Tuesday, July 16, 2024

American Parkinson Disease Association Charity Rating

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Parkinsonâs Foundation Earns 4-Star Rating from Charity Navigator

8. Partners in Parkinsons has a program where you can be connected to an advocate who will listen, offer advice and support to patients and caregivers at no cost. This is just one of the services you can find through Partners in Parkinsons.

9. Caring.com has a support group for caregivers, family and friends of those with Parkinsons disease. No subject is off-limits in this forum.

10. The National Parkinson Foundation has a site specifically geared to caregivers. They help carers navigate the emotional, financial, and physical challenges they may face caring for someone with Parkinsons.

Having resources that help keep you informed, and offer support and encouragement to patients and their loved ones is so important. These are just 10 of the hundreds of organizations out there that are available to you. You can search online or visit your local library for more.

MORE: Eleven facts about Parkinsons disease you may not know.

Parkinsons News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Treating Parkinsons With Complementary Medicine

Complementary medicine incorporates many different practices that can be used alongside conventional medicine to try to ease PD symptoms. There is typically not as much rigorous data to support the use of complementary medicine techniques, as compared to conventional medicine, but many patients find them helpful. These include yoga and massage.

Brain Diseases From A

Brain disease comes in many different forms and goes by many different names. It affects the lives of one in six people worldwide, in addition to the lives of their family, friends, and caregivers. Learn more about the diseases and disorders that affect the brain and nervous system, including ALS, dementia, brain tumors, headache, stroke, and more.


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About The American Parkinson Disease Association

American Parkinson Disease Association, located in Concord, NY, is a not-for-profit organization with a philanthropic goal. The mission of the Charity is to benefit the Richmond County area and the general public through its work. The Charity accepts donations from the public and offers volunteering options.

You may contact Non-Profit Charitable organizations for questions about:

  • Making donations and volunteering
  • Donation and contribution tax deductions
  • Concord Charity ratings and rankings

Cure One Cure Many Award

Dance for PD » Dance at home

The American Brain Foundations Cure One, Cure Many Award supports breakthrough research in brain disease. The award provides large-scale, catalyst funding to the worlds top researchers who are pursuing the most innovative, cross-cutting approaches to finding diagnoses, treatments, and cures for brain disease. The award targets research topics that cut across multiple disease areas.


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Working To Find Cures

The Next Generation Research Grants program funds and supports innovative investigations by the best and brightest early-career researchers working today to find the cures of tomorrow. We support their research across a broad spectrum of the brain and nervous system as they tackle things like identifying and treating ALS, developing treatments for Parkinsons disease, predicting outcomes for TBI patients, and more.


Take Action Get Involved Learn More

Since 1995, Parkinson Foundation Western Pennsylvania has served to enrich and engage, educate and empower individuals and their families during this challenging, overwhelming and often isolating period. PFWPA is your resource for information, programs, support and connection in Western PA. The organization continues to build and maintain a network of resources connecting those impacted by Parkinsons disease to local resources in their area. The information shared is specific to the individuals challenges they are facing.

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Assembling Your Care Team

Assembling a team that will provide you with physical and emotional support and adapt to your needs over time is one of the best ways to remain healthy. Parkinsons disease is complex and requires an interdisciplinary approach to care. The care team may include, but is not limited to:

  • Movement disorder specialist
  • Rehabilitation specialists including physical, occupational, and speech therapists
  • Nurse

This Question Hasn’t Been Solved Yet

Diagnosed with Parkinson’s Disease: Now What? Managing the First Few Years with Parkinson’s

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The Importance Of Rehabilitation In Pd

Exercise and physical therapy are known to improve motor and non-motor symptoms of PD, which is highlighted by several meta-analyses underline the importance and positive effects of physiotherapy on motor symptoms. Significant improvements of gait, functional mobility, balance, motor symptoms, increased muscle strength, and reduced falls in PD patients who received physical therapy in short- and long-term follow-ups ranging from 1 to 12 months have been shown,,,. Another meta-analysis, covering 20 randomized controlled trials, showed significant improvement of non-motor symptoms in PD including neurocognitive manifestations, mood disorders, sleep disorders, and fatigue by physical therapy. Trials investigating alternative sports, such as Tai Chi and dancing, revealed similar benefits on motor- and non-motor symptoms of PD,,,.

Huntingtons Disease Society Of America Receives 4

For Immediate ReleaseContact: Christopher Cosentino, Director of Marketing & CommunicationsPhone: 242-1968 x229Email: [email protected]

New York, NY On December 1st, the Huntingtons Disease Society of America received a 4-star rating from Charity Navigator. Charity Navigator is recognized as Americas top evaluator of nonprofit organizations.

On behalf of Charity Navigator, I wish to congratulate Huntingtons Disease Society of America on achieving our coveted 4-star rating for sound fiscal management and commitment to accountability and transparency, said Michael Thatcher, Charity Navigators President and CEO. Receiving four out of a possible four stars indicates that HDSA adheres to good governance and other best practices that minimize the chance of unethical activities and consistently executes its mission in a fiscally responsible way. Approximately a quarter of the charities we evaluate have received our highest rating, indicating that Huntingtons Disease Society of America outperforms most other charities in America.

Were honored to receive this rating as confirmation of the high ethics that we hold ourselves to in our faithful execution of our mission to improve the lives of everyone affected by HD and their families, said Louise Vetter, HDSAs CEO. This recognition would not be possible without the commitment to excellence exhibited by all of the volunteers throughout HDSA. Their dedication is what really sets us apart.

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Recommendations For Rehabilitation Measures During The Covid

The Centers for Disease Control and Prevention and the Centers for Medicare and Medicaid Services recommend to curb the spreading of COVID-19 and reschedule elective procedures and treatments. Healthcare professionals were asked to resort to telemedicine for all other, either time-sensitive or functionally disabling, indications. This led to a quick implementation of telemedicine to replace routine or emergency clinical visits with remote check-ups via telephone or internet to extend care into the patients homes. While the chronic movement restrictions caused by PD do not meet the criteria for time-sensitive indications , they qualify as functionally disabling.

Continuing with adapted physical activity and rehabilitation is therefore strongly recommended with either on-site measures, including reduction of patient count, prohibition of escorts, symptoms screening, physical distancing, and personal protective equipment, or via the increasing opportunity of telemedicine and telerehabilitation,,,,,. Ideally, a regime of moderate-intensity exercise at home 57 days per week is recommended, wherever possible outside,,.


Table 1 Overview of telerehabilitation methods.

Virtual reality

Motivational tools


Icipating In Clinical Trials

APDA Information &  Referral Centers

Clinical trials and their participants have revolutionized Parkinsons treatment, and have changed the lives dramatically of those affected. They have helped make available many new treatments in addition to improving the delivery methods of medications and new deep brain stimulation techniques.

Clinical trials are essential to the future of Parkinsons research, and APDA is committed to this vital effort.

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Outlook Of Ongoing App Projects

The mobile apps Charity Miles and Parkinsons Moving Day encourage PD patients to stay active by donating to PD research according to their walking distances. This effectively serves two purposes in one: immediate benefit for the individual through exercise and long-term influence by funding research,. The APDA Symptom Tracker app by the American Parkinson Disease Association eases the increasingly vital remote care by letting PD patients record their symptoms to discuss their report with their neurologist at their next telehealth appointment. Parkinson mPower 2, which has already been validated by an observational study, not only lets PD patients record their symptoms, but also gives them the opportunity to make their data available for scientific study purposes,,. Parkinson Exercises Mobile, PD Warrior, 9zest Parkinsons Therapy & Exercises, and Beats Medical Parkinsons Treat offer a combination of motor, speech, and dexterity exercises,,,. In the app Yoga against Parkinsons, PD patients are guided through selected yoga postures that are considered beneficial for postural control and greater flexibility, as well as relaxation. Voice analyst helps to correct hypophonia by analysing the speech of PD patients in real-time.


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