Saturday, March 25, 2023

Ending Parkinson’s Disease A Prescription For Action

Ending Parkinson’s Disease : A Prescription For Action Ray Dorsey Md Todd Sherer Phd Michael Okun Md Bastiaan R Bloem Phdresource Informationthe Item Ending Parkinson’s Disease : A Prescription For Action Ray Dorsey Md Todd Sherer Phd Michael Okun Md Bastiaan R Bloem Phd Represents A Specific Individual Material Embodiment Of A Distinct Intellectual Or Artistic Creation Found In Calgary Public Librarythis Item Is Available To Borrow From 3 Library Branches

Ending Parkinson’s Disease with Dr Michael Okun
Ending Parkinson’s disease : a prescription for action
Parkinson’s disease
Ending Parkinson’s disease : a prescription for action, Ray Dorsey, MD, Todd Sherer, PhD, Michael Okun, MD, Bastiaan R. Bloem, PhD
Includes bibliographical references and index
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Ending Parkinson’s disease : a prescription for action, Ray Dorsey, MD, Todd Sherer, PhD, Michael Okun, MD, Bastiaan R. Bloem, PhD
Includes bibliographical references and index
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Treat The Disease With Novel Therapies

The most effective medication for Parkinsons remains a 50-year-old drug, levodopa. While effective, it does not address the underlying disease and has its own complications. To develop a new generation of therapies aimed at the underlying pathology of the disease, we need better, objective measures of the disease and to support efforts to develop gene-targeted therapies. The PD GENEration study and other efforts can help individuals better understand their genetic risk of the disease. Additional surgical interventions can also advance our treatment of those already affected by the disease.

All of these will require the collective action of all us. The same collective action that changed the course of polio through a March of Dimes and the course of HIV through a Quilt that covered the National Mall. We hope that the book will help catalyze such action and we look forward to your thoughts and suggestions.

Do You Think Enough People Are Aware Of The Condition

Dr Bloem: Many still think that Parkinsons issynonymous with tremor, but it is in fact very multifaceted and complex, and hassuch has a huge impact on the quality of life of patients and their families.

Dr Sherer: In the last decade alone, Ive seen ajump in awareness. But today, there are still many stigmas and misconceptionsabout what the condition is, what causes it, what treatments are available andwhen well find a cure. As the population of people with Parkinsons grows alongsidethe number of families impacted by it well need more education and resourcesto increase awareness of the condition and engagement around how welleradicate it.

Dr Okun: We have been humbled that the education and awareness of what Parkinsons disease is has been woefully inadequate. We need to do a better job educating the public.

Don’t Miss: Parkinson Silverware

Top Search Results From The Abebooks Marketplace

Book Description Paperback. Condition: New. Reprint. Language: English. Brand new Book. In this “must-read” guide , four leading doctors and advocates offer a bold action plan to prevent, care for, and treat Parkinson’s disease-one of the great health challenges of our time.Brain diseases are now the world’s leading source of disability. The fastest growing of these is Parkinson’s: the number of impacted patients has doubled to more than six million over the last twenty-five years and is projected to double again by 2040. Harmful pesticides that increase the risk of Parkinson’s continue to proliferate, many people remain undiagnosed and untreated, research funding stagnates, and the most effective treatment is now a half century old.In Ending Parkinson’s Disease, four top experts provide a plan to help prevent Parkinson’s, improve care and treatment, and end the silence associated with this devastating disease. Seller Inventory # HUK9781541724501

Why Is The Book A Must

Ending Parkinson

Dr Dorsey: Almost everyone over 50 knows or willknow someone affected by Parkinsons disease. It is the worlds fastest growingbrain disorder and absent change, the number affected will double by 2040. HIVactivists created the slogan, Silence=Death. For Parkinsons disease, Silence=Suffering. We need to end oursilence.

Dr Okun: Our book offers a deeper appreciation ofwhy we need to act before millions of additional people become debilitated, andbefore the burden overcomes our healthcare systems.

Dr Bloem: Readers need to be aware, in order to prevent themselves from exposure to toxic chemicals, and also to adopt a healthier lifestyle. All these issues are addressed in the book.

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The Book Ending Parkinsons Diseaes: A Prescription For Action Review For Epda Eng

English version



First, I would like to thank the EPDA for asking me to review the book Ending Parkinsons Disease: A Prescription for Action for them.

In addition, I would like to thank the writers and their teams in advance for their progressive informed decision to write for us Parkinsonians this guide, this bible for Parkinsons.I therefore see Ending PD as an umbrella, an umbrella body under which all Parkinsons groups could fall.

The book gives you an immediate insight into how all industrial and agricultural operations can point a direct finger at the co potential causes of the onset of Parkinsons.

I am therefore naming this a Welfare Disease that is unprecedented!

For us Parkinsonians and partners, caregivers, neurologists, Parkinsons nurse, and everyone else involved, a handle to ensure that we are heard and seen in a progressive, determined, and collaborative way.

Not only for us Parkinsonians, but most certainly also for Generation Z and Generation Alfa. To save them from this pandemic more and in time!

I would say:

Stand up for our wellbeing, speak up for our rights and lets do this together. We are United!

About the book

Personally, the book is for me an eye opener and a handle to discover what has been going on in my life and what I may have been exposed to in my working years.

An example from the Netherlands is the following:

Any Challenges To A Cure

We, the Parkinsons community, have been too quiet for too long. The disease now affects 1 million Americans. Every day 10,000 Americans turn 65 and up to 1 in 15 of them will develop Parkinsons disease. The motto of the HIV community is Silence=Death. For the Parkinsons community, Silence=Suffering, Needless Suffering. We need to change that.

Also Check: Cleveland Clinic Parkinson’s Bicycle Study 2017

Why Is It Important That We Close The Gap Between Researchers And The Parkinsons Community How Can We Achieve This

Dr Okun: We currently have thousands of researchtrials which need patients to complete recruitment. We will not be able to movethe field forward with any sense of urgency unless we create meaningfulpartnerships. The patients and family members are my friends and I walk theroad everyday with them. I know that time matters to them and that is why I amworking as fast as I can to affect change.

Dr Sherer: We need to bring patients themselvesinto the research. They should have a seat at the table, because theyre theexperts on living with the disease. It is only through their participation instudies that we can learn more about Parkinsons and how well stop it.

Dr Bloem: We need to be continuously informing patients, because this will help to alleviate anxiety and facilitate patients and their families in self-management.

Common Terms And Phrases


Read Also: On-off Phenomenon

Care For All Affected

Many individuals with Parkinsons do not see a neurologist or specialist for PD. Those who do not are more likely to fracture their hip or be placed in a skilled nursing facility. Expert care models, like ParkinsonNet developed by Bas Bloem, MD, and his colleagues, telemedicine and Centers of Excellence can provide better care to almost anyone anywhere. We need to embrace such models and ensure that Medicare, supported by taxpayers like you, does the same.

Advocate For Better Policies And Resources

In addition to better environmental policies, to end Parkinsons disease will require additional resources. The National Institute of Health funds $3 billion per year to enhance our understanding of HIV. This research has likely prevented millions, including many of us from ever developing the disease and led to numerous treatments that now makes a HIV a chronic, rather than rapidly fatal condition. By contrast the NIH funds less than $200 million per year for Parkinsons disease. We need to change that.

Read Also: Prayers For Parkinson’s Disease

What Is Ending Parkinsons Disease About

Dr Todd Sherer, CEO of the Michael J Fox Foundation: This book is about sharing what we, as scientists, know about what causes Parkinsons and how we may treat it, so that the community can help us take action and find the next breakthrough.

Dr Michael Okun, professor and chair of neurology at the University of Florida, US: Ending Parkinsons Disease retells the stories of polio, HIV, breast cancer and points out the lessons learned in combating these diseases. We believe that collectively these lessons can help us to prevent, advocate, care and treat Parkinsons.

Dr Bastiaan Bloem, professor of neurology and medical director at Radboud University Medical Centre, the Netherlands: We draw attention to the rapid rise in numbers of new patients with Parkinsons, making this the fastest growing neurological condition on the planet. Our plan of action is to take measures to help prevent new people from developing the condition in the future, and to ascertain better treatments and care for the millions of people affected today.

What Inspired You To Come Together And Write A Plan Of Action

Review: " Ending Parkinsons Disease, A Prescription for ...

Dr Okun: We all passionately believe it is time forus to act more aggressively to end Parkinsons disease. The cost of falls,fractures and nursing home placements will economically collapse most healthcare systems as the numbers of patients with Parkinsons continues toskyrocket. We need to act now and change the trajectory.

Dr Bloem: All we have to offer today is symptomatic relief, and this is only partially effective and only for a limited period of time. Much better symptomatic treatments are needed, and we urgently need new approaches to slow down or arrest the relentless progression of Parkinsons.

Dr Ray Dorsey, professor of neurology at the Universityof Rochester, US: If we do not act, many of us will spend the last 15-plusyears of our life with a debilitating disease, or caring for someone with it.

Dr Sherer: I hear from patients and families about the challenges navigating Parkinsons. But I also see first-hand the incredible advances weve made. This progress wouldnt be possible without an engaged and informed community working alongside scientists and policymakers to end Parkinsons. This book lays out opportunities for more people to play a role in helping improve care, prevent the disease and speed a cure.

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What Changes Do You Hope To See In The Future

Dr Bloem: We should move away from physiciancentred care and move towards true personalised care, with an informed patientat the helm. We should also stop thinking that Parkinsons is one singledisease. There are multiple causes, but more importantly, each individualpatient has his or her unique personal wishes and needs. The great challengethat lies ahead of us is to tailor all our services to these individualpriorities, allowing patients to lead a meaningful life for many more years.

Dr Sherer: We still have many gaps of knowledge tofill, including establishing a biomarker of Parkinsons. This objective testwould help us diagnose and track the progression of Parkinsons and wouldaccelerate therapeutic development.

Unsurprisingly, the question I hear most often is: Howclose are we to a cure? And I tell our community that we are turning thecorner on finding a way to either slow or stop the progression of the disease.The clinical pipeline of potential treatments is exploding, and Im optimisticthat a cure is within reach.

The field of Parkinsons research is nearly unrecognisable to what it was 20 years ago. Real and tangible progress has been made, but theres still much work to be done. But I see this less as a challenge and more as an opportunity. Theres no single right way to end Parkinsons, and its going to take all of us working together to get there.

Image Credit: Ending Parkinsons Disease: A Prescription for Action

Read more:

What Inspired Your Book

Parkinsons disease is the fastest-growing brain disorder in the world, even faster than Alzheimers disease.

Dr. Bas Bloem and I wrote a piece called The Parkinson Pandemic to highlight this rise and how the Parkinsons community could mirror the activism of the HIV community and come together to end the disease.

The piece resonated with the community, and we were joined by Dr. Todd Sherer and Dr. Michael Okun in writing the book, Ending Parkinson’s Disease.

Recommended Reading: On And Off Phenomenon

Reducing The Cases Of Pd

The book published last summer titled Ending Parkinsons Disease: A Prescription for Action, by Ray Dorsey MD, Todd Sherer PhD, Michael Okun MD, and Bastiaan Bloem MD, PhD, tackles these issues and suggests ways to reduce the numbers drastically.

According to the authors, the pesticide Paraquat and the chemical TCE , a degreaser used in many industries, are both known man-made causes of Parkinsons. Increased life expectancy also contributes to the rise in PD, while genetic causes, which are getting the most research dollars, are a somewhat small percentage of the total.1

Reducing, and hopefully eliminating, the use of Paraquat and TCE will make a huge difference in the numbers of new cases of PD. So what can we do?

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