development pipeline are packed with more potential than ever before. The Foundation is focused on leveraging this momentum to translate the science into real results for people living with Parkinsons. More funding is needed to drive new and improved treatments to alleviate Parkinsons symptoms and slow or stop the disease altogether. Will you help us put Parkinsons in the past?
Donate now and join the conversation online using #ParkinsonsAwarenessMonth.Add Day of Giving to Your Calendar!
Make A Donation To A Parkinsons Disease Cause
Those who might not have the time to organize a full event can still give a donation through a number of different viable organizations that promote the cause to fight against Parkinsons Disease. Check out the information and opportunities for some of these organizations:
- The Michael J. Fox Foundation for Parkinsons Research. Set up by the famous actor who has the disease, this foundation promotes research to slow the progression and ease symptoms for those with PD.
- Parkinsons Foundation. This organization works to improve care and advance research toward a cure for Parkinsons Disease.
- European Parkinsons Disease Association . Working toward ensuring that all people with Parkinsons live a full life while supporting the search for a cure.
- American Parkinsons Disease Association. The largest grassroots organization dedicated to fighting Parkinsons Disease.
No matter what activities are chosen, remember that this day is dedicated to an open awareness of this disease as well as making an effort to help support those groups and organizations that are intent on eradicating or controlling this illness. So on World Parkinsons Day, make sure to talk about it to those people in life, and encourage them to join in on the fight!
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How To Observe #worldparkinsonsday
Many health organizations and support groups hold a variety of events on this day. These events include fundraisers for Parkinsons disease research, webinars, informational displays, and Art for Parkinsons workshops.
To participate:
- Do something special for someone with Parkinsons disease or their caregiver.
- Learn about famous people with Parkinsons, such as Muhammad Ali, Neil Diamond, Michael J. Fox, Billy Graham, and Linda Ronstadt.
- Watch a film about Parkinsons, such as Never Steady Never Still, Kinetics, and Ride with Larry.
- If you know someone who shows early signs of Parkinsons disease, encourage them to see their doctor.
- Spread awareness for this day on social media by posting an image of a red tulip along with #WorldParkinsonsDay.
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The Following Are Some Of The Challenges That Parkinsons Patients Symptoms
Problems with thinking, memory, judgment, and problem-solving are all examples of cognitive issues. Patients typically become forgetful and have difficulties finding words, making decisions, experiencing brain fog, and being unable to focus.
Parkinsons disease is a muscle movement disorder that affects the muscles that help you swallow. If the symptoms are neglected, a condition known as dysphagia may develop . Voice changes, coughing, and even choking might occur as a result of this.
Sleep issues: This disease can cause a slew of sleep issues. Sleep apnea, daytime tiredness, nightmares, difficulty falling or staying asleep, and inability to get a good nights sleep after getting up are all possible problems.
Psychological issues: People with Parkinsons disease who have had it for a long period often show signs of depression, anxiety, stress, irritability, frustration, agitation, violence, restlessness, and impatience, as well as low self-esteem. As a result, Dr. Pai emphasizes the importance of counseling and timely treatment.
Sensory issues: People with Parkinsons disease frequently experience loss of smell, eyesight abnormalities, aches and pains, and balance issues. Neglecting the illness might cause major disruptions in daily living.
Bladder problems: The condition weakens the muscles in the digestive tract, causing digestion to slow and constipation to occurring. In addition, they will be unable to pass urine.
This Event Begins In 246 Days Time
Parkinsons Awareness Week aims to raise awareness about this potentially devastating condition.
During this week, individuals are encouraged to hold their own event with family, friends and colleagues. These events support the awareness and research work for Parkinsons UK .
Funding is needed for vital research work into the causes and treatments of Parkinsons Disease. Parkinsons UK also works to support those living day to day with this condition.
Each year Parkinsons Awareness Week focuses on a different aspect of this condition. For example during 2014, the main focus was Control, which raised awareness about how people with this disease control and live with the symptoms and progressive nature of Parkinsons.
Another focus of Parkinsons Disease Awareness Week is to increase media coverage of this condition. The greater the coverage the more people know what it is like to live or care for somebody with Parkinsons Disease.
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What Causes Parkinsons Disease
Parkinsons Disease arises due to a loss of nerve cells in the substantia nigra a part of the brain affected by Parkinsons Disease. Nerve cells in the substantia nigra produce the chemical dopamine, a neurotransmitter, which transmits nerve impulses and allows signals to be sent to other areas of the brain which coordinate movement. A reduction in these dopamine producing cells causes reduced function in the areas of the brain responsible for coordinating movement. About an 80% reduction in dopamine will bring on the symptoms of Parkinsons Disease.
What are the symptoms of Parkinsons Disease?
Motor symptoms of Parkinsons Disease include tremor, slowness of movement and stiffness or rigidity of muscles.
Non motor symptoms of Parkinsons Disease may also be experienced. These include constipation, depression, sleep disturbances and urinary urgency.
These are often differences in severity and the type of symptoms displayed between individuals.