Deep Brain Stimulation And Parkinsons
This resource educates patients and care partners about deep brain stimulation surgery as a treatment option to help manage symptoms, provides practical tips for thinking about, undergoing and living with DBS, includes perspectives and voices from the patient and family community and shares the latest research and DBS devices available.
Planning For The Uncertain Future
Despite this, there are still things you can do to be prepared and plan ahead. For this discussion, I reached out to an expert on this topic, Eleonora Tornatore-Mikesh. Ms. Tornatore-Mikesh is President and CEO of CaringKind, an organization based in New York City that works to develop information, tools and training to support individuals and families affected by progressive neurological disease. She has spent her career working with those who are planning for the uncertain future and we asked Ms. Tornatore-Mikesh for her advice on navigating the future with a progressive neurological condition, like PD.
Q: Typically, when a person with PD or care partner asks the physician to explain what their progression of PD will be like, the physician typically answers Parkinsons disease is highly variable from person to person and we therefore cant predict what will happen to you. How do you deal with this uncertainty?
A: I tell people to rephrase what they are asking. Yes, it is not possible for a doctor to know exactly what will happen to you. Instead, turn it around and ask what you want to know in a positive light: I know disease progression is variable from person to person, but within the stage of disease that I am now, what can I do to improve my quality of life? What are my wellness opportunities?
Q: Do you have any tips for our families on how to live well in the face of an uncertain future?
Navigating Life As A Care Partner
Being a care partner for someone with Parkinsons disease has its rewards and challenges. Dr. Gilbert spoke with Greg, a care partner of nearly 20 years.
Taking care of someone with PD can be fulfilling and overwhelming at the same time. As someone who has been a long-term care partner for his partner Chad, Greg knows what this is like.
When Greg found out about his partners diagnosis, he wondered how his impatient tendencies would affect their relationship. Instead of pretending to be perfect, Greg points out that as a care partner, youre only human and negative emotions are nothing to be ashamed of.
Frustration, impatience its all normal as a human being and a partner, Greg says. Dont beat yourself up when you feel that way because youre just being a human being in a relationship.
Greg also emphasizes the importance of learning effective ways to communicate with someone living with PD. It is important to step back and communicate with that person, because theyre probably more frustrated than you are, Greg explains.
Understanding these things has helped their family live a rewarding life together. Greg and Chad, along with their 13-year-old son and two Great Danes, value their time together whether theyre traveling cross country or simply enjoying each others company.
It is important to step back and communicate with that person, because theyre probably more frustrated than you are. Greg
Don’t Miss: Dopaminergic Drugs For Parkinson’s Disease
Parkinson’s Disease And Diet
No single diet can treat Parkinson’s, but a healthy, balanced diet can improve well-being and ease certain non-motor symptoms. What you eat also may affect how well your medication works. This guide offers tips on what to include in your diet for general wellness, non-motor symptoms and medication benefit.
Life With The Neurological Condition Is Anything But Easy However The Real Battle That Gulshan Narang Fought Was Not With The Disorder Itself But To Find Acceptance In A Situation That Changed His Life Forever
Why me?, the niggling question that pervades ones sense of being when something catastrophic hits them out of the blue is seldom met with a satisfactory answer. So, at what point does this soul-destroying question transform into unconditional acceptance? The answer lies in Gulshan Narangs journey to finding acceptance in a situation he could barely make sense of.
At age 53, Gulshan is a Parkinsons Disease warrior, whose life changed forever, around five years ago. While the initial few years passed by, peacemaking with the news of being diagnosed with a serious brain disorder, Narang no longer stands at crossroads with coming to terms with his new normal. But as one may imagine, it takes strength of a special kind, to visit the depths of your own heart, embrace your lifes greatest obstacle and turn it into victory.
We moved to India once the symptoms started to get more serious, says Kajal, his wife and caregiver, who previously won season four of a popular food reality show in the Middle East, Foodshala, and was running her own restaurant at the time. But once Gulshans condition started deteriorating, she was ready to wrap up her passion project and relocate to India, in order to better manage her husbands condition.
The grief of illness
It started with tremors in my thumb and my vitamin D levels went down drastically. We thought it was weakness or lack of vitamins and it would pass, said Gulshan.
The right way forward
Creating happiness
You May Like: Drinking And Parkinson’s Disease
Navigating Life With Parkinson’s Disease
Second Edition
- Contains information both for the recently diagnosed and those with advanced Parkinson’s
- Goes beyond basic description of symptoms to offer practical strategies for managing life with Parkinson’s
- Empowers readers to be better advocates for their own health
New to this Edition:
- Reflects the latest evidence-based research
- Includes updated information regarding available adaptive equipment for therapy
$19.95
This title is available as an ebook. To purchase, visit your preferred ebook provider.
Bookseller Code
Navigating Life With Parkinson Disease By Sotirios Parashos Book Pdf Summary
Here is a marvelous guide for anyone affected by Parkinson’s disease–patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, the book answers many questions and clarifies misunderstandings regarding the disease. Written by two experts on Parkinson’s disease and a freelance journalist, the book is approachable and easily understandable. Question and answer sections are provided, while “hot topics” are highlighted for easy visibility. The authors have also included true patient stories that will both inspire and instruct, and they have addressed several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one’s life with Parkinson’s.
- Total View : 274
- File Size : 55,7 Mb
Here is a marvelous guide for anyone affected by Parkinson’s disease–patients, caregivers, family members, and friends. Containing the most up-to-date information on the disease, one of the most common neurological disorders, it discusses the available treatments and provides practical advice on how to manage the disease in the long term.
- Total View : 469
- File Size : 52,7 Mb
Don’t Miss: Gifts For Parkinson’s Patients
Wellness Wednesdays: Mental Wellness Series
A diagnosis of Parkinsons disease is life-changing. Coming to terms with a Parkinson’s diagnosis is often the first of many changes a person who lives with the disease will have to navigate. Building a support network and developing healthy coping strategies can help you and your loved ones steer your own journey.
Join us to learn how others meet PD challenges and discover ways to navigate change during this virtual round-table conversation – the first in a series of candid mental wellness discussions.