Education For Those Newly Diagnosed With Parkinsons Disease
If you or someone close to you has recently been diagnosed with Parkinsons disease, you are likely experiencing many emotions and have many concerns and questions. We are here to help you meet the challenge of PD with support, optimism and hope. We encourage you to attend these programs and support services available through the MAPC.
As a Parkinson Foundation Center of Excellence we are pleased to provide you with the following educational resource opportunities
Barrow Neurological Institute In Phoenix Az
The Research Center of Excellence at the Barrow Neurological Institute is part of the Alzheimers and Memory Disorders Division and the Lonnie and Muhammad Ali Movement Disorder Center.
The Alzheimers and Memory Disorders division is known for providing expert care and support services for patients with AD, MCI, DLB, PDD, PSP dementia and other neurodegenerative diseases. The Muhammad Ali Movement Disorder Center serves as a resource for Parkinsons disease patients and their families. The centers staff is committed to providing excellence in diagnosis, treatment, research, and education for people with Parkinsons disease and other movement disorders.
The clinic also provides a comprehensive outpatient rehabilitation program consisting of PT, OT, and SLP with therapists dedicated to the needs of this patient population. There is a gait lab, an extensive Parkinsons outreach program, and a wellness center. Additionally, there is an entire clinical neuropsychology department with dedicated neuropsychologists for LBD patients.
Holly Shill MD, FAAN
Dr. Shill is the Director of the Lonnie and Muhammad Ali Movement Disorder Center. Her main contribution to science is working collaboratively in large groups to test therapies for Parkinsons disease and related disorders while seeking to understand their underlying pathogenesis.
Clinic name: Barrow Neurology ClinicsContact name: Dede Berry
Ali’s Friend Dr Lieberman Is Retiring
Next month, Lieberman, 80, plans to retire from his work treating Parkinson’s patients.
He’s leaving behind a center that grew over two decades from one room in a community hospital to a global clinic that has 14,000 annual patient visits and occupies the entire third floor of a Barrow Neurological Institute building on West Thomas Road on the Dignity Health St. Joseph’s Hospital and Medical Center campus.
“He was a doctor to Muhammad, but he also befriended him,” Ali’s widow, Lonnie Ali, told The Arizona Republic. “It was a little bit more than being his doctor. … Muhammad trusted him implicitly.”
Staff members at the Muhammad Ali center are driven by a mission that came directly from its namesake:
To give all patients with Parkinson’s disease the same kind of high-quality treatment that Muhammad Ali always received throughout the course of his illness, regardless of their ability to pay.
That means that at the Ali center, patients can get all their Parkinson’s care in one place, whether it’s counseling, physical therapy, family support or medications.
Also Check: Bicycle Therapy For Parkinson’s Disease
Italy: Fresco Network A Parkinsons Network Of Excellence
The Fresco Network is a Parkinson’s Network of Excellence. It is comprised of multiple, independent medical sites that together provide high-quality, patient-centered and multi-disciplinary care to people with Parkinsons disease within a specific country or region. The Network demonstrates exemplary care, innovative research, a commitment to medical professional training and educating the community of people with and affected by Parkinsons.
Ali’s Name Meant It ‘had To Be The Best’
“It had Muhammad’s name on it and because of that felt it had to be the best, to do the best and to be there for every Parkinson patient who needed help,” Lonnie Ali told The Republic. “I have no doubt this center will continue to grow and help a vast number of people and continue to make Dr. Lieberman proud. He made sure of that. That’s why he’s 80 and just retiring.”
Lieberman says age and health are driving his decision to retire. He had polio as a child and was for a time paralyzed below the waist. He mostly recovered, except for a lingering limp.
About 18 years ago, he developed a progressive disease called post-polio syndrome, which required him to use a medical walking stick. He now uses two. In 2015, he gave up directorship of the center to neurologist Dr. Holly Shill in December he’ll leave the center for good.
“It’s hard to get around. I can’t really walk distances. At my retirement party I was in a wheelchair,” said Lieberman, who came to Arizona from New York in 1988. “It’s become very hard. It’s hard to travel. If you are running a center like this, you’ve got to go to meetings, you’ve got to make contacts. It is time to step down.”
After her husband died, Lonnie gave his wheelchair to Lieberman.
Also Check: On And Off Phenomenon
Advanced Treatment Options For Parkinsons Disease
Our specialists have dedicated their careers to learning more about movement disordersand developing better treatments. Parkinsons center staff are involved in clinical trials and research into the causes and treatments of these debilitating disorders. Our physicians have specialized training in administering botulinum toxin, managing deep brain stimulation and in evaluating patients for deep brain stimulation surgery.
Additional resources for patients and family members include:
- Educational opportunities, including Parkinsons 101 seminars, conferences and online materials
- Recreation therapy activitiessuch as dancing, golf and yogato help treat and reduce physical disability, social isolation, depression and other symptoms commonly associated with chronic diseases
- A Resource Center with computers, a variety of books and videos and specially trained staff to help answer questions
- Support groups, educational materials and more offered in both English and Spanish
If you or a loved one have been diagnosed with Parkinsons disease or another movement disorder, or believe that you may have a movement disorder, contact our Parkinsons center today for an appointment.
Specialized Care For Parkinsons Disease
The MAPCs team of neurologists and other healthcare professionals specializes in diagnosing and treating movement disordersillnesses that cause symptoms, including:
- Abnormalities of gait, balance and coordination
- Involuntary movements
- Slowness or interruptions in movements
- Abnormal posturing
- Twisting or stiffness of the limbs
While designated a Parkinsons center, the MAPC also specializes in disorders that include Huntingtons disease, essential tremor, ataxia and more.
Also Check: Judy Woodruff Health Problems
Muhammad Ali Parkinson Center: A Hub For Cutting
More than two decades since its establishment in 1997 and five years following famed boxer Muhammad Alis passing, the Muhammad Ali Parkinson Center remains committed to upholding the mission of fighting for a cure for this condition through groundbreaking research and top-notch patient care.
The renowned movement disorder center has held steadfast to the wishes of Lonnie and Muhammad Ali that all patients and caregivers have access to the same level of outstanding services that Ali received throughout his battle with the neurodegenerative disease.
This dream of Lonnie and Muhammads is what drives many of our goals at the Center, said Holly Shill, MD, movement disorder neurologist and director of the Muhammad Ali Parkinson Center at Barrow Neurological Institute at Dignity Health St. Josephs Hospital and Medical Center in Phoenix. We are thrilled to be able to offer our patients access to the types of research studies that could really be game changers in the way we understand and treat the disease.
We are also proud to be involved in the second phase of a landmark clinical study by the Michael J. Fox Foundation called the Parkinsons Progression Markers Initiative . The main goal of this initiative is to better understand Parkinsons onset and progression in order to expedite the development of new treatments, which are incredibly important for neurologists to have in our tool kits, said Dr. Shill.
Knocking Out Parkinsons Disease
Scott Wieczorek was diagnosed with Parkinsons disease in his late 30s. With the diagnosis came many life changes, including resigning from his job, which was difficult for a young, active professional to accept.
In 2016, the Muhammad Ali Parkinson Center at Barrow Neurological Institute began offering a boxing fitness class for Parkinsons patients called Knockout Parkinsons.
Scott was one of the first patients to join the class, explaining, Boxing gives me a sense of empowerment over the disease. Watch as Scott shares his story below.
Also Check: Yopd Life Expectancy
A Poem Changed Ali’s Mind
Barrow Neurological Institute was well-known in the neurology community, but Ali’s name was universal.
The problem was, Ali liked to focus on the positive. He was emphatic about not wanting to become known for Parkinson’s disease.
Moreover, Ali was known for his athletic prowess and his physical beauty, Lonnie said. He didn’t spend a lot of time thinking about Parkinson’s and he didn’t want others thinking about Muhammad Ali and Parkinson’s together, either.
“Muhammad was fluid and beautiful in the ring. It was almost like ballet, the way he danced around the ring,” she told TheRepublic. “To be diminished in some way because of this illness, he didn’t want anything to do with that.”
Imploring the boxer to reconsider, Lieberman visited Ali at his home in Michigan. The answer was no.
Lieberman tried again. This time, he penned a poem.
“The image, the legend, the symbol of Muhammad Ali is ageless,” Lieberman wrote. “A part of the world, like the pyramids, and the Grand Canyon. This can never change.”
The poem also says Ali was given a unique combination of “grace, guile and power,” and that avoiding involvement with Parkinson’s disease is the opposite of stinging like a bee.
He was referring to a phrase Ali used to say before entering the ring: “Float like a butterfly, sting like a bee.”
Ali immediately changed his mind.
Drive Toward A Cure And Taste Of Motorsports Join Together
Mar 23, 2021 | Press Release
FOR IMMEDIATE RELEASE
NCM MOTORSPORTS PARK TAKES A LAP FOR PARKINSONS DISEASE
Supporting Muhammad Ali Parkinson Center at Barrow Neurological Institute in Arizona with $12k Donation
Chandler, AZ When premier lifestyle automotive event Taste of Motorsports enlisted Drive Toward a Cure as its key beneficiary for the 2021 season, the only caveat from the charity foundation was that all funds raised stayed local, supporting regional Centers of Excellence for Parkinsons Disease. Having just completed the first of three events together earlier this month in Arizona, including two separate fundraising endeavors, Drive Toward a Cure provided a matching donation that secured a $12,000 gift to the Muhammad Ali Parkinson Center at Barrow Neurological Institute in Phoenix to support patient care.
Drive Toward a Cure Board Member Derek Torry , and Tom Floyd , head of Taste of Motorsports, kick-off the charity drive supporting Parkinsons Disease and benefitting the Muhammad Ali Parkinson Center at Barrow Neurological Institute in Phoenix, AZ. The luxury automotive lifestyle weekend included two separate fundraising endeavors and a matching donation from non-profit Drive Toward a Cure that provided a $12,000 gift to the local Arizona Parkinson Center of Excellence.
About Barrows Muhammad Ali Parkinson Center
About Drive Toward a Cure
About Parkinsons Disease
# # #
Recommended Reading: Judy Woodruff Parkinson’s
Boxing Painting & Parkinson’s
Since the center’s founding, awareness about Parkinson’s disease and its effect on families has increased tremendously, Shill said.
There’s no way to slow the disease’s progression, but there are more ways to reduce disability and improve the quality of life for people with Parkinson’s, particularly with earlier detection and regular exercise, she said.
When Alejandra Borunda was diagnosed with a genetic form of young-onset Parkinson’s disease three years ago, she was devastated and spent several months researching options for what to do next. Eventually, her research led her to the Muhammad Ali Parkinson’s Center, where she enrolled in a class for newly diagnosed patients.
She has since participated in other education, painting and boxing classes through the center, and a support group for Spanish speakers. Staff and many of the other patients at the center are now like a second family, she said.
“If you have to have Parkinson’s disease, Phoenix is the best place to have it. There are a lot of resources here,” said Borunda, 32, who is now both a patient and certified volunteer at the center, and will be an ambassador at the World Parkinson Congress in Japan next year.
She has never met Lieberman, though she’s seen him in passing. In her role as a case manager for Phoenix residents struggling with homelessness, Borunda recently helped a client get an appointment with him.
Borunda said the client is now on medication, living in a women’s shelter and doing well.
Muhammad Ali Center Opened In 1997
In 1997, Walker, Ali and Lieberman opened the Muhammad Ali Parkinson and Movement Disorders Center.
Walker recalls Lieberman making an unforgettable comment at the opening that if a New York Jew, a Muslim from Louisville, Kentucky, and Christians from Arizona could join together to open a center at a Catholic hospital in Phoenix, it would certainly be possible to build the greatest Parkinson’s center in the United States and to one day even find a cure for Parkinson’s disease.
“He’s such a kind man, very humble, and that was his dream. He did so much to make this happen,” Walker said of Lieberman. “Because of the charity event, I still get sometimes one or two people per week telling me they have someone in their family with Parkinson’s disease. I tell them they need to meet with Dr. Lieberman, go to the Muhammad Ali Parkinson Center.”
Invariably, Lieberman ends up giving those patients his cellphone number, Walker said.
Ali attended approximately 20 Celebrity Fight Night events, including one the year he died. By then, Parkinson’s had robbed Ali of his voice, but the people who attended didn’t care. They just wanted to see him, Walker recalled.
Walker and Lieberman have been friends ever since that first meeting, and Walker was the master of ceremonies at a recent retirement and appreciation party for Lieberman.
Don’t Miss: Parkinson Silverware
Thanks For Signing Up
We are proud to have you as a part of our community. To ensure you receive the latest Parkinsons news, research updates and more, please check your email for a message from us. If you do not see our email, it may be in your spam folder. Just mark as not spam and you should receive our emails as expected.
Ivy Brain Tumor Center
In 2018, Barrow Neurological Institute received a $50 million grant from the Ben & Catherine Ivy Foundation in coordination with the Barrow Neurological Foundation to establish the Ivy Brain Tumor Center. This represents the single-largest research grant in the history of brain tumor research, worldwide. The nonprofit translational research program is singularly focused on discovering new therapies for patients with glioblastoma and other aggressive brain tumors through a broad portfolio of pharmacodynamic– and pharmacokinetic-driven clinical trials, combining industry-partnered drug development with the largest operative brain tumor volume in the United States.
- Felipe C. Albuquerque â Vice-Chair AANS/CNS CV Section, Editor JNIS
- David F. Barranco
- Andrew Little – Surgical Director of Barrow Pituitary Center and Director of Barrow Skull Base Team
- Taro Kaibara
- Joseph M. Zambraski â Founding member, Resident CSNS Committee
Don’t Miss: Similar To Parkinsons
Combining Programs And Research With Treatment For Parkinsons
For patients like Scott, Barrow not only offers one of the largest outreach programs that features classes in yoga, painting, theater and more, but it also integrates cutting edge research with clinical care. Through this holistic approach, the Muhammad Ali Parkinson Center is widely considered to be one of the most comprehensive Parkinsons programs available. By combining outreach classes with compassionate care and innovative research, Barrow specialists are poised to knock out Parkinsons for good.
Lunch And Learn Series
Monthly presentation of pertinent topics related to living with Parkinsons disease. Typically held during the lunch hour, 12 1 pm Arizona Time, on the 4th Friday of the month. Previously recorded Lunch and Learn topics can be found here. For more information or to register contact Kristina Watts at 406-4921 or .
Recommended Reading: Cleveland Clinic Parkinson’s Bicycle Study 2017
$4 Million Gift From The Bob & Renee Parsons Foundation Establishes Barrow Parkinsons Program In Honor Of Muhammad Ali
The Lonnie and Muhammad Ali Legacy Care Program will Extend Care into Patient Homes
The Bob & Renee Parsons Foundation has awarded a $4 million gift to the Barrow Neurological Institute in continued support of the Muhammad Ali Parkinson Center, to establish the Lonnie and Muhammad Ali Legacy Care program. The program will allow Barrow to extend care to patients who are physically unable to travel to the center for care.
The Champ didnt accept anything less than the very best in his fight against Parkinsons, said American entrepreneur and philanthropist Bob Parsons. This program will allow the center to give every patient the same level of personalized care that he received.
Many Parkinsons patients cannot receive necessary care because they have mobility complications, are homebound or reside in rural areas. Through the Lonnie and Muhammad Ali Legacy Care program, Barrows medical staff will be able to provide multi-disciplinary care for these patients, in their homes, and offer them the ability to communicate remotely with their physicians via video chat and telemedicine. Patients and caregivers will have access to technology that allows them to remotely participate in various lectures, trainings and support groups, ultimately providing them with tools to achieve a better quality of life. This type of program has long been the vision of Muhammad Alis wife, Lonnie Ali.
We deal in hope.®
Location: Phoenix Azunited States
Fredric Manfredsson received his undergraduate training in microbiology at Arizona State University in Tempe, AZ and his PhD in Biomedical Sciences-Neuroscience from the University of Florida. He then received postdoctoral training in the laboratories of Dr. Ronald Mandel and Dr. Alfred S. Lewin during which he focused on viral vector design and gene-therapy for neurodegenerative disorders. Dr. Manfredsson joined the neuroscience faculty at the University of Florida as a research assistant professor in 2010. In the end of 2010 he was hired as an assistant professor with the Department of Translational Science and Molecular Medicine at the new Michigan State University College of Human Medicine campus in Grand Rapids, MI.
Recently Dr. Manfredsson was hired as an associate professor of neurobiology at Barrow Neurological Institute. His research continues to focus on the application of viral vectors in the study of, and treatment of, motor and non-motor features of Parkinsons disease.
Recommended Reading: Parkinson’s Hallucinations Commercial