Wednesday, April 24, 2024

Parkinson’s Freezing And Driving

Treating Freezing Of Gait For People With Parkinsons

Cycling for Freezing Gait in Parkinson’s Disease | NEJM

Freezing of gait episodes often occur when a person is under-medicated and can improve with increased amounts of their PD meds, usually carbidopa/levodopa. However, as mentioned earlier, the brain abnormalities that lead to freezing of gait are very complex, so giving more dopaminergic medication is only part of the solution. In fact, some people have what is referred to as ON freezing. This means that freezing of gait episodes occur even when other PD symptoms are well treated with their medication regimen.

Cueing, or the introduction of an external sensory stimulus to facilitate movement, has been identified as a way to break a freezing episode. Terry Ellis, PhD, PT, NCS, Director of the APDA National Rehabilitation Resource Center at Boston University, and Tami DeAngelis, PT, GCS, compiled this list of cues that can be used to get out of a freezing episode:

How Does Parkinsons Affect Your Driving

There is no one-size-fits-all answer for how long you can drive with Parkinsons or how your condition is affecting your driving now. Many people can drive long after they first receive a diagnosis, while others will need to stop driving sooner.

It depends on:

  • the progression of the disease
  • how severe the symptoms are

Some Parkinsons symptoms that interfere with safe driving are:

  • tremors, or uncontrollable shaking, in the hands and arms
  • lack of coordination
  • daytime sleepiness, often due to nighttime sleeping issues
  • drowsiness, dizziness, or blurred vision resulting from Parkinsons medications

Because your symptoms may be more severe one day and less severe the next day, it may be riskier to drive than it might seem.

Even the earliest stages of Parkinsons can affect a persons driving. That said, people who arent experiencing cognitive impairments might be able to drive for many years.

A 2018 review of studies found that in 50 studies, people with Parkinsons were 6 times more likely to fail an on-the-road driving test compared with people who did not have the condition. Those with Parkinsons were also more than 2 1/2 times as likely to crash in a simulated test.

Here are some tips to stay safe while youre driving:

  • Eliminate distractions such as your phone, the radio, and eating or drinking.
  • Dont drive when you are tired or your medication is wearing off.
  • If you have reduced vision in lower-light situations, drive during the day.
  • Stick to familiar routes.

Is Freezing Related To The Intake Of Dopaminergic Medication

Some people with Parkinsons have on and off periods, when they switch from being able to move when their medication level is higher to being unable to move without difficulty when their medication level is low . Many people notice that freezing is worse when their medication level is low, when they are off. But freezing is not the same as being on or off.

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Ways To Monitor Driving Skills Of Parkinsons Disease Patients

Even if any independent evaluation highlights a patient may drive safely, it is essential to continue with monitoring the driving skills for detection of problems, which may result in any severe accident. For this, one should check key warning signs-

  • Driving extremely slowly
  • Getting lost while driving on a familiar route
  • Difficulty in executing turns and changes of lanes
  • Drifting to other traffic lanes or driving on the wrong side in street
  • Forgetting to give signals or signal in an incorrect way
  • Ignoring other vehicles, road hazards and pedestrians
  • Parking in a no parking area or in an incorrect manner
  • Feeling drowsiness or sleepy behind their wheels
  • Frequently getting tickets or penalties for violating traffic rules
  • Involving in nearby miss situations, accidents and fender benders.

Any of these signs may indicate the time to stop driving cars for parkinsons disease patients. It is very much essential to discuss the concerns with patients and their doctors.

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Applying For An Accessible Parking Permit

Freezing in Parkinson

You can apply as a driver, a passenger or as both.

The application process can be completed online and requires an assessment by a medical practitioner. For those without internet or mobile phone access, a paper-based version of the application can be obtained from your local council.

To learn more about your eligibility and to start the application process, visit the Accessible Parking website.

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Lack Of Balance And Coordination

Parkinsons disease can also cause a person to experience poor balance and coordination. It may also make it difficult for a person to keep their balance or begin to move when they have been sitting still for a period of time.

If a person has poor balance and coordination, this can impact their ability to safely drive a car.

Driving With Parkinsons Disease

Parkinsons disease is a progressive condition that may affect someones ability to drive safely. Dr Wyn Parry, DVLAs Senior Medical Adviser, tells us more about driving with this condition.

I joined DVLA as Senior Medical Adviser after thirty years in the NHS. Its my job to advise on how certain medical conditions can affect someones ability to drive. After blogging last year about driving with diabetes, this time Id like to focus on driving with Parkinsons disease.

Parkinsons disease affects the nervous system and may affect the muscles, causing movement problems. In some circumstances, it can even affect the functions of the brain.

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When To Stop Driving A Car With Parkinsons Disease

People should stop driving if their Parkinsons disease symptoms and medications make it unsafe to drive.

The Parkinsons Foundation suggests that a person follows some of the following steps to determine if it is still safe for them to drive:

  • Another opinion: Ask a friend or family member for an honest opinion about their ability to drive.
  • Driving assessment: Take a driving assessment from their local Department of Motor Vehicles .
  • Driving Rehabilitation Specialist : Ask a doctor to recommend a DRS assessment. A DRS can provide an on-road and off-road test to see how much Parkinsons disease affects the persons driving. A DRS can also offer driving skill improvement training to those who can still drive safely.

When To Give Up Driving And Who Decides

Managing Parkinsonâs: What Is Freezing?

The decision to give up driving is much less well-defined than the decision to get a license. States and individual Departments of Motor Vehicles vary in terms of how they handle license renewal for older drivers. Most people do not want to be told they cant drive anymore. And no one wants to be the bad guy who tells a person that they are not driving safely. But if there are concerns, it is important to start these conversations early. The decision to stop driving can evolve over time, rather than being made suddenly.

A driving test can help you and your family make a decision about giving up driving while avoiding the tension that comes from involving loved ones. If and when the decision is made to stop driving, there are programs available to help you get where you need to go:

  • Call the ElderCare Locator at 1-800-677-1116 and ask for your local Office on Aging, or go to their website at www.eldercare.gov and search under the topic Transportation.
  • Senior centers, religious organizations, and other local service groups often offer transportation services for older adults in the community.

You may also work out a schedule to get rides with family and friends or consider taxis or ride-sharing services like Lyft and Uber.

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What Symptoms Of Pd May Interfere With The Ability To Drive Safely

Driving is a complex task that requires vision, appropriate motor skills, and higher levels of cognitive function to carry out safely. The most obvious symptoms that can impact driving ability for people with PD are typically motor difficulties such as resting tremors, rigid movements and difficulty maintaining stable posture, which may make it difficult to operate a vehicle safely. What is less obvious, and often more concerning, is that certain non-motor difficulties that can accompany PD may also interfere with driving. These include decreased contrast sensitivity which limits a persons ability to see things in the dark, decreased proprioception, which impairs a persons ability to know where their body is in space , decreased visual spatial skills, which may affect the ability to know how the car is positioned on the road, and difficulties with cognitive function which can impact memory, processing speed, attention, and problem solving. In our own day-to-day evaluations with drivers who have PD, we often find that it is the cognitive impairment that most impacts driving. Drowsiness that accompanies later stages of PD and medication side effects can also impact the ability to drive safely. Non-motor symptoms are less evident than motor symptoms and have been shown to be a more serious risk to driving safety in some people with PD.

Maintaining Optimal Driving Safety

  • Eliminate driving distractions. Listening to the radio, talking on a cell phone, eating or drinking while driving all affect concentration and reduce safety.
  • Avoid nighttime driving if you have vision changes in reduced light settings.
  • Do not drive when you feel fatigued, when your medication is wearing off, or when starting a new medicine.
  • Choose familiar, comfortable routes and non-peak driving hours. Consider using a GPS system for directions.
  • Maintain good posture. Reduce back strain with a lumbar support cushion.
  • Do regular neck and trunk stretching exercises. Mobility of your neck is necessary when backing up or watching for traffic and other obstacles.
  • Consider taking a defensive driving course. AAA, AARP and other agencies offer these classes, and taking one may also lower your auto insurance premium.
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    About The Michael J Fox Foundation For Parkinsons Research

    As the worlds largest nonprofit funder of Parkinsons research, The Michael J. Fox Foundation is dedicated to accelerating a cure for Parkinsons disease and improved therapies for those living with the condition today. The Foundation pursues its goals through an aggressively funded, highly targeted research program coupled with active global engagement of scientists, Parkinsons patients, business leaders, clinical trial participants, donors and volunteers.

    How Can I Talk To A Loved One About The Progression Of Their Driving

    Parkinson

    The ability to drive is an important component of self-esteem and independence for many.

    Your loved one may therefore get very emotional once approached about the progression of their driving. You can first acknowledge their good behaviours and then share your concerns without making them feel guilty.

    You and your loved one can determine a transitioning schedule together based on the appearance of warning signs indicating that they should stop driving.

    If your loved one shows resistance, talk about potential risks for them and others if they continue driving unsafely. Finally, talk about it with their care team to get help.

    With time, you may no longer be able to drive. You can use alternative means of transportation such as:

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    Strategies To Combat Freezing In Parkinsons Patients

    Freezing is when an individual suddenly feels like theyre glued to the ground. Parkinsons disease patients often experience freezing during the late stages of the disease. It can occur while the person is in motion or after theyve been stationary and then attempt to move. Its associated with complicated movements like dodging obstacles or getting up from a chair.

    The loss of automatic motor skills affects ones sense of control and even their safety, as about 38 percent of Parkinsons patients fall each year. Tracking when your struggles occur can help you to manage them, allowing you to challenge how frequently freezing occurs.

    My Parkinsons Story: Driving

    This 9-minute video alternates between an interview with a man and his wife and several specialists. The man and his wife share how he gave up his drivers license due to Parkinsons symptoms and how he is adjusting. The specialists share how Parkinsons symptoms affect a persons ability to drive, and how driving and cognitive assessments can determine a persons fitness to drive.

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    Standardising Definitions Assessments And Measurements

    One of the major challenges that needs to be addressed before any successful modeling approach could be implemented would be to standardise the definitions, assessments, and measurements used by researchers in the field. To achieve these goals, a coordinated approach that is overseen by an international consortium who can harmonise research efforts with a pre-determined common goal, is needed.

    How Dvla Makes A Decision About Drivers With Parkinsons

    Parkinson’s freezing

    Once DVLA is told about a driver with Parkinsons well ask the driver for information about their condition. Well also talk to the healthcare professionals involved in their diagnosis and treatment – like their GP, consultant or specialist nurse.

    Information we usually ask for includes details about how long the individual has had Parkinsons, the level of deterioration and any changes in treatment. All this information is crucial for us to be able to make an informed decision on whether they can continue to drive safely.

    Where possible we always try to offer a driving licence to a driver with a medical condition, but only if its safe to do so. Our priority is to always maintain road safety for the driver and other road users.

    For many drivers with medical conditions like Parkinsons, we might offer a short-term driving licence. This could be for one or three years. We tend to start going down this route when a drivers condition begins to deteriorate a longer term licence may be offered earlier on, with subsequent licence periods getting shorter over time.

    For more information about driving with Parkinsons

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    How Can A Friend Or Family Member Help

    If your loved one is frozen, remain calm. Wait patiently for several seconds to see if the episode passes and be sure not to rush or push the individual during a freezing episode. If the person is unable to move without assistance, try placing your foot perpendicular to the person and ask them to step over it. You can encourage the individual to try marching or counting, or to try some of the other tips mentioned above. If your loved one stays frozen, you can try to help rock them gently from side to side.

    Seniors And Driving: A Guide

    Comprehensive webpage covering causes of driving difficulties with age, warning signs of an unsafe elderly driver, professional assessments of driving safety, how the DMV can help ensure an older adult drives safely, how to have ‘the talk’ about giving up the keys, ways tohelp a senior transition from driving, transportation options for seniors who no longer drive, and top ridesharing options for seniors.

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    Do I Have To Inform My Car Insurance Of My Diagnosis

    You must inform your car insurance of your Parkinsons disease diagnosis. Let them know what information your doctor gave you to help them determine the best coverage for your specific situation. Failure to inform your insurance company of your diagnosis could invalidate your insurance policy.You also need to inform your insurer if any adaptations are made to your vehicle. Contact your car insurance provider to find out how to proceed. You can also shop around for insurance to compare coverage and prices.

    Can I Get A Disabled Parking Permit

    How to stop freezing with Parkinsons disease  Therapy Insights

    If you have trouble walking short distances, you may be eligible for a parking permit for people with disabilities.

    Talk to an SAAQ authorized health care professional. They will assess your situation and fill out the disabled parking permit application form if necessary. You will then need to send the form to the SAAQ

    The idea that you may one day have to stop driving can be difficult to accept, but being involved in an accident can have a serious impact on you and others.

    You and your loved ones can monitor your driving and regularly assess whether you should stop.

    Some signs that may be alarming:

    • Driving too slow
    • Stopping in traffic for no apparent reason
    • Non-compliance with road signs
    • Getting lost during a familiar route
    • Difficulty turning or changing lanes
    • Difficulty reading traffic signs or seeing traffic lights in time to react
    • Increased car insurance rate due to traffic violations or at-fault accidents
    • Problems responding to unexpected driving situations
    • Slow reaction to traffic lights
    • Several consecutive unsuccessful attempts to park the car
    • Tickets for traffic violations

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    Legal Obligations Insurance And Tax

    Your legal obligations will depend on the laws of the country in which you live. In many countries, your doctor will be obliged to carry out a regular fit to drive check.

    The most common heath-related driving laws in European countries are outlined below but you should always check on current legislation with your doctor or a suitably qualified member of your healthcare team.

  • Notify your national driver and vehicle licensing body that you have Parkinsons: they will advise you of the steps you need to take to retain your driving licence. This may involve contacting your doctor to confirm your fitness to drive, a medical examination or a driving test. Some countries may issue a licence for a fixed term, usually renewable provided your ability hasnt deteriorated sufficiently to make you unfit to drive.
  • Inform your insurance company: you should tell the company of any health change that may affect your driving. In most countries it is an offence to make a false statement or withhold information for the purposes of obtaining a certificate of motor insurance. Anyone who drives when considered unfit will invalidate their insurance cover.
  • Pd May Affect Cognitive Skills For Driving

    People with PD may experience a . These skills are used when driving in complex environments, when conversing with a passenger, and when navigating to unfamiliar destinations. During navigation, drivers split their attention between driving or paying attention to changes in the environment and looking for navigational signs. A driver with PD may make driving errors while navigating.

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