Sunday, August 7, 2022

Charity Navigator Parkinson’s Foundation

Best And Worst Charities For Your Donations

Parkinson√Ęs Foundation Earns 4-Star Rating from Charity Navigator

Important tips to keep in mind in the season of giving

    Editors Note: Consumer Reports has not updated the specific charities mentioned in this story since November 2019. If youre looking for tips on choosing a charity, you can vet the charities youre considering by checking the websites of the watchdog organizations mentioned here.

    During the holidays, many consumers receive a multitude of donation requests from charitable organizations, as well as crowdfunding sites and other online giving platforms.

    A charitys name may signal worthy a cause, such as feeding the hungry or supporting veterans. But you need to look carefully at the organization to make sure you are sending your money to the right place.

    You dont want to choose a charity by the name alone, since your donation may go to a questionable group, says Bennett Weiner, chief operating officer of the charity watchdog BBB Wise Giving Alliance. Some organizations may spend too much on administrative and fundraising costs or are outright scammers.

    Vetting charities is especially important now because December is typically the largest month for giving. According to a recent report by the Blackbaud Institute for Philanthropic Impact, 17 percent of contributions were made during December last year.

    The best course of action before giving is to check out the charity with one or more of the major charity watchdogs, including the BBB Wise Giving Alliance, Charity Navigator, and CharityWatch.

    Fund Raising And/or Fund Distribution

  • Parkinson Foundation of the National Capital Area …
  • Mission:To improve the quality of the life for people living with Parkinson disease.

    Parkinson Foundation of the National Capital Area Inc. is a 501 organization, with an IRS ruling year of 2001, and donations are tax-deductible.

    Encompass Rating System by Charity Navigator

    Overall Score

    This charity’s score is a passing score.This overall score is calculated entirely from a single beacon score: 100% Finance & Accountability

    Learn about the Encompass Rating System: Overview | FAQ | Release Notes

    This organization is potentially eligible for a Charity Navigator Star Rating. Vote Now to request to have our analyst team rate Parkinson Foundation of the National Capital Area Inc. for a Star Rating. The organization currently has 4 votes.

    Finance & Accountability

    This score provides an assessment of a nonprofit’s financial health and its commitment to governance practices and policies.

    Finance & Accountability Score

    During Times Of Crises What Should Organizations Really Be Focusing On

    Before COVID hit, as I mentioned, we were really on pace to have a blockbuster year. Weve been on a pretty good ride here and were very much in growth mode, programmatically and operationally. We were really pushing many, many things forward and it was really a very exciting time. Then obviously COVID hit and very quickly we saw the revenue turn upside down.

    So as you know, the first and most important thing any organization needs to think about is preserving the mission of the organization. In our case, thats continuing to serve people with Parkinsons.

    But then also preserving the organization itself and making sure that we are in the best position to weather this tough storm. So we took a number of quick defensive measures. You know, we did a cash flow analysis to have a better idea of how much money we need to have on hand to pay staff and to make sure that the lights stay on. So much of our mission is delivered by our staff and by our team, so we really wanted to make sure that they were taken care of first and foremost. But then we also started forecasting and thinking, Okay based on the data that we have, how long can we run at this level? How long can we run at that level? Were based on an academic fiscal year, July 1st to June 30th. So were coming up on the end of our fiscal year and starting to think about budgeting for next year.

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    Updates To The Disclosures

    Any changes to these Disclosures will be effective upon the earlier of thirty calendar days following our dispatch of an email notice to you or thirty calendar days following our posting of notice of the changes on the Website. These changes will be effective immediately for new users of our Website.

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    Salary Of Key Persons

    Parkinsons Foundation Earns 4

    Presented here are up to five of this organization’s highest compensated employees. This compensation data includes salary, cash bonuses, and expense accounts and is displayed exactly how it is reported to the IRS. The amounts do not include nontaxable benefits, deferred compensation, or other amounts not reported on Form W-2. In some cases, these amounts may include compensation from related organizations. Read the IRS policies for compensation reporting

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    The Foundation Is Dedicated To Accelerating The Search For A Cure For Parkinsons Disease And To Improving Treatment For People Who Live With The Condition

    The Michael J. Fox Foundation for Parkinsons Research is dedicated to accelerating the search for a cure for Parkinsons disease and to improving treatment for the 5 million people worldwide living with the condition today. Current medications are not capable of halting or slowing the progression of Parkinsons they only provide limited symptomatic relief and can cause numerous debilitating side effects. Since its formation in 2000 by the actor Michael J. Fox, who had gone public with his Parkinsons two years earlier, the Foundation has funded more than $325 million in research and run more than 60 clinical trials in pursuit of a cure and better treatment. It has registered more than 15,000 people as potential participants in trials to test Parkinsons therapies.

    Each charity we feature has earned a four-star overall rating from Charity Navigator, which ranks not-for-profit organizations on the strength of their finances, their control of administrative and fundraising expenses, and the transparency of their operations. Four stars is the groups highest ranking.

    Mindy Flinn Mba Vice President Of Development

    Mindy Flinn joined the MMRF in May 2020 as the Vice President of Development where she works with a talented team raising philanthropic support for the organization. She brings over 23 years of development experience to this position. Ms. Flinn spent over a decade in development at Mayo Clinic in Rochester, MN and in Jacksonville, FL, where she oversaw the stewardship of top-level benefactors and served as a major gift officer. She also worked for the LIVESTRONG Foundation in Austin, TX as a major gift officer and was Director of Philanthropic Resources at MD Anderson Cancer Center in Houston, TX. Prior to joining the MMRF, she was Senior Director of Development at Yale School of Medicine. Ms. Flinn received her Bachelor of Science in Biology from Bethel University and a Master of Business Administration from Cardinal Stritch University. Her additional accomplishments include successfully climbing Mt. Kilimanjaro in 2012 as a member of Survivor Summit and skydiving.

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    Ask Questions And Share Your Knowledge Of Parkinsons Disease In Our Forums

    8. Partners in Parkinsons has a program where you can be connected to an advocate who will listen, offer advice and support to patients and caregivers at no cost. This is just one of the services you can find through Partners in Parkinsons.

    9. Caring.com has a support group for caregivers, family and friends of those with Parkinsons disease. No subject is off-limits in this forum.

    10. The National Parkinson Foundation has a site specifically geared to caregivers. They help carers navigate the emotional, financial, and physical challenges they may face caring for someone with Parkinsons.

    Having resources that help keep you informed, and offer support and encouragement to patients and their loved ones is so important. These are just 10 of the hundreds of organizations out there that are available to you. You can search online or visit your local library for more.

    MORE: Eleven facts about Parkinsons disease you may not know.

    Parkinsons News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

    Data Sources: Irs Forms 990

    Is it Parkinson’s Disease, Medication or Aging? Mental Well-Being and Memory

    The Form 990 is a document that nonprofit organizations file with the IRS annually. We leverage finance and accountability data from it to form Encompass ratings. .

    Impact & Results

    This score estimates the actual impact a nonprofit has on the lives of those it serves, and determines whether it is making good use of donor resources to achieve that impact.

    Impact & Results Score

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    Steven Labkoff Md Facp Facmi

    Dr. Steven Labkoff is the Chief Data Officer at the Multiple Myeloma Research Foundation. Dr. Labkoff is a global medical leader with a track record of developing cutting edge strategies towards new healthcare delivery models. He has demonstrated success in the convergence of medicine, life sciences and policy across disparate organizations including government, non-government organizations , health plans and academic institutions. He joined the MMRF after a 25-year career in healthcare informatics for the Life Science Industry where he worked on a wide array of issues ranging from the secondary uses of healthcare data for Life Sciences, health information technology policy, Big Data and analytics and medical affairs. He was most recently Executive Director, Medical Strategy at Purdue Pharma. In that role he led Purdues Big Data initiative as well as medical strategy for both pipeline and inline products. Prior to Purdue he was Vice President of Life Sciences at Intelligent Medical Objects focused on leveraging medical vocabularies, ontologies, and terminologies for Life Science customers.

    From 2011-2014 he was Executive Director, R& D Informatics and Head of Strategic Programs in AstraZenecas Research & Development Information Department where he led groups on Real World Evidence and Payer Evidence, Personalized Medicine and Biomarkers and Clinical Trials Design and Interpretation, dedicated to leveraging healthcare data for the development of ethical pharmaceuticals.

    This Organization Cannot Be Evaluated By Our Encompass Rating Methodology Due To Only Having 2 Years Of Electronically

    To ensure year-to-year consistency the Encompass Rating Systems Finance & Accountability beacon analyzes the three-year average of some data provided through the IRS 990.Charity Navigator currently only has 2 years of consecutive e-filed Forms 990 from the IRS for Northwest Parkinsons Foundation under the EIN: 91-1923159.Before Charity Navigator can evaluate this organization, Northwest Parkinsons Foundation will need to e-file for additional fiscal years.

    Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated this organization.

    This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

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    This Organization Cannot Be Evaluated By Our Encompass Rating Methodology Due To Only Having One Year Of Electronically

    To ensure year-to-year consistency the Encompass Rating Systems Finance & Accountability beacon analyzes the three-year average of some data provided through the IRS 990.Charity Navigator currently only has one year of consecutive e-filed Forms 990 from the IRS for Peterson Foundation for Parkinsons under the EIN: 26-4144151.Before Charity Navigator can evaluate this organization, Peterson Foundation for Parkinsons will need to e-file for additional fiscal years.

    Note: The absence of a score does not indicate a positive or negative assessment, it only indicates that we have not yet evaluated this organization.

    This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

    Parkinsons Foundation Named As 2020 Best Nonprofits To Work For By The Nonprofit Times

    Ultravirgo : Parkinson

    Member for

    NEW YORK & MIAMI April 6, 2020 The Parkinsons Foundation has been recognized as number 33 in the top 50 nonprofits to work for by The NonProfit Times in the publications 2020 Best Nonprofits to Work For list.

    We are honored to be selected as one of best nonprofits to work for by The Nonprofit Times, said John L. Lehr, President and Chief Executive Officer of the Parkinsons Foundation. This recognition showcases our commitment to our core values, including our dedication to supporting the entire Parkinsons community by giving them the tools they need to live better with Parkinsons disease.

    This recognition aligns with the Foundations overarching values including teamwork, collaboration, integrity, positivity, dedication and responsiveness. The Parkinsons Foundation earned high marks for workplace policies, practices, philosophy, systems and demographics and overall employee experience. In 2019, the Parkinsons Foundation also received a 4-star rating from Charity Navigator, a Platinum Seal of Transparency from GuideStar and is a Better Business Bureau accredited charity.

    The shared passion for our mission plus a culture that is transparent and collaborative has made my experience working here incredibly valuable, said Jackie Gannon, Senior Projects Manager. It is an absolute privilege to work at the Parkinsons Foundation as a collective team working to end Parkinsons disease.

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    In Your Opinion What Do You Think Are Some Of The Common Themes Of A Successful Nonprofit

    You know, I think its important for any organization, regardless of size, to be very clear about what their vision is. Almost every nonprofit I know has a vision statement, which is your big aspirational view on what your organization is trying to do. In our case, its ultimately trying to find a cure for Parkinsons disease. We also know thats a huge undertaking, so in the meantime, we have our mission, which is to ensure that people are living well with Parkinsons, and ensuring that our community is maintaining their health, their quality of life, and that they are working through what is a very difficult journey with the resources to make the best of it.

    Beyond just our mission and vision, we have what we call our guiding principles. In our case, its putting people with Parkinsons first in any decision we ever make. We ask ourselves, does this ultimately help people with Parkinsons? A question worth coming back to again and again is:

    What are we doing today, with the resources we have, to advance our mission and ultimately move toward accomplishing our vision?

    If you keep that front and center and keep that focus, it will keep you from making missteps and from chasing shiny objects. Im just always coming back to why, Why are we doing this? What is it all about?

    John L Lehr Of The Parkinsons Foundation: Optimal Performance Before High Pressure Moments How To Relieve Stress Clear Your Head And Prepare Yourself For High Stakes Business Encounters

    Always stay focused on mission and what is in the best interest of the community you are serving this will help limit distractions. Ask a lot of questions. Asking why is very effective, provided you answer candidly and ultimately reach an endpoint. Solicit the advice of talented people, so you have the best information to take a course of action or make a decision. Dont be afraid of making mistakes the great household product WD-40 is named that way because it took 40 tries to get it right.

    As a part of our series about Optimal Performance Before High Pressure Moments,

    I had the pleasure of interviewingJohn L. Lehr, president and CEO of the Parkinsons Foundation.

    Thank you so much for joining us in this interview series! Before we dive into the main focus of our interview, our readers would love to get to know you a bit better. Can you tell us a bit about your childhood backstory?

    I am the youngest of six children, born in Chicago, but raised in the suburbs of Philadelphia. Being the youngest was great, as my parents were more relaxed, and I had the benefit of learning from the experiences of my older siblings. As a child, I played a lot of sports , and then gradually became interested in music, ultimately forming a band with my best friend. We played in the band through college, which was great fun.

    What or who inspired you to pursue your career as a nonprofit leader? Wed love to hear the story.

    How can our readers further follow your work online?

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    Birth Defects And Genetic Diseases

  • Parkinson Foundation of Western Pennsylvania
  • Mission:TO PROVIDE SUPPORT AND SERVICES FOR THOSE WITH PARKINSON’S DISEASE AND THEIR FAMILIES, AND SUPPORT MEDICAL RESEARCH TO DISCOVER THE CAUSE AND CURE

    Parkinson Foundation of Western Pennsylvania is a 501 organization, with an IRS ruling year of 2003, and donations are tax-deductible.

    Encompass Rating System by Charity Navigator

    Overall Score

    out of 100

    This charity’s score is a passing score.This overall score is calculated from multiple beacon scores: 95% Finance & Accountability and 5% Culture & Community

    Finance & Accountability

    This score provides an assessment of a nonprofit’s financial health and its commitment to governance practices and policies.

    Finance & Accountability Score

    out of 100

    The score earned by Parkinson Foundation of Western Pennsylvania is a passing score

    This V5 of the Finance & Accountability Score provides a baseline measure of an organizations health including the indicators listed in the report below.

    This score represents Form 990 data from 2019, the latest year electronically filed and published by the IRS.

    This beta feature is currently viewable only on desktop or tablet screens. Check back later for updates.

    Higher effect on score

    More data

    The Program Expense Ratio is determined by Program Expenses divided by Total Expense . This measure reflects the percent of its total expenses a charity spends on the programs and services it exists to deliver.

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