Friday, November 24, 2023

Grants For Parkinson’s Patients

Grants For Parkinson’s Research

Brian Grant’s Parkinson’s Story

The application period for this funding opportunity has closed. See key dates in the section below for information about the process.

Awards: Up to $9 million over three years, per team .

The ASAP initiative is accepting applications to support multidisciplinary research teams to join the newly established ASAP Collaborative Research Network. ASAP seeks to fund research projects that address key knowledge gaps in the basic mechanisms that contribute to Parkinsons development and progression.

Applications that focus primarily on Circuitry and Brain-body Interactions, inclusive of genetic and neuro-immune contributors to disease, will be considered.

Filing For Social Security Disability With A Parkinsons Disease Diagnosis

The SSA has a complied list guidelines of conditions that qualify for disability benefits. Under it’s listing in the “Blue Book,” Parkinsons Disease is a condition that can qualify a person for Social Security Disability benefits provided that certain diagnostic criteria are met and documented which include:

  • rigidity
  • bradykinesia, or tremor in two extremities causing ongoing problems with movement
  • gait, or ability to stand

There is no single test that can provide a definitive diagnosis of Parkinsons Disease. Diagnosis is based upon an evaluation of the symptoms present, as well as a neurological examination.

Also, the presence of at least two of what are considered to be the cardinal symptoms of Parkinsons can be considered to be strongly indicative of the presence of the condition.

Additionally, tremors of the hands that occur while the hand is at rest, symptoms that begin on one side of the body, and/or a positive response to levodopa are also telltale diagnostic tools.

It can be assumed that these symptoms could be used as the basis for a Social Security Disability case on their own should they become serious enough to inhibit ones ability to work. If the disease has progressed to this point, however, the patient has likely already qualified based on physical/motor symptoms.

What We Don’t Fund

We don’t fund holidays, long-term financial commitments or daily living costs. We wont consider applications to fund items that you’ve already paid for, or committed to paying for.

We don’t fund items or respite where funding should be available from the government or from your local authority.

If you don’t qualify for a Parkinson’s UK Grant, take a look at the Turn2us Benefits Calculator and Grants Search for information about other sources of grant funding for people affected by Parkinson’s.

You May Like: Stabilizing Spoon For Parkinson’s

Institutional Mds Fellowship Awards

Train neurologists to become experts in PD care and research

  • Cleveland Clinic Foundation, Cleveland, OH – Hubert Fernandez, MD. Read more.
  • The Trustees of Columbia University in the City of New York, NY – Blair Ford, MD. Read more.
  • University Health Network, Toronto, Ontario, Canada – Susan Fox, BM, PhD. Read more.
  • University of Florida Foundation, Inc., Gainesville, FL – Christopher Hess, MD. Read more.
  • Johns Hopkins University School of Medicine, Baltimore, MD – Alexander Pantelyat, MD. Read more.

Seek The Counsel Of A Social Security Attorney When Applying For Disability With Parkinson’s Disease

Grant Gives Voice to Parkinsons Patients

If you or a member of your family has been diagnosed with Parkinsons Disease, the symptoms which prompted the diagnosis may also serve as the qualifications for Social Security Disability benefits.

With the amount of documentation necessary to prove the presence of these qualifying criteria, it would likely be in your best interests to have your case evaluated by a Social Security Disability attorney who may be able to help with your claim.

While the degree of impairment caused by these symptoms may seem obvious to you, having them sufficiently documented so their impact is adequately illustrated on paper is imperative to receiving a positive decision from the Social Security Administration.

Working in close collaboration with your healthcare providers, an experienced Social Security Disability attorney can be sure the proper documents are provided when your application is submitted so your benefits can begin as soon as possible.

Also Check: Can Vyvanse Cause Parkinson’s

Do You Know About Other Organizations/systems That Provide Financial Help To People Living With Parkinsons

If so, please let us know about them in the comments. There are so many people out there who dont have access to the funds they need to take the medications that will truly help them live well with Parkinsons. We dont want anyone in that position so, if you have a story about how you received the help you needed, please leave a comment or email us at .


Join The Parkinsons Forums: An Online Community For People With Parkinsons Disease And Their Caregivers

Thanks to the Parkinsons Foundation, we look forward to bringing this unique tai chi program to people with newly diagnosed PD, she said.

Tai chi is an internal exercise system that combines breathing with slow, gentle movements to improve the flow of energy through the body, to quiet and calm the mind and emotions and improve overall health and well-being.

Tai chi has been found to be effective in reducing falls, which could be of extreme importance for those with Parkinsons, who many times see their balance deteriorate as their condition progresses.

The Parkinsons Foundation seeks to enhance life for patients by improving care and driving investigations toward a cure.

All funded programs are designed to help Parkinsons patients live better-quality lives. They include education, wellness, dance, art, boxing, cycling, yoga, nutrition, caregiver support, and music therapy.

Researchers have found that Parkinsons patients who exercise at least two-and-a-half hours a week also experience a slower decline in their quality of life. Specifically, more recent studies have focused on the concept of intense forced exercise, such as boxing, suggesting that certain types of exercise may be neuroprotective by actually slowing disease progression.

Yoga focused on mindfulness a mental exercise focused on accepting oneself in the present also has been found to lower anxiety, depression and motor impairment in people with mild-to-moderate Parkinsons disease.

Recommended Reading: Parkinson’s And Boxing Connection

Meadowlark Parkinson’s Program Awarded Community Grant Of $18000

Meadowlark Parkinsons Program Awarded $18,000 for iCAN with Pd

NEW YORK & MIAMI August 4, 2020 The Parkinsons Foundation announced the recipients of more that $1.5 million in community grants for Parkinsons programs. Community grants support local health, wellness, and educational programs that address unmet needs in the Parkinsons disease community. Meadowlark Parkinsons Program was awarded $18,000 for iCAN with Pd, an eight-week education series offering confidence about nutrition, swallowing, activities of daily living, and emotional wellness.

We are proud to continue to provide community grants and expand programs and resources that focus on diverse and underserved populations within the Pd community, said John L. Lehr, President and Chief Executive Officer of the Parkinsons Foundation. With COVID-19 impacting the world and the Parkinsons community as a whole, this is a vital year for the Parkinsons Foundation to provide support and funding to grant recipients who remain undeterred in their commitment to make life better for people with Parkinsons.

The Parkinsons Foundation awarded more than $1.5 million in community grants, ranging from a minimum of $5,000 to a maximum of $25,000 per grant application. This years grant cycle focused on three areas, including: programs that provide services for diverse and underserved populations, initiatives that reach the newly diagnosed, and programs that address mental health and Parkinsons.

How Long Does It Take To Get Disability For Parkinsons

Laura Pitts: ASHFoundation Grants Funded Research in Swallowing Efficiency in Parkinson’s Disease

Unfortunately, there is no clear answer on how long it will take you get to get disability benefits for Parkinsons.

After your initial application is complete, it will take the SSA around 3-5 months to get back to you with a decision regarding your claim.

The exact time varies depending on the time it takes for you to get all of your medical records and information over to the SSA to make a decision.

If the SSA denies your application, you are able to appeal the decision, but that will prolong the time it takes for you get disability for Parkinsons.

The more medical evidence and documentation you have to support your claim with Parkinsons, the shorter time it could take for you to get the benefits you deserve.

Recommended Reading: Drugs Prescribed For Parkinson’s Disease

Stanley Fahn Junior Faculty Awards

Provides critical funding to early career scientists to further their PD research

  • Imaging Cholinergic Biomarker of Cognitive Decline in Parkinson’s Disease DementiaChuan Huang, PhD, Stony Brook University Health Science Center
  • The Role of Neurite Defects in LRRK2-mediated NeurodegenerationIan Martin, PhD, Oregon Health & Science University
  • The Role of Sensory Deficits in the Neural Control of Balance during Walking in Parkinson’s DiseaseJan Hendrik Reimann, PhD, University of Delaware

Clinical Trials Of Parkinsons Therapies Robust Despite Covid

With funding from APDA, these researchers can further develop their theories and obtain significant pilot data and initial proof of concept that enables them to apply for and receive larger grants from the National Institutes of Health and other funding institutions, Gilbert said. Without this initial funding from APDA, some research projects might never get off the ground.

Since its foundation, in 1961, APDA has raised and invested more than $207 million to provide outstanding patient services and educational programs, raise public awareness about Parkinsons, and support cutting-edge research meant to ultimately end the disease.

This years APDAs awards include a George C. Cotzias fellowship , two Diversity in Parkinsons Disease Research grants, three post-doctoral fellowships, six research grants, and continued funding for eight APDA Centers for Advanced Research.

The three-year George C. Cotzias fellowship is awarded to a young physician-scientist with exceptional promise to fund an innovative long-range project. This years winner is Abby L. Olsen, MD, PhD, at the Brigham and Womens Hospital, who will focus on the therapeutic potential of glia, which are non-neuronal cells that play critical roles in brain function, in Parkinsons.

The post-doctoral fellowships are designed to support early career post-doctoral scientists whose promising research focuses on Parkinsons causes, effects on the body, and treatments.

Also Check: Does Sam Waterston Have Parkinson

What Types Of Programs Do We Fund

The Foundation funds programs that make an impact in local PD communities. We fund programs that are impactful, sustainable, scalable and measurable. In addition, the programs we fund serve new and existing grant-supported areas and/or pilot programs through:

  • Wellness and Exercise Programs
  • Voice/Music/Art Therapy Programs

The three focus areas for the 2021 application cycle include:

  • Services for diverse and underserved populations
  • Initiatives that reach the newly diagnosed
  • Programs that address mental health and Parkinsons
  • What Benefits Can You Claim If You Have Parkinsons

    Community Grant from the Parkinsons Foundation Supports ...

    There are a couple of benefits you can claim if you have Parkinsons, which are SSDI benefits and Medicare. The first being Social Security Disability Insurance or SSDI.

    SSDI benefits are one of the two programs that the Social Security Administration offers and it is for those who at one point were able to work, but can no longer work for at least 12 months because of a disability or a severe ailment like Parkinsons Disease.

    In order to qualify for SSDI benefits, you need to be deemed disabled by the SSA and you need to have a sufficient amount of work credits.

    Work credits are calculated by your age and how long you have worked. If you are SSDI benefits, under certain conditions, your family members like children under the age of 18 or your spouse.

    The other benefit that you can claim if you have Parkinsons is Medicare. Medicare is a federal program for those with disabilities and for people 65 and over.

    If you qualify for SSDI benefits with Parkinsons, you will also qualify for Medicare as well. You automatically get Medicare Part A and Part B after you get one of these:

    • Disability benefits from Social Security for 24 months
    • Certain disability benefits from the RRB for 24 months

    Recommended Reading: Is Drooling A Sign Of Parkinson’s Disease

    Free Case Evaluation For People With Parkinson’s Disease

    All too often, claimants are denied Social Security benefits based on missing, inaccurate, or incomplete paperwork. As a result, the applicant must then begin on the arduous disability appeal process. Unfortunately, the this process is long and slow, resulting in excruciating delays.

    A Social Security Disability lawyer can make sure you have the documents you need the first time, saving you the hassle and the delay of a lengthy disability appeal process.

    To speak with a qualified Social Security Attorney about your chances of getting Social Security benefits, request a free disability evaluation today.

    Medicaid / Hcbs Waivers

    Under Medicaid, some family members can be paid as caregivers.

    Nursing Home CareHome and Community Based ServicesPCA / PCS Programs

    PCA stands for Personal Care Assistance or Personal Care Attendant and PCS for Personal Care Services. These are regular Medicaid programs that will pay a caregiver to come to ones home and provide personal care such as assistance with the activities of daily living An especially attractive element of these programs is the fact that often times, the paid caregiver can be someone familiar to the individual with Parkinsons. Friends and certain family members can be hired as paid caregivers. The downside of PCA / PCS programs are that the hourly wage that caregivers receive is very low and this is an optional Medicaid benefit. This means not every state offers this option as part of their regular Medicaid programs. A list of states which do offer PCS can be found here. Be aware that this list is not exhaustive and if one does not see their state listed, they should also inquire with their state Medicaid office if such a program is available in their state.

    Recommended Reading: 5 Signs You Ll Get Parkinson’s

    Icipate In Clinical Trials

    Clinical trials provide another avenue for getting needed medications, as well as providing an opportunity for people with PD to participate in research that can benefit the larger Parkinsons community. In a clinical trial, medications and basic healthcare monitoring are covered.

    To find current PD trials, go to or Fox Trial Finder on the Michael J Fox Foundation for Parkinson’s Research website.

    Why Do We Do It

    Brian Grant’s Parkinson’s Story

    Our mission is to provide financial support to local nonprofits and institutions dedicated to improving the quality of life for people with Parkinsons disease , their families, and care-partners. Compassionate dedication is the core value we live by. And our vision is to touch the lives of people with Parkinsons disease every day. It is also our mantra.

    Read Also: Parkinson’s Disease And Vision Problems

    As He Battles Parkinsons Ex

    This post is available in: Spanish

    During 12 standout years in the NBA, former Miami HEAT Brian Grant was known for his hustle and toughness as a power forward or center, sometimes shaking off injuries and maneuvering his 6-foot-9-inch frame to block shots or leap for rebounds.

    But his battles on the basketball court would pale in comparison to what awaited him shortly after his retirement from the NBA. One day in 2008, a neurologist in Portland, Oregon told him he had Young Onset Parkinsons disease , which occurs in people younger than 50. He was 36 years-old at the time. He was diagnosed with tremor dominant Parkinsons. Yet, there were signs even in his playing days of what was to come.

    My journey started, actually, when I got traded to the Lakers, recalls Mr. Grant. I noticed that I couldnt jump off my left leg as well as I used to. And then I got to Phoenix, retired, and I went through nine months of depression, which I later found out many Parkinsons patients go through because of the loss of dopamine in the brain. And so thats how I got to that point. And then I moved back to Portland in 2008 and was diagnosed.

    Miami will always hold a special place in my heart, he says. Memories still rebound of his South Florida days playing for the HEAT, and he has many fans here. During his NBA career, he also played for the Portland Trail Blazers, Los Angeles Lakers and Phoenix Suns.

    Im a Believer and This is What I was Dealt With

    Parkinsons Foundation Awards $22m In Community Health Grants


    The Parkinsons Foundation has awarded over $2.2 million in community health grants to 143 programs that will benefit Parkinsons disease patients across 42 U.S. states, as well as efforts in Australia and Taiwan.

    This years grants, which mark the programs 10th year, range from $5,000 to a maximum of $25,000 and aim to support local health, wellness, and educational programs. Of the $2.2 million, $1.6 million will fund programs for diverse and underserved Parkinsons communities.

    A full list of this years awardees is available here.

    We are pleased to be able to provide these community grants and to expand programs and resources throughout the Parkinsons community, John L. Lehr, president and CEO of the Parkinsons Foundation, said in a press release.

    Also Check: Can Head Injury Cause Parkinson’s

    How To Apply For A Grant

    Home » Research & Resources » Grants » How to Apply for a Grant

    The Parkinson Alliance awards grants on an invitation-only basis to partner organizations and major research institutions in the U.S. If you are an investigator working in the field of neurological disorders, we encourage you to seek pilot study grants to gather data for broader-based study. At present, Parkinsons disease research may be funded through the following governmental agencies:

    In addition, we encourage investigators to contact the scientific advisory boards of the following partner organizations:

    Grants For Neurological Disorders

    Integrated Parkinson

    ALD Life is the charity and support group for individuals and their families with Adrenoleukodystrophy and Adrenomyeloneuropathy .

    It offers financial support for specialist equipment, full time care and regular treatments.

    It also provides practical support, advice and information on the condition.

    Ataxia supports anyone with Ataxia through a range of services.

    They manage and facilitate a number of grants schemes:

    The Mark Dower Trust offers a small annual grant of up to £3,000. The aim is to support young people by enabling them to pursue skills, hobbies or further educational opportunities and hence allow them to maximise their independence.

    The Headley Trust

    Ataxia refers to the Headley Trust individuals over 16 years with Ataxia requiring support for mobility equipment, computer adaptations, communication aids, stairlifts and car adaptations.

    The Florence Nightingale Aid in Sickness Trust

    The Trust provides funding towards medical equipment for children and adults of all ages affected by a disability or long-term illness. This includes medical aids, specialist beds and mobility equipment. Apply initially through Ataxia who will refer to the Trust.

    The Batten Disease Family Association

    The BDFA supports families affected by Batten Disease by giving support and funding research.

    In addition to family support through the Batten Disease journey it is able to provide small grants to families of children and young people living or have lived with Batten Disease.


    You May Like: How Do You Treat Parkinson’s Disease Naturally

    Popular Articles
    Related news